Should I biospy

2

Comments

  • hardo718
    hardo718 Member Posts: 853 Member
    #22
    Clmac said:

    Architecture ;)

    Lol ! Thank you Donna ! 

    Also, did your initial diagnosis mention "internal septation"? 

    Septation

    Yup.  They told me that's what made it a "complex cyst" and of concern.

  • Clmac
    Clmac Member Posts: 23
    #23
    hardo718 said:

    Septation

    Yup.  They told me that's what made it a "complex cyst" and of concern.

    Septation

    Yup, that was my concern..and thank you !

  • Clmac
    Clmac Member Posts: 23
    #24
    hardo718 said:

    Septation

    Yup.  They told me that's what made it a "complex cyst" and of concern.

    Septation

    Will get to see urologist Wednesday it looks like , hopefully I'll have real answers.. But I'm feeling like its not good..my intuition was correct on the thyroid diagnosis too..funny how we know when something is wrong

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #25
    Clmac said:

    Septation

    Will get to see urologist Wednesday it looks like , hopefully I'll have real answers.. But I'm feeling like its not good..my intuition was correct on the thyroid diagnosis too..funny how we know when something is wrong

    Its not all bad

    Clmac,

    Worst case, you  have a malignant tumor. The real world- The prognosis for a full recovery from surgery alone for a 4cm tumor is in the high nineties. I had a similar diagnosis almost 14 years ago. Been theren done that. You will be fine in any event. For now lets hope you do not have to join our club, but if you do we will welcome you with open harms and teach  you the secret handshake.

    Icemantoo

  • Clmac
    Clmac Member Posts: 23
    #26
    icemantoo said:

    Its not all bad

    Clmac,

    Worst case, you  have a malignant tumor. The real world- The prognosis for a full recovery from surgery alone for a 4cm tumor is in the high nineties. I had a similar diagnosis almost 14 years ago. Been theren done that. You will be fine in any event. For now lets hope you do not have to join our club, but if you do we will welcome you with open harms and teach  you the secret handshake.

    Icemantoo

    Big thanks

    My faith in humanity restored with each response..whatever this week holds, I got this no doubt ( courage regardless) you have been great.!! Now , about that handshake ;) appreciate you Ice !

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    #27
    I agree - the not knowing is

    I agree - the not knowing is the worst! I wish doctors would realize that pussyfooting around, trying to save patients some anxiety actually enhances the anxiety! Just give it to me straight!! I know this is scary stuff to go through...wishing all the best results for you!

    Hugs

    Jojo

  • Clmac
    Clmac Member Posts: 23
    #28
    Jojo61 said:

    I agree - the not knowing is

    I agree - the not knowing is the worst! I wish doctors would realize that pussyfooting around, trying to save patients some anxiety actually enhances the anxiety! Just give it to me straight!! I know this is scary stuff to go through...wishing all the best results for you!

    Hugs

    Jojo

    Guessing games

    I just want them to say no it's not or yea it is...don't like anticipation of what's next , if anything 

  • Clmac
    Clmac Member Posts: 23
    #29
    Update !

    So my doctor called around 6:30 and said her preference is to see a nephrologists after consulting with her colleague... I guess that's OK?

  • hardo718
    hardo718 Member Posts: 853 Member
    #30
    My opinion, wasting your time & money

    If you have a growth on the kidney, you really need to be seen by a urologist.  A nephrologist is a doctor that treats disorders of the urinary tract medically, not surgically. 

    Therefore, if it is deemed you need a surgical procedure you'll end up needing to be seen by a urologist anyway.  Just seems like a waste of time & money.  (just my opinion)

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #31
    Sometimes

    Sometimes Nephrologists get involved with Kidney Cancer. Sometime there are Kidney function issues to be looked at.ets hope it gets resolved ASAP.

     

    Icemantoo

  • Clmac
    Clmac Member Posts: 23
    #32
    Nephrologists

    I'm really getting worried now about my docs decison making, maybe I'll just tell her tomorrow I feel better with the urology referral.

  • Clmac
    Clmac Member Posts: 23
    #33
    Also..

    She did say the radiology report says the right kidney is 11.9 cm, so a 4cm lesion would be considered big..really frustrated tonight with it..and I think I'm just going to do a walk in tomoreow and get things straight

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    #34
    Clmac said:

    Also..

    She did say the radiology report says the right kidney is 11.9 cm, so a 4cm lesion would be considered big..really frustrated tonight with it..and I think I'm just going to do a walk in tomoreow and get things straight

    Size

    Clmac,

    Your 4cm lesion or in worst case scenerio a tumor is small to medium. Many members of our club would almost die for a tumor that small.

     

     

    Icemantoo

  • Clmac
    Clmac Member Posts: 23
    #35
    icemantoo said:

    Size

    Clmac,

    Your 4cm lesion or in worst case scenerio a tumor is small to medium. Many members of our club would almost die for a tumor that small.

     

     

    Icemantoo

    I know!

    I'm not stressing about the size of it, I realize that's small in comomparison..not saying that its the end of the world, I just didn't like the comparison I was given. Thanks for everything and y'all take care

  • APny
    APny Member Posts: 1,995 Member
    edited May 2016 #36
    You need to see a urologist.

    You need to see a urologist. Preferably a urologic oncologist. I don't think any of us on this board was sent to a nehphrologist after seeing a growth on the scans.

  • todd121
    todd121 Member Posts: 1,448 Member
    #37
    Urologic Oncologist

    See if you can find a urologic oncologist. Most nephrologists aren't going to be interested if your kidney function is ok. If you had a blood test for kidney function (creatinine/BUN/eGFR) and they are normal, nephrologists just aren't likely going to be interested. They probably will send you to a urologist.

    Nephrologists are internists. Urologists are surgeons. That's really the big difference.

    You need to find out if this is something that needs to be removed. That's a urologist area decision.

    I thought you already had a urology referral? Did that not happen?

    Within urology there are regular urologists and then there are urologic oncologists. The second group are urologists that have additional training in kidney masses (cysts, tumors, etc.). A regular urologist is ok, but if you can see a urologic oncologist, that would be best.

    Given the size is fairly small (not super small, but still if it is a tumor it's a stage 1 tumor probably) and if your kidney function is ok, it's not an emergency so don't get yourself too upset. If it is a tumor, they grow very slow. A few weeks or months is very unlikely to make a difference.

    You'll get it sorted out soon enough.

    Wishing you the best,

    Todd

  • todd121
    todd121 Member Posts: 1,448 Member
    #38
    Family Doctor

    By the way, your family doctor sounds a little bit loopy. Are you happy with her? (I think you said her...)

    Is she an MD? Is she certified in family medicine or internal medicine?

    Might want to consider just visiting another doctor for another take on this if she's giving you the run around.

    If you aren't happy, use your feet. I got 3 opinions from oncologists after my first surgery before deciding course of treatment. When 2/3 agreed, I felt a lot better.

    She may be really good at other things, but this may just not be what she's good at. :)

    Todd

  • Clmac
    Clmac Member Posts: 23
    #39
    todd121 said:

    Urologic Oncologist

    See if you can find a urologic oncologist. Most nephrologists aren't going to be interested if your kidney function is ok. If you had a blood test for kidney function (creatinine/BUN/eGFR) and they are normal, nephrologists just aren't likely going to be interested. They probably will send you to a urologist.

    Nephrologists are internists. Urologists are surgeons. That's really the big difference.

    You need to find out if this is something that needs to be removed. That's a urologist area decision.

    I thought you already had a urology referral? Did that not happen?

    Within urology there are regular urologists and then there are urologic oncologists. The second group are urologists that have additional training in kidney masses (cysts, tumors, etc.). A regular urologist is ok, but if you can see a urologic oncologist, that would be best.

    Given the size is fairly small (not super small, but still if it is a tumor it's a stage 1 tumor probably) and if your kidney function is ok, it's not an emergency so don't get yourself too upset. If it is a tumor, they grow very slow. A few weeks or months is very unlikely to make a difference.

    You'll get it sorted out soon enough.

    Wishing you the best,

    Todd

    She first told me that I would see the urologists..called back yesterday and said nephrologists. I don't think she knows what to do so I'm trying myself to get the appt. 

  • Clmac
    Clmac Member Posts: 23
    edited May 2016 #40
    todd121 said:

    Family Doctor

    By the way, your family doctor sounds a little bit loopy. Are you happy with her? (I think you said her...)

    Is she an MD? Is she certified in family medicine or internal medicine?

    Might want to consider just visiting another doctor for another take on this if she's giving you the run around.

    If you aren't happy, use your feet. I got 3 opinions from oncologists after my first surgery before deciding course of treatment. When 2/3 agreed, I felt a lot better.

    She may be really good at other things, but this may just not be what she's good at. :)

    Todd

    No, not happy with her!

    She's an MD..like you said, this apparently isn't her thing. And I'm not trying to be overly urgent because i do realize its small just that I work (2) jobs, have a home and family to take care of and don't want to cause any inconvenience to my job or family of I can prevent it

  • sblairc
    sblairc Member Posts: 585 Member
    edited May 2016 #41
    Clmac said:

    No, not happy with her!

    She's an MD..like you said, this apparently isn't her thing. And I'm not trying to be overly urgent because i do realize its small just that I work (2) jobs, have a home and family to take care of and don't want to cause any inconvenience to my job or family of I can prevent it

    You hit the nail on the head. skip nephrologist

    Exactly why you should skip the nephrologist. It's small, but SO WHAT? You still need an appropriate standard of care. I don't think it sounds like seeing a nephrologist first is a good use of your time. And, you can always see one later. Don't waste your valuable time seeing a nephrologist first. 

Discussion Boards