Primary peritoneal cancer after prophylactic hysterectomy

Nikkio02
Nikkio02 Member Posts: 3
in Peritoneal Cancer #1

My mom has almost certainly been diagnosed with primary peritoneal cancer.. Still waiting on all the specifics as we sit in her hospital room but had a question. My mon had a prophalactic hysterectomy 1 year ago due to 2 sisters developing ovarian cancer.  

Now one year after surgery we have almost a certain diagnosis of the PPC. I'm reading about the morcellator and how it's use is already being known for spreading cancer. Anyone else experience this? Thoughts?

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  • Cessily6485
    Cessily6485 Member Posts: 6 Member
    #2
    Hysterectomy young, PPC post-menopasal

    Hi Nikki,  Now three months after your mom's diagnosis, I would bet you have more information.  I was forced to have a hysterectomy at age 27, I am now 68 and two years ago got my diagnosis for PPC Stage 3C.  The cause is very hard to learn, and varies so much by individual.  In my case, I had 35 years of estrogen treatment.  Three years prior to diagnosis had stopped taking estrogen.  Early menopause.

    Often PPC comes to women who are post menopausal.  Our changes of hormones can be one factor.  Many of us, like me, never had a pregnancy.  Sometimes weight is a factor.  I am 20 lbs too heavy for my 5 foot height.  I had other issues like endometriosis that lead to the hysterectomy.

    I would look for other reasons, perhaps you should request a DNA test for both breast and ovarian cancer.  Oh, it is in your family.  That reason alone can contribute to this PPC.  BUT with that mutant gene there are drugs specifically for that.  I don't even have mutant genes for either breast or ovarian and I still got PPC.  If you need a second opinion for treatment I would do it.  There are a lot of new drugs coming.  I am on a new study drug now, and antibody.  There is great hope in this direction, in addition to all the DNA specific drugs out there.

    Ovarian cancer affects the skin (epithelial) tissue which is just like our Peritoneal, so I got it even without having ovaries for 40 years prior to getting PPC.

    I hope that you find success.  We have lives to live a well and as long as we can.

     

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