triple negative

Gcook
Gcook Member Posts: 25
in Breast Cancer #1

Hi I am new here and have not posed before. I have been diangnosed with stage 2, triple negative breast cancer. I am 58 years old and very healthy escept for my diagnosis. I have no family history except that my sister was diagnosed with breast cancer at about the same time! She has the most common form of breast cancer and is not triple negative. I know this is an aggressive cancer. I am interested in hearing about anyone elses experience with this cancer. I am trying not to focus on the survival rates but yes it is one my mind.

Comments

  • Gcook
    Gcook Member Posts: 25
    #2
    Just we back in the post and

    Just we back in the post and found lots of reference to triple negartive breast cancer.

  • twnkltoz
    twnkltoz Member Posts: 169 Member
    #3
    Welcome to the board! I just

    Welcome to the board! I just recently joined myself. I was diagnosed with triple negative invasive ductal carcinoma in June. So far, I'm responding very well to treatment. I don't look at survival rates, because to me they mean nothing. I've heard lots of survivaly stories, and that's all that matters--be one of them!

  • jessiesmom1
    jessiesmom1 Member Posts: 915 Member
    #4
    Triple Negative Breast Cancer

     August 9th marked 5 years since the date of my last round of chemo. I was diagnosed with TNBC Stage IIa in Dec. 2009. I had a right mastectomy followed by 4 rounds of A/C and 12 rounds of Taxotere. I also had 2 surgeries for breast reconstruction. I did not have radiation. No one in my family had previously had any form of cancer. My diagnosis was a shock to all of us. Since my diagnosis I have seen my daughter graduate from both high school and college. I have also seen my son graduate from college. My husband and I have since celebrated our 27th wedding anniversary. I had not expected to be around for any of those events.

    Yes, TNBC is considered an aggressive cancer and the treatment  options are more limited. My oncologist says that once someone with TNBC reaches the 5 year mark their "odds" become the same as a person who is not triple negative. There is never a guarantee that my cancer is gone for good but it is not really something I focus on anymore. I prefer to think that horrendous part of my life is in the past and not in my future.

    I wish you the best of luck. Please come back here if you have questions. I found that someone here always had experience with whatever my issue at the time might have been. 

    IRENE

  • button2
    button2 Member Posts: 421
    #5
    Welcome to the site

    I'm triple positive but I wish you all the best in your fight. Just wanted to agree with the other commenters. Don't look at survival rates. It's just statistics used for research purposes. The only "survival rate" you should be concerned about is for one person - YOU. That's all that matters...good luck!! Anna

  • GlowMore
    GlowMore Member Posts: 789 Member
    #6
    button2 said:

    Welcome to the site

    I'm triple positive but I wish you all the best in your fight. Just wanted to agree with the other commenters. Don't look at survival rates. It's just statistics used for research purposes. The only "survival rate" you should be concerned about is for one person - YOU. That's all that matters...good luck!! Anna

    Triple Negative

    Hi .... if you click my picture it will take you to my Home Page and you can read about me a little bit.......mainly I just wanted to let you know that I was diagnosed with Triple Negative IDBC Stage 3B in 2002.....had a lumpectomy then chemo & radiation... and I am still here.  Fear can't be helped but it can be conquered....I made a decision early on to let it go....because it will paralyze your mind.  Sending you Prayers for Strength & Courage. Glo

  • Gcook
    Gcook Member Posts: 25
    #7
    Thanks for the responses. I

    Thanks for the responses. I am glad I found this site. I have a feeling I will be checking in alot! I found a wonderful support group on Wednesdays. Its going to be a whole new life for me I guess.

  • linpsu
    linpsu Member Posts: 747
    #8
    TNBC

    I am now 5 years out from my TNBC diagnosis and am doing great.  I actually was diagnosed 7 years ago, at Stage 1 - had a left mastectomy because of the size.  No chemo, no rads.  Had an implant placed.  Recurrence 2 years later under my mastectomy scar, at Stage 3C - pretty scary. Had chemo first (4 A/C, then 4 Taxol - dose-dense), then surgery to remove implant and lots more tissue plus 14 more nodes, then rads.  The time after I completed my treatment was really unsettling; I was convinced I wouldn't be around to see my grandchildren.  Now, 5 years later, I have 4 grandkids, and am enjoying my life.  Please feel free to ask me anything.

    Linda

  • alabama_survivor
    alabama_survivor Member Posts: 85
    #9
    I am stage 4 triple

    I am stage 4 triple negative.  I was stage 3C originally, but it recently spread to my sternum.  I've done tons of research, and my biggest concern has been survival rates.  I know of a couple of ladies (not triple negative), that have been stage 4 for 10 years and longer.  Yours is stage 2.  That makes your survival rate much greater than mine.  What I am discovering about all the stats out there, though, is that it takes 5 - 10 years to gather those stats, and a lot can change in that length of time.  Bottom line, most stats don't mean anything.  They are historical.  And every person is different.  I know if you're like me, the not knowing is really hard, but in the 14 months since my initial diagnosis, I have used this  as a growing experience (spiritually, and emotionally), and I've actually made some very positive changes in my life.

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