New Kid in Town -First Post-

theposhcaniac
theposhcaniac Member Posts: 2

Hi everyone! I stumbled across this board on Google and decided to join. I underwent a right partial nephrectomy in July at Duke University, followed by a diagnosis of clear cell renal cell carcinoma. I'm my doctor's youngest patient to date at 30 years old. My mass was an incidental find on a CT, 3 weeks after having my youngest son (he turns one year old tomorrow).  

 

Comments

  • donna_lee
    donna_lee Member Posts: 1,041 Member
    You're in good company

    Sorry to welcome you to the club.  A partial with clear cell is a somewhat "good" result, other than the fact it's cancer.  Yuck.  Finding it incidentally truly is the norm.  Oh, the ways it has been found would blow your socks off.  "Pulled muscle, gall bladder symptoms, x-rays or scans for another medical situation, broken bones, etc."  Very few have exhibited the classic symtoms that would make a Dr. say, "I think I'll see if you have kidney cancer."

    Sounds like you are doing OK.  And Happy 1st BD to the baby.

    There is a depth and wealth of experience and background and knowledge within the group.  But mostly we support one another in finding answers to questions and get ourselves through the next scary test, or wait for the results.

    Me-I'm going on 9 years this month, with the original Dx and first surgery in 2006.  Tests this month, but I'm finally at the Chest x-ray and abdominal/pelvic ultrasound stage.  It took me 7 years to get beyond 3mo, then 6 month, and finally yearly CT's.

    Life is good.   

    But today the weather is in the low 60's, the sun is out and so are the guys who take their shirts off to paint a fence.  Talk about white fish belly!

    Have fun getting to know us.

    Donna

  • Footstomper
    Footstomper Member Posts: 1,237 Member
    Welcome

    You didnt say how big your tumour was. Pretty small I would guess if you just had a partial neph. So probably not a lot to worry about (apart from that horrible bloody word).

  • todd121
    todd121 Member Posts: 1,448 Member
    Welcome

    Sorry you have cancer. What was the CT all about if you had no symptoms (if I may ask, that is)?

    Glad it was a small tumor and I hope you're done with this beast.

    Best wishes,

    Todd

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    todd121 said:

    Welcome

    Sorry you have cancer. What was the CT all about if you had no symptoms (if I may ask, that is)?

    Glad it was a small tumor and I hope you're done with this beast.

    Best wishes,

    Todd

    Too young

    Although this is a 50 to 70 year old disease we are seeing too many youngsters like yourself applying for membership in our club. At least with a small tumor the odds are heavily in your favor for clear sailing ahead.

     

    Icemantoo

  • Jojo61
    Jojo61 Member Posts: 1,309 Member
    icemantoo said:

    Too young

    Although this is a 50 to 70 year old disease we are seeing too many youngsters like yourself applying for membership in our club. At least with a small tumor the odds are heavily in your favor for clear sailing ahead.

     

    Icemantoo

    Welcome to our club! Not the

    Welcome to our club! Not the greatest initiation to become a member!

    I know this is all so scary - especially at such a young age. However, it is an optimal situation out of all the possible scenarios.

    If you need any information or support, we are here for you!

    And happy first birthday to your wee one!

    Hugs

    Jojo

  • theposhcaniac
    theposhcaniac Member Posts: 2
    Let's see if I can remember

    Let's see if I can remember all of the questions. Haha Thanks for the warm welcome! :)

     

    Size and location: It was the size of a lime, tucked between my adrenal gland and renal artery. It was not in my kidney, it was external. The location of it was the problem. It was on track to spread to my vena cava then heart, which they projected would've happened with 2 years. My doc went in, did a partial, created a negative margin and only had to remove 15% of my kidney.

     

    Reasoning for the CT: I had complications with my c-section and developed a football sized hematoma. CT was ordered to see exactly what was going on. A CT done in 2010 showed nothing.

  • Jan4you
    Jan4you Member Posts: 1,330 Member

    Let's see if I can remember

    Let's see if I can remember all of the questions. Haha Thanks for the warm welcome! :)

     

    Size and location: It was the size of a lime, tucked between my adrenal gland and renal artery. It was not in my kidney, it was external. The location of it was the problem. It was on track to spread to my vena cava then heart, which they projected would've happened with 2 years. My doc went in, did a partial, created a negative margin and only had to remove 15% of my kidney.

     

    Reasoning for the CT: I had complications with my c-section and developed a football sized hematoma. CT was ordered to see exactly what was going on. A CT done in 2010 showed nothing.

    Welcome and glad you found

    Welcome and glad you found this site!

    There are some awesome folks on here, so ask away!

    Congrats on your little one, walking yet?

    Geez, a C section THEN a giant hematoma!

    But it lead you to find the tumor in time.

    Are you all healed up now?

    Sending you the kindest, warmest thoughts!

    Jan

  • icemantoo
    icemantoo Member Posts: 3,361 Member

    Let's see if I can remember

    Let's see if I can remember all of the questions. Haha Thanks for the warm welcome! :)

     

    Size and location: It was the size of a lime, tucked between my adrenal gland and renal artery. It was not in my kidney, it was external. The location of it was the problem. It was on track to spread to my vena cava then heart, which they projected would've happened with 2 years. My doc went in, did a partial, created a negative margin and only had to remove 15% of my kidney.

     

    Reasoning for the CT: I had complications with my c-section and developed a football sized hematoma. CT was ordered to see exactly what was going on. A CT done in 2010 showed nothing.

    The size of a lime

    The best I can figure out is that a tumor the size of a lime is about 3.8 cm (the average lime has a diameter of 1.5 inches).

    Still fairly small compared to many of us. Some of the other stuff like C sections I couln't really figure out.

     

     

    Icemantoo

  • Allochka
    Allochka Member Posts: 1,057 Member
    icemantoo said:

    The size of a lime

    The best I can figure out is that a tumor the size of a lime is about 3.8 cm (the average lime has a diameter of 1.5 inches).

    Still fairly small compared to many of us. Some of the other stuff like C sections I couln't really figure out.

     

     

    Icemantoo

    Wow, turns out your baby kind

    Wow, turns out your baby kind of saved your life! :-) are you getting regular follow-ups post surgery?.

  • foroughsh
    foroughsh Member Posts: 779 Member
    I'm happy you found yhis

    I'm happy you found yhis board,so many kind carring members are here to help. I was 36 years old when it was discovered last year but mine was large

  • myoung790
    myoung790 Member Posts: 75
    Hi and welcome.  My tumor was

    Hi and welcome.  My tumor was discovered at 40 and I thought I was young.  Glad that all went well and that you only needed the partial.  

  • Ree_Maryland
    Ree_Maryland Member Posts: 161 Member
    thepost

    Hi

      Welcome , Hate it when new ones have to  come on board , especially the young ones, My tumor was grated 1b ,been a year now since I had a neph, right kidney removed , had my third chk up April 3rd 2015 next one April 2016 nerd so far, hope all goes well for you and your wee lil one and of course the rest of your family.