The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Djinnie, how are you?

2»

Comments

  • APny
    APny CSN Member Posts: 1,995 Member
    #22
    Djinnie said:

    Thank you!

    Thanks everyone for your support, you're a team in a million.

    I haven't started back on the Afinitor as yet, I am waiting on some morphine patches at the moment. The idea seems to be to take plenty of opiates to shut the cough down and then I can continue on Afinitor. The only time I like feeling woozy is when I'm looking at an empty bottle of a lush red, so my immediate reaction to this was no way! But my husband feels I should give it a go, so I agreed so long as I have patches. This will give me the ability to remove it if it's all too much. Along with these I will be on codeine and stronger anti sickness. My Oncologist tells me that my body will adjust after a few days, if that is not the case then I will be heading straight back to the bottles of lush red.

    Hey Foxie thanks for the offer, I warn you I am listing badly to port lately though!!

    love

    Djinnie x

    Bottle of Lush Red

    "The only time I like feeling woozy is when I'm looking at an empty bottle of a lush red"

    I totally agree with you on this. I’m really keeping my fingers and everything I possible can crossed so that your body will adjust (I do think your oncologist is right and you will) and you’ll be able to resume Afinitor without coughing and without a woozy side effects of the morphine and codeine.

    Like Care
  • foroughsh
    foroughsh CSN Member Posts: 780 Member
    #23
    APny said:

    Bottle of Lush Red

    "The only time I like feeling woozy is when I'm looking at an empty bottle of a lush red"

    I totally agree with you on this. I’m really keeping my fingers and everything I possible can crossed so that your body will adjust (I do think your oncologist is right and you will) and you’ll be able to resume Afinitor without coughing and without a woozy side effects of the morphine and codeine.

     Djinnie,I'm praying for you,

     Djinnie,I'm praying for you, thinking of you often. Hoping for a good news very soon

     

    Like Care
  • a_oaklee
    a_oaklee CSN Member Posts: 566 Member
    #24
    Thank you Djinnie for taking

    Thank you Djinnie for taking the time to connect with us.  I think of you everyday and only wish the best for you.  I do agree with Neil, that your doctors confirm that there isn't anything else contributing to the cause of the coughing.  I think if I were you, DJ, I would just take that empty bottle of red, and set it next to me (at home).  Whether I was outside enjoying the sunshine and flowers, or inside watching TV or reading a book.  I would pretend, with mind over matter, that my wooziness was from something totally enjoyable.  You are such a strong woman, I know that you will make all the right decisions for yourself.  I really do hope and pray that you will get through this horrible coughing.  Your friend, Annie.

    Like Care
  • Footstomper
    Footstomper CSN Member Posts: 1,237 Member
    #25
    Djinnie said:

    Thank you!

    Thanks everyone for your support, you're a team in a million.

    I haven't started back on the Afinitor as yet, I am waiting on some morphine patches at the moment. The idea seems to be to take plenty of opiates to shut the cough down and then I can continue on Afinitor. The only time I like feeling woozy is when I'm looking at an empty bottle of a lush red, so my immediate reaction to this was no way! But my husband feels I should give it a go, so I agreed so long as I have patches. This will give me the ability to remove it if it's all too much. Along with these I will be on codeine and stronger anti sickness. My Oncologist tells me that my body will adjust after a few days, if that is not the case then I will be heading straight back to the bottles of lush red.

    Hey Foxie thanks for the offer, I warn you I am listing badly to port lately though!!

    love

    Djinnie x

    Djinnie

    I will raise a glass of red in your direction. Or perhaps a glass of port would be more appropriate

    Like Care
  • brea588
    brea588 CSN Member Posts: 240
    #26
    Djinnie said:

    Thank you!

    Thanks everyone for your support, you're a team in a million.

    I haven't started back on the Afinitor as yet, I am waiting on some morphine patches at the moment. The idea seems to be to take plenty of opiates to shut the cough down and then I can continue on Afinitor. The only time I like feeling woozy is when I'm looking at an empty bottle of a lush red, so my immediate reaction to this was no way! But my husband feels I should give it a go, so I agreed so long as I have patches. This will give me the ability to remove it if it's all too much. Along with these I will be on codeine and stronger anti sickness. My Oncologist tells me that my body will adjust after a few days, if that is not the case then I will be heading straight back to the bottles of lush red.

    Hey Foxie thanks for the offer, I warn you I am listing badly to port lately though!!

    love

    Djinnie x

    Hi

    Hi I so hope the patches work for you and codeine to help with the cough.  Still praying for you every day.  Love  you

    Like Care

Discussion Boards