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Hoping for same trial as Lilacbbroller (Karin)

herdizziness
herdizziness CSN Member Posts: 3,624 Member
edited May 2015 in Colorectal Cancer #1

so, my Onc let me know today when Irenotican and chemo fog, forgot chemo I do evey week, (just did both today)quit working which they might in three months or maybe six months, that I have no options left.  

I asked him about Maryland trial, he said he's been in touch with Standford hoping they would do a likewise trial and so far haven't, that he urged me to go for it.

So here's hoping I can follow Karin and get in to the trial and hopefully before it's too late for me.

Wish me luck, Winter Marie

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Comments

  • Fight for my love
    Fight for my love CSN Member Posts: 1,522 Member
    #2
    Best luck, Marie. Hang on

    Best luck, Marie. Hang on there.

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  • herdizziness
    herdizziness CSN Member Posts: 3,624 Member
    #3
    Erbitux

    it's erbitux I do every week.  

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  • NewHere
    NewHere CSN Member Posts: 1,433 Member
    #4
    Go Get It

    Hope you get in and kick this in the butt...

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  • hippiechicks
    hippiechicks CSN Member Posts: 509 Member
    #5
    Wishing you the best of luck

    Wishing you the best of luck getting in this trial .. it looks so promising ... I really have good vibes about this route. (((hug))) One day at a time.

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  • Yolllmbs
    Yolllmbs CSN Member Posts: 360 Member
    #6
    hippiechicks said:

    Wishing you the best of luck

    Wishing you the best of luck getting in this trial .. it looks so promising ... I really have good vibes about this route. (((hug))) One day at a time.

    Always praying

    and thinking about you. I pray you keep up the good fight and get into the trial. 

    Yolanda

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  • lilacbrroller
    lilacbrroller CSN Member Posts: 412 Member
    #7
    Yolllmbs said:

    Always praying

    and thinking about you. I pray you keep up the good fight and get into the trial. 

    Yolanda

    PM

    Howdy - I just PM'd you  Cool

     

    Karin

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  • sflgirl
    sflgirl CSN Member Posts: 220 Member
    #8
    Best wishes

    Heres  hoping you follow Karin in, you've got a running start.

    Good luck!

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  • jen2012
    jen2012 CSN Member Posts: 1,607 Member
    #9
    Good luck winter!  

    Good luck winter!  

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  • YoVita
    YoVita CSN Member Posts: 590 Member
    #10
    Best of luck Winter Marie

    I hope you can get in to the trial and that it's effective for you.  

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  • annalexandria
    annalexandria CSN Member Posts: 2,571 Member
    #11
    I'm keeping my fingers crossed for you!

    I feel like this approach has so much promise, so I really hope you get the chance to try it.

    Big hugs!

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  • Easyflip
    Easyflip CSN Member Posts: 588 Member
    #12
    Best wishes

    and good luck to you Winter and Karin. Keep us posted, I'm pulling for both of you.

    Easyflip/Richard

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  • Cathleen Mary
    Cathleen Mary CSN Member Posts: 827 Member
    #13
    Easyflip said:

    Best wishes

    and good luck to you Winter and Karin. Keep us posted, I'm pulling for both of you.

    Easyflip/Richard

    I so admire your

    I so admire your perseverance, Winter. The trial seems so promising. Prayers that you are accepted and that you and Karin benefit greatly. Pioneers.

    CM

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  • UncleBuddy
    UncleBuddy CSN Member Posts: 1,019 Member
    #14
    Good luck!

    I hope you make it into the trial.

    What makes you think it will stop working so quickly? My brother has been on a low dose of irinotecan for quite some time now and so far it is keeping the tumors from spreading/growing. That is the only chemo he is on because of his weak heart. He had been on erbitux at one time. That rash was wicked. They gave him monocycline and a creme which cleared it up pretty quickly.

    I hope all goes well and you make it into the trial. I also hope it works and we hear that you've become NED! We all have to hope!

    Lin

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