A Very Nasty Cancer

Footstomper

Timbomba said:

Thanks Stomper

I will give it all Ive got mate thats for sure....nothing left in the tank as they say. Where are you....UK?.....I'm in australia

Tim

 

Yanks can't tell the difference!

Im a expat from the Eastend of London living in the US. The most common question I get asked is "Are you Australian?" I'm not sure if I'm insulted or flattered.But anyone who floats pies in gravy is alright by me.

Timbomba

Footstomper said:

Yanks can't tell the difference!

Im a expat from the Eastend of London living in the US. The most common question I get asked is "Are you Australian?" I'm not sure if I'm insulted or flattered.But anyone who floats pies in gravy is alright by me.

Brits

Hi Stomper...I picked you as a Brit. because of the way you posted....terminology and things....cos I am too....from North London actually and 30 odd years in australia now. Mad football fan of course and so is the family...carry on with traditions!

Being a G4 and S4 we are in the same boat I guess. I know I have a real fight ahead of me. In my last appt. my urologist has referred me to an oncologist...2 weeks time...and at the time I mentioned IL2...he said he couldnt remember when that was last used at this hospital....it will be interesting to see what the oncol.says. I know you had a go at it...apparrently the success rate is low...up to 10 per cent. Im a fit guy...or was...would you recommend it.

Tim

 

Footstomper

Timbomba said:

Brits

Hi Stomper...I picked you as a Brit. because of the way you posted....terminology and things....cos I am too....from North London actually and 30 odd years in australia now. Mad football fan of course and so is the family...carry on with traditions!

Being a G4 and S4 we are in the same boat I guess. I know I have a real fight ahead of me. In my last appt. my urologist has referred me to an oncologist...2 weeks time...and at the time I mentioned IL2...he said he couldnt remember when that was last used at this hospital....it will be interesting to see what the oncol.says. I know you had a go at it...apparrently the success rate is low...up to 10 per cent. Im a fit guy...or was...would you recommend it.

Tim

 

Il2

There's no doubt it can be tough. I was told 25% chance of cure. 20% chance of death. I dont think its worthdescribing it blow by blow. My IL2 treatment went very well at first, halving the size of my tumours and destroying the smaller mets in my lungs. Then it went horribly wrong and I very nearly died.

It was worth trying. At the moment it is the only chance of a cure. Anyway, I'm a West Ham supporter, I'm used to bubbles burtsing and fortune hiding.

Timbomba

Footstomper said:

Il2

There's no doubt it can be tough. I was told 25% chance of cure. 20% chance of death. I dont think its worthdescribing it blow by blow. My IL2 treatment went very well at first, halving the size of my tumours and destroying the smaller mets in my lungs. Then it went horribly wrong and I very nearly died.

It was worth trying. At the moment it is the only chance of a cure. Anyway, I'm a West Ham supporter, I'm used to bubbles burtsing and fortune hiding.

IL2

Wow.....thats a fair punt you took there!.Youve got some gonads!.....As Ive said its a waiting game for me 2 x 5mm in lungs at the mo. and they will re scan in 2 half months now...then its decision time. Freaky thing is I feel the best I have in 2 years right now...getting stronger after the op.

West Ham was the first team I ever saw....Jimmy Greaves' debut from Spurs....I was about 8 or 9.....All my family are Spurs....Please dont hold that against me My old man was born in Dagenham....he's here in Oz too....battling cancer also...He is 88 tho' doing well after radiation.

all the best

Tim

Footstomper

Timbomba said:

IL2

Wow.....thats a fair punt you took there!.Youve got some gonads!.....As Ive said its a waiting game for me 2 x 5mm in lungs at the mo. and they will re scan in 2 half months now...then its decision time. Freaky thing is I feel the best I have in 2 years right now...getting stronger after the op.

West Ham was the first team I ever saw....Jimmy Greaves' debut from Spurs....I was about 8 or 9.....All my family are Spurs....Please dont hold that against me My old man was born in Dagenham....he's here in Oz too....battling cancer also...He is 88 tho' doing well after radiation.

all the best

Tim

Ok getting a bit weird!

My mum is also from Dagenham Village - as she called it before Henry Ford turned up. and would have been 90 this year. Had some relatives that moved to Oz. My dad was Spurs, but I forgave him so I guess I can forgive you. I remember Jimmy Greaves arriving, I was well chuffed but a bit Heartbroken thet Martin Peters moved in the opposite direction. First game I saw was Tottenham vs Fulham, when I was about 6. Alan Gilzene(sp) was playing. Jewish schoolmate took me

Timbomba

Footstomper said:

Ok getting a bit weird!

My mum is also from Dagenham Village - as she called it before Henry Ford turned up. and would have been 90 this year. Had some relatives that moved to Oz. My dad was Spurs, but I forgave him so I guess I can forgive you. I remember Jimmy Greaves arriving, I was well chuffed but a bit Heartbroken thet Martin Peters moved in the opposite direction. First game I saw was Tottenham vs Fulham, when I was about 6. Alan Gilzene(sp) was playing. Jewish schoolmate took me

.....Funny thing Jimmy

.....Funny thing Jimmy Greaves never forgave Spurs for selling him....hasnt been back to WHL since. I remember Peters going the other way and the 4 goals he scored when we beat Man Utd at Old Trafford.....I remember JG's debut for the Hammers very clearly, My Uncle took me.....

I appreciate your feedback and support thankyou again.

cheers Tim

 

Footstomper

Timbomba said:

.....Funny thing Jimmy

.....Funny thing Jimmy Greaves never forgave Spurs for selling him....hasnt been back to WHL since. I remember Peters going the other way and the 4 goals he scored when we beat Man Utd at Old Trafford.....I remember JG's debut for the Hammers very clearly, My Uncle took me.....

I appreciate your feedback and support thankyou again.

cheers Tim

 

Jimmy Greaves debut

The club doctor, who'd been with them since the sixties, met Jimmy on his debut and told him to avoid the manager. Why? said Jimmy. Because you stink of Vodka and he'll have your gut for garters. A real drinking culture at that time, Bobby Moore was no slouch in tthe beer department either

Footstomper

Timbomba said:

IL2

Wow.....thats a fair punt you took there!.Youve got some gonads!.....As Ive said its a waiting game for me 2 x 5mm in lungs at the mo. and they will re scan in 2 half months now...then its decision time. Freaky thing is I feel the best I have in 2 years right now...getting stronger after the op.

West Ham was the first team I ever saw....Jimmy Greaves' debut from Spurs....I was about 8 or 9.....All my family are Spurs....Please dont hold that against me My old man was born in Dagenham....he's here in Oz too....battling cancer also...He is 88 tho' doing well after radiation.

all the best

Tim

The Blitz

Here's a website that shows every bomb dropped on London between 1940-41. I was looking at it as a teaching resource today and thought that your dad might get a kick out it. I'm not sure it goes as far out as Dagenham tho'

http://bombsight.org/#15/51.5050/-0.0900

 

Timbomba

Footstomper said:

The Blitz

Here's a website that shows every bomb dropped on London between 1940-41. I was looking at it as a teaching resource today and thought that your dad might get a kick out it. I'm not sure it goes as far out as Dagenham tho'

http://bombsight.org/#15/51.5050/-0.0900

 

The Blitz

Hi Stomper

Thanks mate...I will show my old man and Mum this. They lost a rellie when a bomb hit the chippie down the High St at Walthamstow in ww2.

Stories of people going about their business, buzz bombs and the like.....keep calm and drink tea....was the Brits. way back then !

Tim

Guinavere

foxhd said:

Age has a lot to

do with it. I agree with Footstomper. But we may be older than many others. It does bother me alot when the 30 and 40 year olds join this site. Way to young for this curse. I'm 63 and entering my 5th year from diagnosis (plus the years before diagnosis that it just grew there.) I still do not want to die but I fully accept it. I say that everyone is going to die, I just know what from. The good news for the young'uns is that our treatment options are evolving quickly. Be your own advocate. Participate in your care.

I just turned 40 and have

I just turned 40 and have been dealing with ccRCC for 8 yrs, with 3 recurrences, the latest last year. I  have 3 kids still in middle and high school.  To me thats the hardest.  I ws told my outcome is bleak if the next tumor shows up in a place that is not surgically removable.   Every now and then I wonder if I will see my youngest one graduate high school in 4 years or see any of them marry.  These are my internal fears.  Will I see 50 or even 45.  A couple of times my Dr has made reference to "making plans".  I am a positive person but there are days I think of my future.   Cancer sucks!!  And I  was not suprised to find out I had it, my mom's whole immediate family has passed away, I didn't expect to find out at 32.

Jojo61

Guinavere said:

I just turned 40 and have

I just turned 40 and have been dealing with ccRCC for 8 yrs, with 3 recurrences, the latest last year. I  have 3 kids still in middle and high school.  To me thats the hardest.  I ws told my outcome is bleak if the next tumor shows up in a place that is not surgically removable.   Every now and then I wonder if I will see my youngest one graduate high school in 4 years or see any of them marry.  These are my internal fears.  Will I see 50 or even 45.  A couple of times my Dr has made reference to "making plans".  I am a positive person but there are days I think of my future.   Cancer sucks!!  And I  was not suprised to find out I had it, my mom's whole immediate family has passed away, I didn't expect to find out at 32.

Guinavere, I don't understand

Guinavere, I don't understand why you are not on any trials? I quickly read your bio and don't see any medication trials listed. There are some good ones out there! It might be time to also seek a second opinion. Please find an oncologist that specializes in kidney cancer!! 

Try not to let this discourage you....there are other options out there!!

Hugs,

Jojo

brea588

Footstomper said:

Grade 4

You and I both. It came as a bit of a shock. I cried a litle later on. David Bowies 'Moonage Daydream' set me off. If you dont know it, its about coping with impending destruction by believing in rescue from outer space. Then I was able to deal with it.

I'm going to die. 

But, then I always was.

And now i deal with what I have to deal with today.

And tomorrow i will deal with those problems which might present themselves.

I survived yesterday. I enjoyed yesterday

I will survive tomorrow

I reckon I'll carry on being alive tomorrow

 

 

 

Great outlook on life. Live

Great outlook on life. Live each day to its fullest. Thinking of you.

Guinavere

When the doctor says nasty

When the doctor says nasty cancer I think they are talking kidney cancer in general.  In 2007 when I was diagnosed stage2 grade3/4.  It is the grade mainly, kidney cancer is a cancer that will come back and it can go anywhere.   This is why it is a Nasty Cancer.

 

Guinavere

Jojo61 said:

Guinavere, I don't understand

Guinavere, I don't understand why you are not on any trials? I quickly read your bio and don't see any medication trials listed. There are some good ones out there! It might be time to also seek a second opinion. Please find an oncologist that specializes in kidney cancer!! 

Try not to let this discourage you....there are other options out there!!

Hugs,

Jojo

The benefits do not outweigh

The benefits do not outweigh the risks.  I have a great medical team, because of the cancer I am on meds because I no longer have adrenal glands.  The meds suppress the immune system, the trials that I would be on would boost my immune system but I would have to stop taking the adrenal meds, which can kill me.  Each surgery has removed the cancer therefore at the time I am cancer free, until it shows up again.