Stage 4 NED 7 Years

Randy33

I had my semi-annual visit with my onc yesterday. My CEA was still good so I guess I am still NED. The Doc says we can reduce my visits to once per year instead of twice per year. He thinks I am cured. Anyway I wanted to let everyone know that my program to prevent recurrance is still working. For those new to the board my program is as follows:

1. Exercise 3 hrs/day

2. Eat a low carb Mediterranian diet. Lots of fruit  and vegetables. Green tea and tumerric.

3. Take the following supplements: multi-vitamin, fish oil, resveratrol, grape seed extract, vit. D3, curcumin, Co-Q10, and a probiotic.

4 Avoid stress

5. Prayer

6. Visualize your anti-bodies attacking cancer cells.

I guess my next report will be one year from now when I will be 8 years NED.

karyns_dad

Awesome

Yay!  Thanks for giving this peice of awesome news.

 

 

Trubrit

Excellent news!

So very glad you popped on to share your inspiring news, and help list. 

May you be NED forever. See you in a year. 

Sue - Trubrit

EvelynB

Randy

Thank you so much for sharing your good news and your program with us. I am 4 months out from treatment and not sure if I'm NED yet but I am trying to be as proactive as possible and I am doing some of the same things you are. Not up to 3 hrs of exercise or anywhere near it but...I'll get there! The part I'm struggling with is knowing I need to eat fruits and vegetables but that I can't right now due to radiation of the intestinal tract. Do you remember how long it was before you could eat them?  

Randy33

EvelynB said:

Randy

Thank you so much for sharing your good news and your program with us. I am 4 months out from treatment and not sure if I'm NED yet but I am trying to be as proactive as possible and I am doing some of the same things you are. Not up to 3 hrs of exercise or anywhere near it but...I'll get there! The part I'm struggling with is knowing I need to eat fruits and vegetables but that I can't right now due to radiation of the intestinal tract. Do you remember how long it was before you could eat them?  

Evelyn

I never had to undergo radiation. I did 9 rounds of Folfox + Avastin and the tumor in my liver and lymph node were gone. The tumor in my colon was removed surgically. During chemo I really didn't know about the low carb Mediterranian diet yet so I was eating just about anything except no sugar. Also during chemo I was not exercising 3 hrs per day. I would walk for 30 min. in the morning then go to the gym to lift weights for 30 min. in the afternoon or run for 30 minutes. I remember at the end of my chemo treatments I could barely run for 15 minutes before I would collapse in exhaustion. Good luck with your treatment!

ron50

Randy33 said:

Evelyn

I never had to undergo radiation. I did 9 rounds of Folfox + Avastin and the tumor in my liver and lymph node were gone. The tumor in my colon was removed surgically. During chemo I really didn't know about the low carb Mediterranian diet yet so I was eating just about anything except no sugar. Also during chemo I was not exercising 3 hrs per day. I would walk for 30 min. in the morning then go to the gym to lift weights for 30 min. in the afternoon or run for 30 minutes. I remember at the end of my chemo treatments I could barely run for 15 minutes before I would collapse in exhaustion. Good luck with your treatment!

G'day Randy

Congratulations on the seven years. I don't know if what you are doing will help stop the cancer coming back but I do know that it is very good to have a plan and to stick to it. I have pretty well stuck to a mediterranean diet. I eat little sugar tho I do eat a lot of fruits. My excercise regime was badly disrupted by neuropathy. I was walking approx 50 miles a week every week for over three years. I had no platinum based chemo drugs. I was initially dxed with a highly aggressive stage three tumour or the transverse and descending colon. My surgeon and onc both agreed i would likely not survive. After the gradual onset of the neuropathy (both legs and left hand) I saw a neurologist . he confirmed I had moderate to sever motor sensory peripheral neuropathy. He would not put forward any probability on cause and because he had no cause , would not treat me. My doctor suggested that i give up my walking before it killed me. I nearly died  from acute pancreatitis. It appears the excercise disaloged a small cholesterol gall stone ( my gall bladder was full of them) and blocked my pancreatic duct. They were able to flush it with saline and oxygen therapy. I lost my gallbladder. I suffer from neprotic syndrome of the kidneys now. I have had three kidney biopsies and they still dont have a dx. I loose up to seven grams of protein a day thru my urine. My nephrologist keeps it in check with cyclosporine. An earlier neph had me on high dose steroids for 18 months causing type two diabetes. I have a lot of other issues some auto -immune like asthma and psoriatic arthritis and some not like sleep apnea (I use cpap every night) . My survival has not been anything to write home about but this Jan I will be out to 17 years still cancer free. Wishing you continueed success with your survival , Ron.

beaumontdave

Randy33 said:

Evelyn

I never had to undergo radiation. I did 9 rounds of Folfox + Avastin and the tumor in my liver and lymph node were gone. The tumor in my colon was removed surgically. During chemo I really didn't know about the low carb Mediterranian diet yet so I was eating just about anything except no sugar. Also during chemo I was not exercising 3 hrs per day. I would walk for 30 min. in the morning then go to the gym to lift weights for 30 min. in the afternoon or run for 30 minutes. I remember at the end of my chemo treatments I could barely run for 15 minutes before I would collapse in exhaustion. Good luck with your treatment!

Randy I follow a number of

Randy I follow a number of the things on your list, exercise, veggies and fruit, multi and fish pills. I also take a baby aspirin and milk thistle, which is said to be good for the liver. I just do regular black tea, but I've cut almost all the sugar out of everything, excluding the occassional ice cream, which I file under stress relief. I wish Folfox had worked as well for me as for you, but surgery got the mets so I'm over a year good and the cea is lower then ever so hopefully at the two year point, they'll ease up on the labs and scans. Your's is a great example of sucess with a stage 4 diagnosis, Congrats.......Dave

Randy33

ron50 said:

G'day Randy

Congratulations on the seven years. I don't know if what you are doing will help stop the cancer coming back but I do know that it is very good to have a plan and to stick to it. I have pretty well stuck to a mediterranean diet. I eat little sugar tho I do eat a lot of fruits. My excercise regime was badly disrupted by neuropathy. I was walking approx 50 miles a week every week for over three years. I had no platinum based chemo drugs. I was initially dxed with a highly aggressive stage three tumour or the transverse and descending colon. My surgeon and onc both agreed i would likely not survive. After the gradual onset of the neuropathy (both legs and left hand) I saw a neurologist . he confirmed I had moderate to sever motor sensory peripheral neuropathy. He would not put forward any probability on cause and because he had no cause , would not treat me. My doctor suggested that i give up my walking before it killed me. I nearly died  from acute pancreatitis. It appears the excercise disaloged a small cholesterol gall stone ( my gall bladder was full of them) and blocked my pancreatic duct. They were able to flush it with saline and oxygen therapy. I lost my gallbladder. I suffer from neprotic syndrome of the kidneys now. I have had three kidney biopsies and they still dont have a dx. I loose up to seven grams of protein a day thru my urine. My nephrologist keeps it in check with cyclosporine. An earlier neph had me on high dose steroids for 18 months causing type two diabetes. I have a lot of other issues some auto -immune like asthma and psoriatic arthritis and some not like sleep apnea (I use cpap every night) . My survival has not been anything to write home about but this Jan I will be out to 17 years still cancer free. Wishing you continueed success with your survival , Ron.

Ron

You have certainly had a much tougher time than me. I admire your determination. My only reminders of my cancer are the scars on my stomach  and mild neuropathy in my feet. You have had more than your share of problems. I hope you don't experience any more.

        Randy 

Randy33

beaumontdave said:

Randy I follow a number of

Randy I follow a number of the things on your list, exercise, veggies and fruit, multi and fish pills. I also take a baby aspirin and milk thistle, which is said to be good for the liver. I just do regular black tea, but I've cut almost all the sugar out of everything, excluding the occassional ice cream, which I file under stress relief. I wish Folfox had worked as well for me as for you, but surgery got the mets so I'm over a year good and the cea is lower then ever so hopefully at the two year point, they'll ease up on the labs and scans. Your's is a great example of sucess with a stage 4 diagnosis, Congrats.......Dave

Dave

I forgot about the aspirin. I take it also. Congrats on being NED and good luck in the future!

                Randy