neuropathy

Options
NEDbound
NEDbound Member Posts: 54

I am almost 2 months out from my last Folfox treatment.  I had 10.  My neuropathy is getting worse and worse.  Anyone found anything that seems to work?

Thanks,

Summer

Comments

  • John23
    John23 Member Posts: 2,122 Member
    Options
    For what it's worth......

    For what it's worth......

    Click here:  Neuropathy

    I've used it, and continue to use it for any ailments (other than Neuropathy).
    (never did chemo; no neuropathy)

    It is worth looking into!!

    Best hope for your better health!

    John

  • vtspa6
    vtspa6 Member Posts: 172
    Options
    If you find anything, please

    If you find anything, please post! Husband stopped his oxilplatin after treatment 11.  Will have #14 next week & the nerothopy seems to have gotten worse. 

  • beaumontdave
    beaumontdave Member Posts: 1,280 Member
    Options
    vtspa6 said:

    If you find anything, please

    If you find anything, please post! Husband stopped his oxilplatin after treatment 11.  Will have #14 next week & the nerothopy seems to have gotten worse. 

    Neuropathy was annoying and

    Neuropathy was annoying and miserable, but about 1 1/2 years after Folfox [12 treatments], it was largely gone. Oddly, because I have the dystrophy [CMT], my hands and feet normally have what they call "glove stocking effect", a desensitivation [is that a word?], I may have been less affected then normal folks.........................................Dave

  • Trubrit
    Trubrit Member Posts: 5,800 Member
    Options
    Getting worse - Getting better

    My Neauropathy also got worse after treatment, and stayed bad for about two years, and now it is getting better. Not gone completely, but definitely better. I think its about as better as its going to get. 

    As for what to do, I didn't have pain with my Neuropathy, it was just major numb. I would massage my feet, and when in the bath and shower I would use the hardest most powerful massage dial on my hand held shower head. 

    So glad you are out of treatment. Hang in their, and your Neuropathy will turn a corner and start getting better. 

    Trubrit

  • MAliceR
    MAliceR Member Posts: 98
    Options
    Acupuncture helped

    I had neuropathy all the way to my knees and my hands were numb to my wrists by the 9th session of chemo. I had 38 sessions of acupunture starting around the 10th chemo session. Acupunture kept it from getting worse through my last sessions. By the end of my 38 sessions of acupunture my hands were nearly back to normal with the exception of just the tips of my fingers and I had the feeling back in my legs and feet with the exception of the tips of my toes and a bit on the balls of my feet. I have discovered as long as I walk every day and wear good fitting shoes it is quite manageable. Give acupuncture a try. My insurance doesn't usually cover it but my oncologist referred me and they ended up paying for 28 if the sessions. I fully believe acupuncture was the key for me. Hope you find relief.

    Blessings

    MAlice