UPSC/Ovarian..medical neglect
In preparing for her MDA visit she did a more thorough job of organizing her medical records and found a report done on a CT scan in 2009. This was done because she was diagnosed at that time with colon cancer; it was a separate primary cancer. She was stunned to see a note by the doctor that there was "a suspicious mass on the cervix which measures 7.2 x 2.9 cm. This finding is concerning for a primary cervical cancer. The uterus is also enlarged and heterogeneous." There was never any mention of this to any of the specialists she was seeing at that time or subsequently..no follow up despite her complaints of bloating (and she's petite). It was over a year later that she had the hysterectomy, UPSC diagnosis, etc. You always hear that the reason that these cancers are often not discovered until they're late stage is because they're so hard to detect. Sometimes it's just because the people in charge don't care enough. Their neglect have put my sister in a precarious position. She's heartbroken. I'm livid.
Comments
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What treatment was given?
Hi Imede,
my wife has also got UPSC and she did not respond well to the first treatment of chemo. Do you know what drugs were given to your sister as part of the ovarian cancer protocol? With the recurrence of the cancer, what options are your sister considering now?
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Dezzie, you may want to check out the uterine board here.dezzie said:What treatment was given?
Hi Imede,
my wife has also got UPSC and she did not respond well to the first treatment of chemo. Do you know what drugs were given to your sister as part of the ovarian cancer protocol? With the recurrence of the cancer, what options are your sister considering now?
HI, dezzie, I am from the uterine board here on CSN. There are quite a few women, like me, with UPSC there who may be able to assist you. I was diagnosed with Stage 3a UPSC almost 2 years ago and am still NED. You may want to post a question there.
Warm Wishes,
Cathy
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UPSC Am I in the right place here?Abbycat2 said:Dezzie, you may want to check out the uterine board here.
HI, dezzie, I am from the uterine board here on CSN. There are quite a few women, like me, with UPSC there who may be able to assist you. I was diagnosed with Stage 3a UPSC almost 2 years ago and am still NED. You may want to post a question there.
Warm Wishes,
Cathy
Hi, I am new here, and confused on this site, am I in the right place? I have a short "story" on my home page. I am in the middle of my treatment for UPSC stage IIIC1 (surgery,chemo done) and start radiation next week.
Thank you
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Byr15, most of the UPSCByr15 said:UPSC Am I in the right place here?
Hi, I am new here, and confused on this site, am I in the right place? I have a short "story" on my home page. I am in the middle of my treatment for UPSC stage IIIC1 (surgery,chemo done) and start radiation next week.
Thank you
Byr15, most of the UPSC ladies hang out on the "UTERINE" chat board. but some of us visit the other "below the belt" cancers to find our sister warriors.
Please visit us over on the UTERINE board, you will be welcomed with open arms.
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