any one on her BRCA+ Triple Neg

cbusch
cbusch Member Posts: 1
edited December 2014 in Breast Cancer #1

Helo My name is Cheryl..I was DX May 13..My cancer is an agressive and unpredicable cancer..My answes vary from Dr to Dr.  My moher,grandmoher and so on up our magnificient family tree..My sister 3 years younger has tested pos..we are working on our children right now..the boys are just as imporant to be tested they can also get breast cancer, esophogeal cancer and colon cancer when it feels to rear its ugly head...I found the lump myself very high on my chest wall..they tried like H*** to get a mamogram of it but it was impossible..one thing I did notice was the winter before I was very tired and depressed more than normal during the middle of winter..but looking forward..found lump..had biopsy ..did my research and genetic testing...I was not suprised to find I had both..most with inherieted breast cancer are triple neg..did double mas..chemo 4 dense dose a/c then 4 taxol/carbo every 21 days..I have alot of pain with both tx mine is the highest dose for my weight and having so much pain and exhaustion..I am a nurse and work on a rehab hall in a step-down facility..(just because I am a nurse doesnt make me an ocologist nurse) WOW I have learned alot..on alot of meds..my adverse effecs are extensive but I refuse to lower the dose so they raised my steriod dexamethosone..some of my chemo is crossing the blood berrier of my brain causeing some nero problems Hopefully not permanant..My surgeon was surprised to find the I was stage 1a..most are DX stage 3 or higher..but I think in the back of my mind I have been waiting my turn..my mom was only 34..grandma 45 and I had 2 first cousins die in their early 30's..so I was constant checking myself..never took shower or back using wash cloth or loafa I used my hands full of soap..which I think saved my life so far..so in the first 3 years I have a 79% reoccurance in general so I am getting rid of much body surface as possible hysterectomy after my chemo is completed and alot of praying..I am 45 years old with children at home..I try to keep alot from them and I am fortunate I have my parents to help me on my bad days my son stays at his grandparents due to the fact I was traumatised with my moms TX I was 12..I dont want them to remember me this way..too much of a burden..I take claritan the weekend before chemo..and 2 weeks after//oxycotin 2 times a day for pain and percocer for break thru pain,,cymbalta for depression and to help keep neuropathy at bay..and a bunch of stool softners..lol..Good luck to every one..any one with a tip on handling metallic taste to everything,  depression, ( I forgot to mention I am a single mom) jsut living day to day so far..2 TX taxol left and I am scared to death that they will be the worst..I have so far been working full time..so I am thing about cuting my hours for the next 6 weeks till after my last TX..Thanks and God Bless everyone ...Fight. Fight,Fight2014-12-19Embarassed

Comments

  • button2
    button2 Member Posts: 421
    #2
    Sorry to hear about all your

    Sorry to hear about all your problems, but you seem to have the right spirit. You will feel better soon, I promise. Have a good Christmas, Anna

  • Skeezie
    Skeezie Member Posts: 586 Member
    #3
    Hi Cheryl,

    I too was dx triple neg, 2A Grade 3.  I had single mast. right side.  I finished my last chemo 5 YEARS AGO just a few days ago on Dec 11, 2009.  It can be done.  You are amazing and are certainly "fighting like a girl".  I'm so glad you found this site, there are some pretty terrific women (and men) here that gave me such good ideas and thoughts while on my journey.  Actually, we are always on this journey, but hopefully it gets easier.  I will be following your journey and will keep you and your family in my thoughts and prayers.  Taking some time off from work is a great idea.  You need to rest and recharge your batteries.

    Fight. Fight. Fight!

    Hugs,

    Judy :-)

  • cinnamonsmile
    cinnamonsmile Member Posts: 1,187 Member
    #4
    The only things I can help

    The only things I can help with regarding the metallic taste in the mouth is not eating food out of metal cans and use plastic silverware. Hope that little bit helps. Hopefully others know more and will chime in.

  • GlowMore
    GlowMore Member Posts: 789 Member
    #5
    IDC*Triple Neg 3A

    Twelve Years ago I was just finishing my chemo and about to start my Radiation........

    Still here girl so keep fighting..... 

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