Moilmoli updating

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  • pinky104
    pinky104 Member Posts: 574 Member
    edited May 2016 #22
    molimoli

    You sound like you're feeling just like I was 6 years ago. I was in the hospital for 6 days because I didn't have a return of bowel function.  I think the awful hospital food was at least partly to blame for that.  It was really inedible.  I also was in terrible pain, but I did have stage IVb cancer and had my gallbladder and appendix out at the same time for other reasons.  I developed a UTI and didn't get any sleep from the pain of my extensive surgery and that. When I came home, I tried taking melatonin to help me sleep.  Instead, I got horrible nightmares of seeing someone else die right in front of me.  People kept sending me flowers and I had an allergic reaction to them, sneezing so hard that I hurt my incisions.  It was a hell of a time and I don't ever want to go through it again.  I hope you heal as quickly as possible. It's good to see that you're back on the discussion board.  You were seriously missed.

  • SandyD
    SandyD Member Posts: 130
    #23
    Thank you!

    for putting our minds at ease! Hoping you have a full and speedy recovery!

  • Abbycat2
    Abbycat2 Member Posts: 644 Member
    #24
    Moli, thank goodness you are doing ok

    We are here for you and support you no matter what may be, my friend. Rest and regain your strength. Let us know how you are doing. 

    Thankful that you are through the surgery and on the way to recovery.

    Hugs,

    Cathy

  • molimoli
    molimoli Member Posts: 514
    #25
    Another update

    To all of you ladies, thank you for the uplifting messages. I will write when I'm feeling better. Suffered a bout of dehydration and had to return to the hospital and now dealing with god awful constipation. Can't muster the energy to post in details the drama but you know I will. May the creator be with you. Sending NED blessings to all. I think about you all daily and I am hugging. Can't wait to feel well So we can chat and laugh as usual. Moli.

  • Editgrl
    Editgrl Member Posts: 903 Member
    #26
    Been thinking about you all week

    So sorry you had to return to the hospital, but I am so glad you updated us.  Healing thoughts your way, Moli.  Hope things get flowing soon!

    Chris

  • ConnieSW
    ConnieSW Member Posts: 1,688 Member
    #27
    Sorry

    your recovery has had roadblocks.  Hope it's a straight shot now.

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member
    #28
    Thanks for checking back in

    Thanks for checking back in Moli.  I was starting to worry again! So sorry for your set backs but the other side of this is going to bring you lots of great days. Take care of yourself and come back when you can.

    Love and hugs,

    Cindi

  • LA123
    LA123 Member Posts: 41 Member
    #29
    So Glad to hear from you Moli!

    You have been in my thoughts and prayers. Thank you for being such an inspiration...your witty comments and no nonsense advice are so refreshing.

    Get well soon!

    Lucy

  • Kvdyson
    Kvdyson Member Posts: 790 Member
    edited June 2016 #30
    No hurry

    No hurry, Moli. You rest and heal for now. We will be here when you are ready. Kim

  • Soup52
    Soup52 Member Posts: 908 Member
    #31
    So glad you checked in Moli.

    So glad you checked in Moli. I'm with you on the constipation and all other stomach issues. I think it will be my constant from radiation. I pray yours won't be! Rest up:)

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    edited June 2016 #32
    molimoli said:

    Another update

    To all of you ladies, thank you for the uplifting messages. I will write when I'm feeling better. Suffered a bout of dehydration and had to return to the hospital and now dealing with god awful constipation. Can't muster the energy to post in details the drama but you know I will. May the creator be with you. Sending NED blessings to all. I think about you all daily and I am hugging. Can't wait to feel well So we can chat and laugh as usual. Moli.

    Moli

    So glad to hear from you.  I have been worried.  I understand the dyehydration and constipation issues.  Miserable!  Hang in there and I rest.  Hugs and prayers coming your way from Lou Ann

  • TeddyandBears_Mom
    TeddyandBears_Mom Member Posts: 1,814 Member
    #33
    Lou Ann M said:

    Moli

    So glad to hear from you.  I have been worried.  I understand the dyehydration and constipation issues.  Miserable!  Hang in there and I rest.  Hugs and prayers coming your way from Lou Ann

    Lou Ann

    Glad to hear from you too! How are you doing?

    What's the latest on your heart and next steps on the cancer treatments?

    I think of you often!

    Love and Hugs,

    Cindi

  • Lou Ann M
    Lou Ann M Member Posts: 996 Member
    #34
    TeddyandBears_Mom said:

    Lou Ann

    Glad to hear from you too! How are you doing?

    What's the latest on your heart and next steps on the cancer treatments?

    I think of you often!

    Love and Hugs,

    Cindi

    Short update

    i had an angiogram last Tuesday and it showed my arteries were clear so it was a pumping malfunction.  My heart is pumping at 45% instead of the 60% that is normal.  I have been even more fatiguEd that I usually am.  They took me off of 2 of the medications that the ER put me on so that is starting to help a little.  My Onc gave me a 5 week vacation from chemo to heal.  No news yet on what we are going to try next.  My Onc is trying to get me on Opdivo.  I don't know if he will,have any luck but I am glad he was willing to try.  

    Hugs and prayers to all of you, Lou Ann

  • namedropper
    namedropper Member Posts: 102 Member
    #35
    I was so glad that you posted

    I was so glad that you posted again. Feet better soon. Sue

  • Sandy3185
    Sandy3185 Member Posts: 229 Member
    #36
    molimoli said:

    Another update

    To all of you ladies, thank you for the uplifting messages. I will write when I'm feeling better. Suffered a bout of dehydration and had to return to the hospital and now dealing with god awful constipation. Can't muster the energy to post in details the drama but you know I will. May the creator be with you. Sending NED blessings to all. I think about you all daily and I am hugging. Can't wait to feel well So we can chat and laugh as usual. Moli.

    So glad to hear from you!

    Moli you had us all worried! So sorry to hear about the set back. I know dehydration is a constant worry after surgery/chemo. i have a chronic problem with constipation( which is greatly aggrevated by dehydration!) and I've found that Linzess works very well. You need a prescription for it so ask your doctor. I know you're still feeling pretty awful and weak but I hope you can check in once a week or so. We want to be sure you're OK!  Love and hugs, Sandy

  • Sandy3185
    Sandy3185 Member Posts: 229 Member
    #37
    Lou Ann M said:

    Short update

    i had an angiogram last Tuesday and it showed my arteries were clear so it was a pumping malfunction.  My heart is pumping at 45% instead of the 60% that is normal.  I have been even more fatiguEd that I usually am.  They took me off of 2 of the medications that the ER put me on so that is starting to help a little.  My Onc gave me a 5 week vacation from chemo to heal.  No news yet on what we are going to try next.  My Onc is trying to get me on Opdivo.  I don't know if he will,have any luck but I am glad he was willing to try.  

    Hugs and prayers to all of you, Lou Ann

    So sorry to hear this!

    Oh LouAnn, you have really been thru the mill! I really hope you can get on Opdivo. Chemo takes such a big toll on our bodies and you have endured much more than most of us. It sounds like some rest and a change of meds may be just what you need. You need to renew your strength and energy for the fight ahead!

    I was listening to NPR a couple of weeks ago and they were interviewing a woman who beat stage 4 melanoma with immunotherapy.  She is now 5 years NED. I have read about immunotherapy being used for several differ cancers including ovarian but not uterine. Maybe there are some trials going on? Using our own bodies to fight cancer sounds so exciting! 

    I hope you start feeling better soon. Love and hugs, Sandy

     

  • janaes
    janaes Member Posts: 799 Member
    #38
    It was so hard for me to even

    It was so hard for me to even text when I was in the hospital recovering from my surgery.  I was there for three days.  There were times I just didnt want to respond or even have my family respond for me.  Take your time to respond Its okay.  Janae

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