The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

PCa update

13»

Comments

  • leamon
    leamon CSN Member Posts: 39
     

     

    Hello,

    My last post may not have been as clear as it should have been . My bone scan 9/28/2016 did not should an bone involvement. The results quoted were from the scan done 2/6/2018. So, all of this has taken place in the last 14 months or so. The PSA rise has been in the last 7 months. Sorry for the confusion.

     

    I start firmagon Fri the 9th and switch to Eligard. Also will get 1 dose of radiation, next Wed the 14th to an area about 6 inches above the knee . Will also be given Xgeva. Sounds like a good (not) diet for the rest of life. As you can imagine, I really look forward to it.

    leamon

     

  • VascodaGama
    VascodaGama CSN Member Posts: 3,788 Member
    edited February 2018 #43
    False negatives

    I am pleased for knowing that the above BS report was not the one of 2016. RT seams in the end that had a reliable purpose. Unfortunately it did not stop the cancer advancement as cancer may have spread already but was unnoticed. In any case, cancer does not spread that fast in 14 months to such extended areas. Traditional bone scans and MRI (2016) have limits in detecting metastases/lesions of sizes smaller than 1.2 cm, turning these exams into false negatives in micrometastases. This is a common problem we cancer patients confront. We never know if the little baggers exist and where are located.

    I am sorry for my above post but the confusion ringed my alarms. Sometimes I question myself if I should or should not opinion on a discussion.

    I still recommend you to draw blood before the Firmagon injection to get a testosterone initial-value marker for future ADT control.

    Best,

    VG