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Son-in-law with sRCC

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  • Footstomper
    Footstomper CSN Member Posts: 1,237 Member
    #42
    Good luck with the Nivo

    I hope he has as few side effects as I have. I get my bloodwork checked every time I have an infusion of Nivo.

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  • penitent
    penitent CSN Member Posts: 79
    #43
    Update on John

    John had his 4th infusion of Opdivo on Saturday along with a new set of CT scans.  He and my daughter are meeting with the onc this afternoon to get the results of the scan.  Total scanxiety all around.

    Praying for good news as the last scan showed progression to the lungs and pleural lining.

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  • penitent
    penitent CSN Member Posts: 79
    #44
    Good news for once!

    John is responding well to Opdivo so far.  The existing kidney bed nodes have shrunken by 40%, the pleural lining of the lungs seems to be clear and although the lung nodules are still there are no new mets to be found.  

    He is to continue on infusions every two weeks as usual and next scans in 8 weeks.

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  • daisybud
    daisybud CSN Member Posts: 541 Member
    edited November 2016 #45
    Great news!

    Great news. ;)

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  • Allochka
    Allochka CSN Member Posts: 1,091 Member
    edited November 2016 #46
    Excellent! You see,  too

    Excellent! You see,  too early to give up!

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  • penitent
    penitent CSN Member Posts: 79
    #47
    Well...here's an update on John

    On 12/23 he had a new set of CT scans and then met with his ONC on Christmas Eve.  After six or so infusions of Opdivo the news wasn't what we had hoped for.  There are new lymph node mets in the paratracheal area and in the mid-chest near the aorta.  Apparently this is a fairly common met site for RCC.  Also the lung mets are still there but I'm not sure whether they were larger or not in size or number.

    So Opdivo is off the table as well...and the oncology team is looking at genetic matching for possible trials for 'plan C'.  Everything is kind of up in the air right now until the tests come back.  Not the Christmas present they were looking for.

    Penitent

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