Running out of options
I'm still reading most days, but haven't posted in a while. My liver mets are back in full force 6 months after SIRT. Mostly under one cm but filing most of a lobe. Interventional radiologist says I'm back to systemic care for the rest of my life. I'm currently on Lonsurf which doesn't appear to be working but we'll give it another month. Done with Folfox and Folfiri as well. Stivarga is pretty much the last one to try if I choose to go that route. I'm not in a happy place, vomiting throughout the day, unable to eat or drink much without spewing it back out. Ascities is killing me. I've been drained 5 times, the last being 6.5 liters. I need to decide if I want a permanent drain pipe installed to drain at home. I've been in bed now for 11 months dealing with pain and fatigue. I have a feeling I'm going downhill. My eyes are also turning yellow. Blah blah blah.
Comments
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No blah, blah...
Really, Steve, please don't feel like your post or your life is blah, blah. You could type on and on and fill the screen, that is why this forum and its members are here. To listen. To empathize. Sometimes there is no more advice, just love.
It hurts my heart to read your post and know how much you are suffering. Your strenght of mind, even though your body is spent, spills onto the page through your words. A true fighter.
I know, sometimes the patitudes we hear about Cacner sound rather dull to our ears. Fight, battle, strong, couragous, and others. But when they come from those of us who are patients or caregivers, you know they are said with meaning and with love.
I can't physically reach through the computer to hug you, but the feeling is there. Prayers are there.
Sue
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Nauseajen2012 said:I wish I had advice, but just
I wish I had advice, but just wanted to say I'm sorry. Cancer just sucks.
are you taking anything for the nausea?
I usually take Ondansatron but now I vomit when I swallow the last of the melt pill. Now I'm trying an older prescription for prochlorperazine.
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Thank you SueTrubrit said:No blah, blah...
Really, Steve, please don't feel like your post or your life is blah, blah. You could type on and on and fill the screen, that is why this forum and its members are here. To listen. To empathize. Sometimes there is no more advice, just love.
It hurts my heart to read your post and know how much you are suffering. Your strenght of mind, even though your body is spent, spills onto the page through your words. A true fighter.
I know, sometimes the patitudes we hear about Cacner sound rather dull to our ears. Fight, battle, strong, couragous, and others. But when they come from those of us who are patients or caregivers, you know they are said with meaning and with love.
I can't physically reach through the computer to hug you, but the feeling is there. Prayers are there.
Sue
I'm sure that I'm no worse off than anyone else. Thank you also for how welcoming you are and have been to all these folks.
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I'm so sorry.
Cancer is a terrible thief of all that is good in our lives. Sending strength your way to make it through to July and the joy of a new life in your family.
(on the topic of nausea, the only thing that worked for me was Ativan, 3x per day, at a dose of 2 mg...makes you kind of sleepy, but really knocked out the nausea too)
Big hugs coming your way.
AA
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Oh SteveSteve444 said:Nausea
I usually take Ondansatron but now I vomit when I swallow the last of the melt pill. Now I'm trying an older prescription for prochlorperazine.
I had this problem with Ondansatron. I felt my problem was acutally psychological. I was so sick of the pill itself that it made me vomit. I had to do some serious self talk every time I put it in my mouth. I would hold down the vomit, tears streaming from my eyes.
I hope you find something that works for you. Nausea and vommiting are so wearing on the body.
Sue
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Some current trials:
There's 2 FDA=approveed drugs from last year:Lonsurf(TAS- 102)and Cyramza (ramucirumab)
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IV vitamin C option
Some people have had megavitamin C down to the last several days with a high(er) quality of life, when the tumors finally crowded out their liver. Our friend Ren was one, and our alt med doctor does it with end stage pancreatic cancer patients who have intense pain and debilitation.
In the late stages, each IV vitamin C infusion, say 50-100 grams, may get 1-2 good days - good as in no or less nausea, no or less pain, and energy to get out of bed, and run around. Even heavy oral megadosing with sodium ascorbate liquids, Pauling and associates cited an example of an old guy with liver mets living quite a bit longer, chopping wood every day until on a Friday. He then got a flu like condition on a Friday, a worsening "tailspin" over the weekend and was gone Monday. Lived longer with much better QoL.
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HAI Pump Therapy
Treating Liver Metastases with Hepatic Arterial Infusion Therapy
Video on Dr. Kemeny's Treatment
People may be tired of me praising Dr. K and results vary...but, she has a 61% 10 year survival rate for those with Stage IV colon cancer. I've been around over 12 years. I'm not "cured" but I'm not dead either. Few complaints (if any)0 -
So sorry Steve. I wish that
So sorry Steve. I wish that none of us had to deal with this ugly disease. Maybe someday a cure will truly be found. Thanks for sharing your fight with us. And know that there are many on this board sending you prayers and positive thoughts.
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Steve, words do seem so
Steve, words do seem so inadequate at times to convey our feelings. it makes me ache to hear the quality of life you've endured this past year. I hear about hot chemo and the HAI pump Phillie speaks of, and hope your docs are giving you the best available options. Your overdue for a break, and I'm hoping it comes soon.........................................Dave
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