Has anyone gotten uterine cancer 30 years after hysterectomy

Mydiane

Hi, I'm new here and have been looking to see how likely it is to get uterine cancer after having had a hysterectomy 30 years ago. I had my uterus and cervix removed 30 years ago becaue of fibroids, then my ovaries removed 20 years ago because of cysts. I have never had cancer but I did find a post here written back in 2004 written by a woman who was diagnosed with it 18 years after her hysterectomy. So I was wondering how common this is. 

 

Thank you, Martha

EZLiving66

I have no experience with

I have no experience with that, Martha, but I've heard it can happen.  Wow, just when you think you don't have to worry about THAT anymore, you find out you STILL do!!  I'm hoping everything is ok with you?  Have  you been diagnosed with uterine cancer??

Take care,

Eldri

Mydiane

EZLiving66 said:

I have no experience with

I have no experience with that, Martha, but I've heard it can happen.  Wow, just when you think you don't have to worry about THAT anymore, you find out you STILL do!!  I'm hoping everything is ok with you?  Have  you been diagnosed with uterine cancer??

Take care,

Eldri

Thank for your reply

Hi Edith, I'm a 71 year old woman who hasn't been part of the medical sytem since 2004. I use alternative methods for healing and diagnosis. This man who uses a frequency machine diagnosed me two days ago and I reacted with fear understandably.  So officially I have not been diagnosed, no. I am very skeptical of the machine now since it has made some other misdiagnoses as well. From what I've read, this would be very uncommon! Since I have never had cancer anywhere in my entire body it was a shock and I wanted to see if anyone else here had come down with uterine cancer all this time after a hysterecotmy. Thanks! 

Sandy3185

Uterine cancer after hysterectomy

I'm sorry, but I don't see how that could be possible! You wouldn't have a uterus to have uterine cancer in. And if it has been 30 years it seems very unlikely that any uterine cancer cells could have been hanging around that long without making themselves known. I too would like to know if, and how, that would be possible. If so, really scary!

Mydiane

Thank you

Thank you for your responses. I'm thinking it's quite impossible too! I am doubting that I have it. -Martha

Moped7946

Sandy3185 said:

Uterine cancer after hysterectomy

I'm sorry, but I don't see how that could be possible! You wouldn't have a uterus to have uterine cancer in. And if it has been 30 years it seems very unlikely that any uterine cancer cells could have been hanging around that long without making themselves known. I too would like to know if, and how, that would be possible. If so, really scary!

uterine cancer without a uterus...

THat is impossible unless you already HAD uterine cancer before your uterus was removed. If it spread to another location in your body FROM YOUR UTERUS it would still be called uterine cancer...

BabyCoach

Frequency Machine

Out Of Order!

DrienneB

My friend got a uterine

My friend got a uterine cancer diagnosis about two years ago after having had a hysterectomy 10 years earlier.

Ziva David

Uterine cancer years after hysterectomy

Hello, i was just diagnosed with "recurrent" uterine cancer 16 years after my hysterectomy.  When i had my hysterectomy the biopsy showed pre-cancerous cells in the uterus but that and one ovary was removed.  I had regular pap done and all has been well until now.  My GYN did a pap and swab biopsy and i've been diagnosed with recurrent uterine cancer!  My question of course was how can i have uterine cancer without a uterus?  She speculates that some cells were left behind and turned cancerous.  I have an appointment today with surgical oncologist to see what my treatment options are.  This diagnosis came out of nowhere and was the last thing i ever suspected. 
Today they have a "wash" that they can do after a hysterectomy to see if there are any cells left behind.  I would encourage everyonen to ask for this if it's not SOP today, maybe it is.  Also, i would get a second opinion at the time of hysterectomy IF pre-cancerous cells are present to see if any proactive steps should be taken.  It never hurts to get a second opinion.  I only wish i had known this was even possible.  Will update with my doctor's suggested treatment plan after my appointment today and second opinion next week.

TeddyandBears_Mom

Ziva, Welcome to our gang.

Ziva, Welcome to our gang. Sorry you had to be here though.

Please do let us know what the doctors say. It seems like there is still a lot to learn about how these cells can stay dormant for so long and then appear out of no where!

Love and Hugs,

Cindi

takingcontrol58

Uterine cancer after hysterectomy

Ladies,

The way you can get uterine cancer years after a hysterectomy is if your doctor used a tool called a
morcellator during surgery.

The morcellator is used to grind up the tissue so that it can be removed through small incisions during
laparoscopic surgery.  Lawsuits are currently ongoing on about this tool.  Ask your surgeon if he/she used a morcellator.

If you had uterine cancer at the time of your hysterectomy, and didn't know it, the morcellator would have
spread the cancer cells.

It is likely it was used if you had the surgery many years ago.  Not every surgeon uses this tool.

You can read about the lawsuits at www.drugwatch.com

Takingcontrol58

EZLiving66

Wow, Ziva!  I am so sorry.

Wow, Ziva!  I am so sorry.  Just when you think you can breathe again, something like this happens.  I too, am very interested in what they find out.  As Takingcontrol58 has said, cancer cells could have spread during surgery.  It's almost like we're walking time bombs.  I read about another lady who after 27 years of being NED had a metastatic endometrial cancer recurrence.

And, again, welcome to this club of wonderful women.  It's like having a whole team of scientific researchers at your disposal.

Love,

Eldri

pam0422

Endometrial cancer years after hysterectomy

My mom had endometrial cancer cells on/in her colon last year, 6 years after her hysterectomy. One of the top gynecological oncologists in the country told me this is such an unusual occurence that if you ask 100 doctors you will get 100 opinions about how it happened and what the best course of treatment should be. There is a huge debate regarding cells being spread by a morcellator saw versus cells traveling via the lymphovascular system. The original surgeon who did mom's surgery said she didn't use the saw and would never use a saw on a uterus known to contain cancer cells (Mom was A1A staged at the time of original hysterectomy). That surgeon and hospital called this new cancer a "New primary cancer from endometriosis cells".  Mom never had endometriosis in her life. We changed doctors and hospitals.  My mother's current gynecological oncologist is pretty certain the cells had traveled via the lymphovascular system and because endometrial adenocarcinoma is generally a slow growing cancer the cells had been growing for that long and didn't show up as cancer until they had formed a large enough tumor on the colon to infiltrate the colon and be seen during a colonoscopy. We consulted 4 of the country's best oncologists and all agreed that endometrial adenocarcinoma that shows up years later responds well to treatment. After the colon cancer surgery, it was determined that the best course of treatment for my Mother was oral cytoxan for 6 months and Megace longterm. Unfortunately she now has a large blood clot in her groin from the Megace and will no longer be able to use that. When we get past the blood clot therapy, we'll see if there are any other prophylactic measures available to her. If you have any questions I can help you with, I will do my best. I'm a nurse and have been researching everything I can find on these later cases of cancer after hysterectomy and there's not much info out there. All the best to you.

MAbound

just curious

Let me just inject a little levity into this thread. Forgive me if I offend, but Ziva David sounds familiar to me and i'm wondering if you are a NCIS fan?