Time for a change

marosa

angec said:

Hey, Foxy!  I am sorry to

Hey, Foxy!  I am sorry to hear of some new mets.  Sometimes they add avastin for the bones.  But, if Votrient is popping up new mets, then probably time to move on??  Have you ever heard of this 714X that they are giving in Cananda? I heard about it through a nurse that said she had cancer and it cured her.  http://www.cerbe.com/714X#51.  How about taking the CBD oil or one mixed with THC?  People also swear by that and the way they do it there are no carcinogins.  In any case.  The trial hospitals have new drugs where they take part of the tumor and add some cells to it and put it back in and the tumor goes away. My brain won't let me think of the name of it, but i know there are trials for it at Sloans, and perhaps by MD also.  I have no doubt that you will overcome this latest stint!  The Votrient is a rough drug if you take anything higher than 200 mgs.  It does enough with the side affects at that dosage so i can image a higher dose. I have faith in you, your positive attitude throughout all of this, is encouraging!  I know you will ride that Harley this summer! Heck, maybe even in the spring!  Sending hugs, love and smiles!

Ange

I would make a "collage"

I would love to make a collage from bits and pieces taken from every post writen to you here.  They all have expressed so well how very much we care for you and how we're rooting for you every day!  You have helped so many. You are a great example to follow,  you give hope, you are courageous, you have humour you can be very funny, sometimes even a touch severe to shake us a bit if needed and ohhhh yes you have great style!

I wish you all the best! may you get stronger, healthier, ride that Harley, keep on playing your guitar...

Okay, I have something different to confess   I've been known to like getting married... Im at my third!  It's a good thing this time it's the good one and I really love this man and that you too are also crazy about your wife... otherwise you would definitely be on my list!!!

Be well Foxy, tons of good karma going your way.

 

Marosa

 

nancybuck

2016

Dear Fox:

Like Jan, your words have brought tears to my eyes. In the short time I have been a member of this club, your words of wisdom have comforted me to no end. I am so sorry for what you are going through presently. Words fail me right now, but know that you are so loved by so many. I thank you for being there for me and know that my prayers are with you daily, as they are for all of us struggling through this journey.

 

Sending love and well wishes.

 

Nancy

APny

nancybuck said:

2016

Dear Fox:

Like Jan, your words have brought tears to my eyes. In the short time I have been a member of this club, your words of wisdom have comforted me to no end. I am so sorry for what you are going through presently. Words fail me right now, but know that you are so loved by so many. I thank you for being there for me and know that my prayers are with you daily, as they are for all of us struggling through this journey.

 

Sending love and well wishes.

 

Nancy

“I would love to make a

“I would love to make a collage from bits and pieces taken from every post writen to you here.  They all have expressed so well how very much we care for you and how we're rooting for you every day!”

So perfectly said and summarize my feelings. You are our inspiration and the greatest example of strong will and optimism. Here’s to zapping those mets and if Nivo is a possibility, hopefully you can go back on it or perhaps a combo. All the best to you always and heaps of good karma! xx

Bonngo

Fighter

You are such a fighter!  I read an article yesterday that basically stated whatever is going on in your life, especially during the bad times....MAKE IT COUNT!  For us, here, it is fighting the dreaded C Word.  I'm stepping back to take stock of what good I can take from this and share with others.  

Fox your encouragement to others has definitely been a way to do good for others and thus making what you are going through count!  Likewise, we are here for you as well.  

Keep fighting! You are an inspiration!

~Bonnie

foxhd

Bonngo said:

Fighter

You are such a fighter!  I read an article yesterday that basically stated whatever is going on in your life, especially during the bad times....MAKE IT COUNT!  For us, here, it is fighting the dreaded C Word.  I'm stepping back to take stock of what good I can take from this and share with others.  

Fox your encouragement to others has definitely been a way to do good for others and thus making what you are going through count!  Likewise, we are here for you as well.  

Keep fighting! You are an inspiration!

~Bonnie

None of this sorry stuff

I am absolutely thrilled to be preparing for a change. I don't like the votrient. I'll sharpen up on alternatives meds. But I would prefer an immunologic. The only thing I'm sorry about is having lost a lot of time these last 2 years being sick. I'm hoping to make up for it.

foxhd

marosa said:

I would make a "collage"

I would love to make a collage from bits and pieces taken from every post writen to you here.  They all have expressed so well how very much we care for you and how we're rooting for you every day!  You have helped so many. You are a great example to follow,  you give hope, you are courageous, you have humour you can be very funny, sometimes even a touch severe to shake us a bit if needed and ohhhh yes you have great style!

I wish you all the best! may you get stronger, healthier, ride that Harley, keep on playing your guitar...

Okay, I have something different to confess   I've been known to like getting married... Im at my third!  It's a good thing this time it's the good one and I really love this man and that you too are also crazy about your wife... otherwise you would definitely be on my list!!!

Be well Foxy, tons of good karma going your way.

 

Marosa

 

A flirt

A flirt never hurt. Back at you Mary.

pamstayner

Back at you

Dam... this thread is sounding like a wake !  Pardon me, please do not get me wrong... it's like  somebody has gone, and everybody says good things about them... it just isn't sitting easy with me ... So let me add my 2 cents...

IF you don't get NIVO ( and why would you not... it is now approved for kidney cancer right?) I'm going to get it and share it with you !

Side effects of Sutent, or Votrient, or any of those drugs, make trying to be healthy, or feel well a farce.  Of course, I am too chicken to say ENOUGH when I see the Oncologist... because, well, then... I would be giving up.  I am only on my very first drug, Sutent, and so I can see what methods are there for me next by knowing you, and others here on this site. Everyone else has such hard blockades thrown up at them, and keep going, so I better stiffen up and stand straight too.

I see my oncologist the end of the month.  I'm asking for the MJ and or Marinol or whatever.  I am done, and sick and tired of being sick and tired... I want to DO something dammit !

Foxy... you better keep trucking... or flying... or riding.. or whatever or I'm going to quit checking in here Understand?

Best Karma sent to you.. and everyone here.

Pam

 

foroughsh

Fox,
Sending good karma and

Fox,

Sending good karma and good vibes your way, may 2016 has good news about your health

 

DMike

Changes

Hi Fox,

I wish you luck with your plan for changes in 2016. Those of us with mets are on a constant rollecoaster ride!

I don't post a lot but I read the posts everyday. We both started this journey about the same time and we're both still fighting.That's a good thing!

I just finished 5 days of radiation yesterday on my superior ramus bone. I'm on an immunotherapy trial that combines MPDL3280A/Atezilozumab (Paula's drug) and interferon. February will mark a year on the trial and I've gained almost 25 pounds since starting. I have a scan in 10 days or so and hope the good news keeps coming. I did have the bone met after the trial started but they allowed me to have radiation and continue on the trial. They are more flexible with the immunotherapy trial protocol these days. Although the synergy with an immunotherapy drug and radiation is thought to occur with higher dose radiation like SBRT, I'm still hopeful of some synergy from this radiation and my trial drugs. We'll see.

Also, those of us on Medicare may have our Nivolumab covered under Medicare Part B since it involves a chemotherapy infusion given in a clinic. I found this:

Many cancer drugs will still be covered under Part B, not Part D

Medicare Part B covers doctor visits and outpatient hospital services. Part B also covers the drugs that are infused (given in a vein through an IV) or injected (given as a shot) in a doctor’s office or treatment center. Many chemotherapy (chemo) drugs and the anti-nausea drugs used along with chemo are given by IV infusion in a doctor’s office or clinic. This means they are still covered under Part B.

The difference in coverage for cancer drugs under Medicare Part B and Medicare Part D is blurred when it comes to chemo drugs given by mouth and anti-nausea drugs given by mouth (these are often called oral drugs). Some of these drugs are covered under Part B, but others are covered under Part D.

I wish you the best! ELF!

David

 

foxhd

DMike said:

Changes

Hi Fox,

I wish you luck with your plan for changes in 2016. Those of us with mets are on a constant rollecoaster ride!

I don't post a lot but I read the posts everyday. We both started this journey about the same time and we're both still fighting.That's a good thing!

I just finished 5 days of radiation yesterday on my superior ramus bone. I'm on an immunotherapy trial that combines MPDL3280A/Atezilozumab (Paula's drug) and interferon. February will mark a year on the trial and I've gained almost 25 pounds since starting. I have a scan in 10 days or so and hope the good news keeps coming. I did have the bone met after the trial started but they allowed me to have radiation and continue on the trial. They are more flexible with the immunotherapy trial protocol these days. Although the synergy with an immunotherapy drug and radiation is thought to occur with higher dose radiation like SBRT, I'm still hopeful of some synergy from this radiation and my trial drugs. We'll see.

Also, those of us on Medicare may have our Nivolumab covered under Medicare Part B since it involves a chemotherapy infusion given in a clinic. I found this:

Many cancer drugs will still be covered under Part B, not Part D

Medicare Part B covers doctor visits and outpatient hospital services. Part B also covers the drugs that are infused (given in a vein through an IV) or injected (given as a shot) in a doctor’s office or treatment center. Many chemotherapy (chemo) drugs and the anti-nausea drugs used along with chemo are given by IV infusion in a doctor’s office or clinic. This means they are still covered under Part B.

The difference in coverage for cancer drugs under Medicare Part B and Medicare Part D is blurred when it comes to chemo drugs given by mouth and anti-nausea drugs given by mouth (these are often called oral drugs). Some of these drugs are covered under Part B, but others are covered under Part D.

I wish you the best! ELF!

David

 

David,

Good to hear from you. Great information also. I like the info on medicare B covering nivo. I can use that argument. Hooray for 5 years!

danbren2

My Hero!

Fox,

     Whenever I get the feelings of hopelessnes I just read one of your post and I am immediately filled with hope and strength! I don't think you realize just how much your strenghts and struggles have helped us all.  Thank you Fox for helping even when you don't realize how much you have! Sending you good karma and all things good for you!

                     Keep flying Fox!

                       Brenda