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Too much pain and side effects

tasha_111
tasha_111 CSN Member Posts: 2,072
in Breast Cancer #1

This is pretty awful.  Mets to bones and breast again Am in absolute agony for most of the day I am now sleeping 20+ hours a day to avaoid the pain and other side effects (dizzy, nausea, confusion etc}  I am on xeloda 2weeks on one week off, pemidronate every 3 weeks.  Also taking shed loads of pain killers which are not even touching the pain (hydromorphone, hydromorphcontin, morphine, advil)  Nothing helps except sleep.  Any suggestions?

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Comments

  • Clementine_P
    Clementine_P CSN Member Posts: 518 Member
    #2
    So sorry

    Tasha,  I am so sorry you are dealing with all of this.  It sounds truly horrible.  I don't have any suggestions, I just wanted to send some well wishes your way.  I can't imagine that that gives you much comfort, but I am hopeful it does.

    Xoxo,

    Clementine

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  • button2
    button2 CSN Member Posts: 421 Member
    edited July 2016 #3
    Tasha

    I think you are an amazing lady to take the time to update us with all you are going through. It sounds like your doctors have given you some very strong meds so I really don't have any suggestions. Maybe listen to music you love? I feel so powerless to help you, but I sure wish I could. Thinking of you, Anna

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  • Double Whammy
    Double Whammy CSN Member Posts: 2,832 Member
    #4
    Pain pump

    See Camul's post about getting a pain pump.  I'm so sorry to read that you're in so much pain.  Wish I could make it better for you.

    Suzanne

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  • Pixie Dust
    Pixie Dust CSN Member Posts: 424 Member
    edited July 2016 #5
    So sorry you are in so much pain

    Tasha, I cannot say I know what you are going through because I have never been in the kind of pain you are describing that is really that bad. Suzanne had a good suggestion about a pain pump. Ask your ONC about one. Anyone that is in so much pain as you should not have to suffer the way you are with all the ways to fight pain theses days. My dad is now trying to get a pain pump because he has had 7 surgeries on his back. My heart is going out to you right now because of what you are going through. Hope pain gets beter soon. Let us know how you are doing.  HUGS,  Pixie Dust

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  • aisling8
    aisling8 CSN Member Posts: 1,627 Member
    #6
    Sending good thoughts

    This sounds truly awful. I wish there is something to say or do for you, something other than letting you know I'm thinking of you and sending good thoughts and energy your way. 

    xo

    Victoria

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  • twnkltoz
    twnkltoz CSN Member Posts: 169 Member
    #7
    I don't have advice, just

    I don't have advice, just gentle hugs and positive thoughts. I'm so sorry you're going through this.

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  • VickiSam
    VickiSam CSN Member Posts: 9,079 Member
    #8
    Tash -

    Sounds so miserable - I am deeply sorry. 

    As suggested above- maybe a pain pump help with your ongoing - non stopping pain. 

    Hoping, as well as fingers crossed that some type of pain management comes to you quickly.

    gentle hugs,

    Vicki Sam

     

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