Update

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  • donnarush
    donnarush Member Posts: 20
    #22
    mp327 said:

    donnarush

    Side effects are the main reason I am hesitant to do the Prolia injections.  What may fix one problem has the potential to cause others.  I'm sorry that you are having some symptoms.  I occasionally have burning and itching.  I'm not sure what your lower abdominal discomfort might indicate.  Have you contacted your colorecal doctor?  It might be a good idea to run this information past him/her to get some feedback.  I hope it's nothing of significance.

    Martha

    THanks Martha...I know what

    THanks Martha...I know what you mean about side effects...everything has them...some side effects from the prolia are abdominal discomfort...Can't win..Also proctitis can cause discomfort...I just don't know anymore..Whenever I do mention these to my doctors they look at me like I have 2 heads....I'm really thinking about going to cleveland clinic for evaluation and opinions...I live 3 hours from there...and have a brother who lives there...I'm just so sick of Doctors right now, I can't stand it...I would love to be able to stay away from them for awhile.....

  • eihtak
    eihtak Member Posts: 1,473 Member
    #23
    mp327 said:

    Another Update

    Hi all.  Rather than starting a new thread, I am just updating you here.  I saw the osteoporosis specialist on May 12th. as a follow-up to my previous blood work.  Everything came back normal, with the exception of my kidney function tests (ugh!).  I do not have parathyroid issues, celiacs or rheumatoid arthritis, among other things for which I was tested.  Therefore, he had me do a 24-hour urine collection, primarily to see how much calcium was being excreted by my kidneys.  That test also came back with good results.  So, he is holding off on prescribing any biophosphinate drugs (Prolia) at this time and will see me in August for a follow-up.

    I saw the nephrologist on June 14th. and had some blood work and urinalysis an hour before my appt.  All of those results were within normal limits, including my creatinine, which was .86 (normal .50-1.50), and my GFR, which was 73 (normal >59).  The GFR is a test that essentially tells us at what percentage of normal my kidneys are functioning.  Dr. E told me that my kidneys are now functioning at about 75%, which is quite an improvement and very good news!

    I am quite tired of drinking water, but I realize that it has contributed to these improved readings, so I will keep at it!  I am also not taking a couple of my previous medications, which could have possibly affected by kidney function negatively.  I am trying (thought not easy!) to watch my salt intake, but am not on any diet restrictions.  However, I still must watch what I eat, not only because of the kidney disease, but also because of my history of intestinal blockages and malabsorption issues.  Eating is a challenge, but I seem to be holding my own.

    I hope everyone is doing as well as possible and I wish you a good weekend.

    Martha

    Martha......

    These sound like overall wonderful results, congratulations! I think some level of diet restriction becomes necessary for us all at some point, but none the less can be quite challenging at times.....hoping you continue to manage.

    I have been taking Alendronate (Fosamax) for 4 yrs now as the breast cancer med I'm on causes increased bone loss. Fortunately I have not yet had any negative side effects but am always worried about long term issues.

    (I am sorry we could not connect when traveling through your beautiful state this spring.....my trip was fabulous and can't wait to do it again)

    katheryn

  • mp327
    mp327 Member Posts: 4,440 Member
    edited June 2016 #24
    eihtak said:

    Martha......

    These sound like overall wonderful results, congratulations! I think some level of diet restriction becomes necessary for us all at some point, but none the less can be quite challenging at times.....hoping you continue to manage.

    I have been taking Alendronate (Fosamax) for 4 yrs now as the breast cancer med I'm on causes increased bone loss. Fortunately I have not yet had any negative side effects but am always worried about long term issues.

    (I am sorry we could not connect when traveling through your beautiful state this spring.....my trip was fabulous and can't wait to do it again)

    katheryn

    katheryn

    Thank you for your comments.  I am still handling my issues pretty well.  I hope you'll let me know the next time you come through here--I would SO love to meet you!  Hugs!

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