Grade 3 anaplastic features - Pxa - 11 year old boy

My 11 year old son was diagnosed with a Pxa grade 3 with anaplastic features on Xmas eve

 

He had surgery with full resection and were just about to start 6 weeks radio therapy, along side 8 month oral chemo 

 

I'm desperate to speak to anyone who knows about the above and what your experiences have been.. 

 

Please please contact me on [email protected] were based in the uk

 

We're desperate ...

 

Thank you in advance and I wish you all Health and happiness 

 

Kerrie xxx