Grade 3 anaplastic features - Pxa - 11 year old boy

My 11 year old son was diagnosed with a Pxa grade 3 with anaplastic features on Xmas eve


He had surgery with full resection and were just about to start 6 weeks radio therapy, along side 8 month oral chemo 


I'm desperate to speak to anyone who knows about the above and what your experiences have been.. 


Please please contact me on [email protected] were based in the uk


We're desperate ...


Thank you in advance and I wish you all Health and happiness 


Kerrie xxx