Wish me luck today please

cati0314
cati0314 Member Posts: 203
in Breast Cancer #1

I am seeing the oncologist today.  He may want me off arimidex.  It's been 5 years.  He also wants to see me because I've been diagnosed with IBS.  I am prayiing that he doesn't call for more tests.  Also had a bone scan last monday ordered by my rheumatologist.  Praying that it doesn't show mets to my bones.  So scared!

Comments

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #2
    Oh Cat ... We are here for you -

    circling the wagons - waiting with you - and wishing the best possible results.

    please update is when possible.

    Vicki Sam

  • disneyfan2008
    disneyfan2008 Member Posts: 6,583 Member
    #3
    Late  notice but I think we

    Late  notice but I think we can get the PINK bus ready and ride along with you...

  • cati0314
    cati0314 Member Posts: 203
    #4
    Update

    So far, so good.  Onco took me off Arimidex.  I was practically triple neg with ER- PRslightly positive HER2-  He said its doing me more harm than good at this point since I have osteoporosis.

    The bone scan ordered by my rheumatologist did not show any bone met, yeah!Her ordeed Hepatitus test was negative.  I had HEP when I was in my early thirties.  Infectious mono and hepatitus.  Don't know where I got it, never used drugs, in fact it was the kind that you can get from dirty utensils but HEP can rear its ugly head decades later as liver cancer.  So that's clear, Yeah!

    The only problem is the diagnose of IBS from my gastroenterologist.  The onco wants to rule out liver mets as the pain is in the same area.  In fact, he's using this as justification to do a skull to mid thigh PET scan.  I should feel that any opportunity to get a report of NED is welcome, but now I'm afraid of the PET showing up mets.

     

    I'm not really good at not stressing over these tests!  The PET is scheduled for 10/8.  That should give us plenty of time to get the pink bus!

     

    Love you all sisters,

    Sharon but you can call me Cat!

  • GlowMore
    GlowMore Member Posts: 789 Member
    #5
    cati0314 said:

    Update

    So far, so good.  Onco took me off Arimidex.  I was practically triple neg with ER- PRslightly positive HER2-  He said its doing me more harm than good at this point since I have osteoporosis.

    The bone scan ordered by my rheumatologist did not show any bone met, yeah!Her ordeed Hepatitus test was negative.  I had HEP when I was in my early thirties.  Infectious mono and hepatitus.  Don't know where I got it, never used drugs, in fact it was the kind that you can get from dirty utensils but HEP can rear its ugly head decades later as liver cancer.  So that's clear, Yeah!

    The only problem is the diagnose of IBS from my gastroenterologist.  The onco wants to rule out liver mets as the pain is in the same area.  In fact, he's using this as justification to do a skull to mid thigh PET scan.  I should feel that any opportunity to get a report of NED is welcome, but now I'm afraid of the PET showing up mets.

     

    I'm not really good at not stressing over these tests!  The PET is scheduled for 10/8.  That should give us plenty of time to get the pink bus!

     

    Love you all sisters,

    Sharon but you can call me Cat!

    Look at it this way**

    Look at it this way....a PET Scan is the very best thing to show ANY cancer anyplace on your body.... I've had about 3 of them so far........they just take a little longer is all....don't plan on doing a lot that day besides the Scan.     And....you KNOW not to let yourself get scared over something you can't control...... you are getting good news and in a Good News Cycle Girl.... STAY THERE.   Hugs, Glo

     

     

  • cati0314
    cati0314 Member Posts: 203
    #6
    GlowMore said:

    Look at it this way**

    Look at it this way....a PET Scan is the very best thing to show ANY cancer anyplace on your body.... I've had about 3 of them so far........they just take a little longer is all....don't plan on doing a lot that day besides the Scan.     And....you KNOW not to let yourself get scared over something you can't control...... you are getting good news and in a Good News Cycle Girl.... STAY THERE.   Hugs, Glo

     

     

    Thanks!

    Thanks for your positive feedback Glo!  I am praying the scan is negative for mets.  Your thoughts help alot!

     

    Sharon

  • Clementine_P
    Clementine_P Member Posts: 518 Member
    #7
    cati0314 said:

    Thanks!

    Thanks for your positive feedback Glo!  I am praying the scan is negative for mets.  Your thoughts help alot!

     

    Sharon

    Fingers crossed!

    I hope the PET comes out clean, Sharon.  So glad that everything else looks good right now.  NED, here you come!

    Clementine

  • GlowMore
    GlowMore Member Posts: 789 Member
    #8
    cati0314 said:

    Thanks!

    Thanks for your positive feedback Glo!  I am praying the scan is negative for mets.  Your thoughts help alot!

     

    Sharon

    When?

    When do you go back to the Oncologist to get the PET Scan Results?  We all send you prayers for positive answers.  Hugs, Glo

  • cati0314
    cati0314 Member Posts: 203
    #9
    GlowMore said:

    When?

    When do you go back to the Oncologist to get the PET Scan Results?  We all send you prayers for positive answers.  Hugs, Glo

    Not sure

    The PET is this Thursday.  I don't have a follow up appnt yet but I will be on it the next day pushing for results.

     

    Hugs to you Glo!

    Sharon

  • cati0314
    cati0314 Member Posts: 203
    #10
    Clementine_P said:

    Fingers crossed!

    I hope the PET comes out clean, Sharon.  So glad that everything else looks good right now.  NED, here you come!

    Clementine

    From your mouth to God's ears!

    Thanks Clementine!  I'm trying to be positive but am afraid.

     

    Hugs,

    Sharon

  • button2
    button2 Member Posts: 421
    #11
    cati0314 said:

    Not sure

    The PET is this Thursday.  I don't have a follow up appnt yet but I will be on it the next day pushing for results.

     

    Hugs to you Glo!

    Sharon

    Good luck Sharon

    I'm joining the others and wishing you a good result on your Thursday scan...Hugs, Anna

  • Ace44
    Ace44 Member Posts: 47
    #12
    Good luck

    Hope all goes well with your tests. Thinking about you and sending all my positive energy. 

     

  • lintx
    lintx Member Posts: 697
    #13
    Ace44 said:

    Good luck

    Hope all goes well with your tests. Thinking about you and sending all my positive energy. 

     

    Sharon

    Wishing you great test results! We'll be thinking of you.  Hugs, Linda

  • cati0314
    cati0314 Member Posts: 203
    #14
    Test and date change

    My PET for this Thursday has been cancelled.  The insurance company wants me to have CAT instead.  The date for the CAT is this Tuesday the 13th and a follow up at the doctor's office for results on Thursday the 15th.  Sort of wanted to get this overwith.  Still asking for prayers my sisters.

     

    Best 

    Sharon

  • aisling8
    aisling8 Member Posts: 1,627 Member
    #15
    cati0314 said:

    Test and date change

    My PET for this Thursday has been cancelled.  The insurance company wants me to have CAT instead.  The date for the CAT is this Tuesday the 13th and a follow up at the doctor's office for results on Thursday the 15th.  Sort of wanted to get this overwith.  Still asking for prayers my sisters.

     

    Best 

    Sharon

    We've got your back!!

    Sending good thoughts. It's hard to wait for tests, harder still to wait for results. I could tell you to find something to keep you busy, but that's just silly -- I've never been able to keep my own self busy enough not to worry, why would I expect it of someone else. Instead I'll suggest visualizing your huge sigh of relief when your're hearing "You're fine, nothing wrong."

    xoxo

    Victoria

  • camul
    camul Member Posts: 2,537
    #16
    cati0314 said:

    Test and date change

    My PET for this Thursday has been cancelled.  The insurance company wants me to have CAT instead.  The date for the CAT is this Tuesday the 13th and a follow up at the doctor's office for results on Thursday the 15th.  Sort of wanted to get this overwith.  Still asking for prayers my sisters.

     

    Best 

    Sharon

    Sorry to hear that it was cancelled!

    Frustrating that our insurance companies have the final say on our treatments... but I can't even go there.  So we will hope for the good results on Tuesday.  I was hoping you had gotten the all is clear phone call. 

    Now you need to plan something fun for the weekend.  I know here we have all the fall boutiques, fall activities.  

    Hugs and prayers Sharon!

    Carol

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