Update on scan results.

camul
camul Member Posts: 2,537
edited August 2015 in Breast Cancer #1
NOT WHAT I wanted. Aromason has stopped working. Will either strat on Ibrace w/Aromason... The work together and the Aromason gives the Ibrace a boost to target the tumors.
Tumors are growing and there are many new ones mostly on the head, breastbones and right knee which was already quite full of tumors. The tumors on t spine are stablr still (they were radiated), but the right hip to calf is much worse and the pain is bad.
Will have biopsies on 9/10 of both upper and lower intestine. Possiblity that it is in the stomach wall.
Have decisions to make on doing more chemo as 2 1/2 years od weekly was not effective and because of all the chemo I have had, it has changed the cellular structure of the tumors so the chance of chemo being effective in stablizing the tumorsis les than 35%.
Do I want to go thru chemo for such lw dds??? But without I have no odds, but quality of time left may be better.
Could be worse, at least my liver and lungs are clear , but have more soft tissue tumors in arms and back.
.

I can no longer get my results on line. Bummer. Had scans last Tuesday. It was time for them but I was trying to hold off thii the end of Aug/Sept. so I could pay down m balances at hosp. where scans are done, buy in the last 2+ months, I have lost 20+ lbs, no appitute, and after a couple bites of somethi g, I feel so full like I just consumed a 6 course meal. I am hoping it is just the progression, however, learned it could be mets to liver, or more damage from all of the rads I have had to abdomen/pelvic area. Thid is always scarry, yet I have been lucky as my luver has been clear for 3 years. Had lesuons tha cleared with one of the chemos. I would be thrilled if they could find anything that could be fixed so the pain would disappear. Pain dr. says it will continue to increase! I will be starting using a breakthru dilauded. I used it previously, but it was so strong (the lowest pill form) that I was litterally falling. The pharm. company has now come out with a liquid form where 1 drop under the tongue is 1/8 th the strength of the pill form. That is good news! Would love to be pain free!!! Then on Wednesday, my brother and I are going to Nevada to play! Will come home Thursday. Really looking forward to this. It will give me 4 hours (the round trip drive), to visit with him. He is so funny and nice, I always enjoy being around him. Then 2 weeks ago, Another brother was here visiting and I was able to have lunch with him and his wife. If you cant tell, I enjoy spending time with my sisters and brothers! Will keep you all updated on results. Hopefully I will fall asleep!

Comments

  • Clementine_P
    Clementine_P Member Posts: 518 Member
    #2
    Hoping for the best!

    Carol, I'm hoping your scans show something easily treatable and that you are able to continue enjoying time with your brothers and sisters!

    Fingers Crossed!

    Hugs,
    Clementine

  • button2
    button2 Member Posts: 421
    #3
    Carol, I'm hoping you get the

    Carol, I'm hoping you get the best results from your scan and the pain relief you need...keep us posted 000XXX Anna

  • Puffin2014
    Puffin2014 Member Posts: 531 Member
    #4
    counting down to good news

    Counting down with you to what I hope will be good news.

  • New Flower
    New Flower Member Posts: 4,294
    #5
    Puffin2014 said:

    counting down to good news

    Counting down with you to what I hope will be good news.

    Hi Carol

    Waiting and hoping with you for the best outcome possible

  • aisling8
    aisling8 Member Posts: 1,627 Member
    #6
    New Flower said:

    Hi Carol

    Waiting and hoping with you for the best outcome possible

    No, not what you wanted

    or what we wanted for you. It sounds so discouraging and disheartening. 

    I'm glad you've got family visits you're looking forward to.

    Also, I've been wondering how your move to your son and his girlfriend's house went and if you're settled in and liking your new surroundings.

    Big hug to you,

    Victoria

     

     

  • ballerina06
    ballerina06 Member Posts: 57
    #7
    My prayers and hugs are with

    My prayers and hugs are with you.

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #8
    ballerina06 said:

    My prayers and hugs are with

    My prayers and hugs are with you.

    My precious Sister in PINK, Carol

    My heart goes out to you and your family.  You are a WARRIOR whom marches forward in search of treatment, options, or resolve.  I pray for continued health, peace and knowledge.

    enjoy your time away with your brother .. Enjoy

     

    Vicki Sam

  • tufi000
    tufi000 Member Posts: 745 Member
    #9
    Carol, I don't know what to

    Carol, I don't know what to say. We have shared much over the years and this is not welcome news but more so, for YOU. Hope the pain plan works and though I no longer come here much, I am always rooting for you, you are in my heart for sure. Wish I had magic for you.

    Sherry

  • MrsBob
    MrsBob Member Posts: 77
    #10
    My thoughts and prayers are

    My thoughts and prayers are with you. (((hugs)))

  • linpsu
    linpsu Member Posts: 747
    #11
    sorry

    My heart is heavy as I read of your news.  You are so strong and have been through so much.  I hope you get relief from your pain.  Hugs...

  • rutzetta
    rutzetta Member Posts: 174
    #12
    Words can't express

    Hi Carol,

    I wish and pray for better days ahead for you. You are a warrior with all that you have been through with your journey. I will continue to wrap my arms of strength and guidance around you. 

    Cobstance

  • Puffin2014
    Puffin2014 Member Posts: 531 Member
    #13
    time with family

    I'm glad you were able to spend time with family this week and hope they were a comfort to you. I'm praying doctors will be able to control your pain.

  • camul
    camul Member Posts: 2,537
    #14
    Puffin2014 said:

    time with family

    I'm glad you were able to spend time with family this week and hope they were a comfort to you. I'm praying doctors will be able to control your pain.

    update.
    Thanks Sherrt, VickiSam,Constance, Mrs Bob,Puffin, Linda, Olga,Victoria and everyone for your support and love throughout this journey. Not doing chemo. Will do the Ibrance if it gets approved. Odds of chemo doing anything is not high enough to give up my quality of life. I may still be around for a while. The Ibrance is a targeted therapy, not chemo.
    I can always change my.mind. The thought of being ill, the infections and fatigue were causing more anxiety. I feel a sense of relief since talking to family and explaining why I was willing to try again. Even to me, when saying it out loud, did not make sense since the odds are so low of any pisutive outcome.
    So I am hoping I get approved for the aIbrance.
    Thank you all,
    Hugs,
    Carol
  • tufi000
    tufi000 Member Posts: 745 Member
    #15
    camul said:

    update.
    Thanks Sherrt, VickiSam,Constance, Mrs Bob,Puffin, Linda, Olga,Victoria and everyone for your support and love throughout this journey. Not doing chemo. Will do the Ibrance if it gets approved. Odds of chemo doing anything is not high enough to give up my quality of life. I may still be around for a while. The Ibrance is a targeted therapy, not chemo.
    I can always change my.mind. The thought of being ill, the infections and fatigue were causing more anxiety. I feel a sense of relief since talking to family and explaining why I was willing to try again. Even to me, when saying it out loud, did not make sense since the odds are so low of any pisutive outcome.
    So I am hoping I get approved for the aIbrance.
    Thank you all,
    Hugs,
    Carol

    If anyone can reconcile this,

    If anyone can reconcile this, you can and hope it makes your time a good time. Finding out the radiation for my meningioma is only the start of a life-long process and not an end goal has gotten to me a bit too, but I think of you and say...what would Carol do? You will always amaze me.

  • New Flower
    New Flower Member Posts: 4,294
    #16
    tufi000 said:

    If anyone can reconcile this,

    If anyone can reconcile this, you can and hope it makes your time a good time. Finding out the radiation for my meningioma is only the start of a life-long process and not an end goal has gotten to me a bit too, but I think of you and say...what would Carol do? You will always amaze me.

    we are here for you

    Carol,

    Thank you for update. I am sure it was tough to choose, however as you know any decision whci make you comfortable, are good and right for you. We will support you as much as possible.

    I will provide you tips as I have been through this drug.

    Good luck

    Olga

  • GlowMore
    GlowMore Member Posts: 789 Member
    #17
    camul said:

    update.
    Thanks Sherrt, VickiSam,Constance, Mrs Bob,Puffin, Linda, Olga,Victoria and everyone for your support and love throughout this journey. Not doing chemo. Will do the Ibrance if it gets approved. Odds of chemo doing anything is not high enough to give up my quality of life. I may still be around for a while. The Ibrance is a targeted therapy, not chemo.
    I can always change my.mind. The thought of being ill, the infections and fatigue were causing more anxiety. I feel a sense of relief since talking to family and explaining why I was willing to try again. Even to me, when saying it out loud, did not make sense since the odds are so low of any pisutive outcome.
    So I am hoping I get approved for the aIbrance.
    Thank you all,
    Hugs,
    Carol

    Hey Carol....

    Hey Carol.... I've been away from the Board for several days so missed your first post above.   That pain needs to be kicked out***  Can't they do something for you besides make you comatose?   Just makes me mad to think about it ....dammit.   Are you still working?  Seems like I remember you saying that you were still working a few months ago.   Sounds like you are blessed with some great family and that really does help....let us know about the trip with your Brother.   Just read up on the Ibance and it looks like it will hit the white cells hard again....which means infections...and exhaustion as you well know.   You always sound so positive....and you are one of the bravest, most courageous women in this Battle.....we salute you....and send you hugs and prayers for continued strength and courage.   Love from a Pink Partner...... Glo

     

  • camul
    camul Member Posts: 2,537
    #18
    GlowMore said:

    Hey Carol....

    Hey Carol.... I've been away from the Board for several days so missed your first post above.   That pain needs to be kicked out***  Can't they do something for you besides make you comatose?   Just makes me mad to think about it ....dammit.   Are you still working?  Seems like I remember you saying that you were still working a few months ago.   Sounds like you are blessed with some great family and that really does help....let us know about the trip with your Brother.   Just read up on the Ibance and it looks like it will hit the white cells hard again....which means infections...and exhaustion as you well know.   You always sound so positive....and you are one of the bravest, most courageous women in this Battle.....we salute you....and send you hugs and prayers for continued strength and courage.   Love from a Pink Partner...... Glo

     

    Thanks Glo
    No I havent been able to work since my diagnosis. nI was too sick and falling at the beginning, then was on weekly chemo for 2 1/2 years and certainly was not able to work ft and part-time was not an option at that yime.... so, I volunteer at the cancer wellness hiuse.
    Hugs,
    Carol

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