Burning in esophagus, throat, stomach from 5FU

Barbaraek

My husband just started 5FU with a pump via port for 4 days. At day 2 the burning in esophagus, throat and stomach seems unbearable. He is 100% PEG dependent at this point, inability to swallow due to intense pain. Any one else find a way to counter this side effect? Oncologist recommended over the counter Prilosec. We had a pill version, crushed and dissolved it, and put it through the tube this morning. She is ordering a liquid form for us later today to pick up. 

Barb

debbiejeanne

barb, i never had chemo so i

barb, i never had chemo so i can't help but wanted to say i will be praying for your husband.  i am currently having severe burning in my chest also so i know how bad he must feel.  we're still trying to find out what is causing mine.  i pray the liquid with help aliviate the burning and your hubby feels a little better soon.

God be with you both.

dj

phrannie51

Prilosec might just work

the burning is being caused by acid.  Hate to suggest things like Milk of Magnesia or something that might stop him up....that's another can of worms....I think it takes a few days for Prolosec to kick in, doesn't it?

p

Barbaraek

Prilosec

Thanks everyone...the Prilosec seems to be helping a bit, and the 3 hour nap after the ativan dose this morning was a blessing. So far, we've still kept the nausea at bay...though last time it hit several days after the chemo. We go in Monday morning for Neulasta (growth factors) to help avoid the neutropenia he had last time that landed us in the hospital for 4 days.

Bless you all for being here,

Barb

phrannie51

Barbaraek said:

Prilosec

Thanks everyone...the Prilosec seems to be helping a bit, and the 3 hour nap after the ativan dose this morning was a blessing. So far, we've still kept the nausea at bay...though last time it hit several days after the chemo. We go in Monday morning for Neulasta (growth factors) to help avoid the neutropenia he had last time that landed us in the hospital for 4 days.

Bless you all for being here,

Barb

It was during this adjuvant chemo...

that I got a shot of Nupegin often (I think it's the same as Neulasta)....there was also some drug they gave me to boost the red blood cells.  I ended up with 3 blood transfusions during the last two chemo's.  The main things....stay hydrated!!  Get what he can in for nutrition.....and swallow, swallow, swallow....I know that the weight loss is dramatic and scary.....I got down to 77 lbs, but that was short lived once treatment is over.  Right now, it's one day at a time.....just get through today, tomorrow iwll be here soon enough...he's in the home stretch....

p

Barbaraek

phrannie51 said:

It was during this adjuvant chemo...

that I got a shot of Nupegin often (I think it's the same as Neulasta)....there was also some drug they gave me to boost the red blood cells.  I ended up with 3 blood transfusions during the last two chemo's.  The main things....stay hydrated!!  Get what he can in for nutrition.....and swallow, swallow, swallow....I know that the weight loss is dramatic and scary.....I got down to 77 lbs, but that was short lived once treatment is over.  Right now, it's one day at a time.....just get through today, tomorrow iwll be here soon enough...he's in the home stretch....

p

Neulasta

Phrannie,

We are already scheduled to receive Neulasta on Monday, pre-emptively since the Cisplatin he had during radiation caused neutropenia. Good news is we are five minutes from the cancer center where we are treated, husband is the chief medical officer there, and knows how to read bloodwork! On top of that we have a lot of faith and confidence in the medical oncologist working with us. Home health will also come and hook fluids right up to port at home if needed for hyration. We are in a great system here. Will try to coax him into swallowing more.

 

Barb

Skiffin16

Barbaraek said:

Neulasta

Phrannie,

We are already scheduled to receive Neulasta on Monday, pre-emptively since the Cisplatin he had during radiation caused neutropenia. Good news is we are five minutes from the cancer center where we are treated, husband is the chief medical officer there, and knows how to read bloodwork! On top of that we have a lot of faith and confidence in the medical oncologist working with us. Home health will also come and hook fluids right up to port at home if needed for hyration. We are in a great system here. Will try to coax him into swallowing more.

 

Barb

Neulasta

Just a heads up...

My first dose of Neulasta, after about a day or so it felt like I had a bad flu or something..., all my major bones ached.. But it didn't last long, a day or two.. Next few times I received it, less pain..

I never really had issues with the 5FU..

But as a reslt of the chemo, I was Rx Protonix, for acid reflux.., which I still take..

My chemo was three cycles (nine weeks) of Cisplatin, Taxotere and 5FU, then seven weeks of concurrent weekly Carboplatin, and 35 daily rads sessions.., each preceeded with an injection of Amifostine in the belly...

Clean and clear.. six years post STGIII SCC Tonsils HPV+..

Best,
John

Hondo

Hi Barb

 

I had some problems with the burring but was lucky because I was able to use Tums or Pepto Bismol and helped my problems. With him having a PEG tube the Pepto might work better

 

Tim