Tongue/ neck cancer survivors?

KimberlyInPa.

Hello. I was diagnosed with late stage tongue and neck(3 infected nodes) only the left partial side of tongue was removed.

I then had 32 rads and 7 chemo. I had to get the port and stomach tube, which I have to recently rely on now much more cause my tongue has started to burn agsin. I had a drink called the green machine and was told over the phone that might be what it is.

my physical therapist said that a burning tongue is not a sign of cAnCer.  It has been since July 31st that I had my last radiation treatment. After months of throwing up and not bwing able to stop. Was hospitalized for several weeks in july and August. September I had major wonderful improvement. Got to the point where I could eat a cup of cereal of oats in a hour.

now my tongue burns so bad. I have my first pet scan next Friday. Was told to just wait. I am so scared and I have no real support system. Grew up with an abusive family, they can only seem to be there an hour at most. Wasn't very helpful but are behaving for the most part. My husband is emotionally distant.