Final Dx: Breast Mets to Pancreas

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Comments

  • GlowMore
    GlowMore Member Posts: 789 Member
    #22
    CC ??

    I forget.......you said you went to Ochner right?   I thought you lived on West Coast so how did you do with the traveling after being put thru all that terrible procedure and getting the blood poisoning in addition?

    Traveling today is scary ....

  • Lilly9
    Lilly9 Member Posts: 155
    #23
    GlowMore said:

    CC ??

    I forget.......you said you went to Ochner right?   I thought you lived on West Coast so how did you do with the traveling after being put thru all that terrible procedure and getting the blood poisoning in addition?

    Traveling today is scary ....

    Kick Cancer's Butt!     You

    Kick Cancer's Butt!     You go.    I was absolutely stunned when I read you have been battling this for 28 yrs.   You are one strong lady

  • andi44
    andi44 Member Posts: 196 Member
    #24
    CypressCynthia said:

    The pancreas is tricky,

    The pancreas is tricky, difficult to access and this is probably why the diagnosis is rare.  This article (2010) points out some of the difficulties involved.  I feel blessed because 1) no one suggested surgery - which would not have been indicated and 2) we were finally able to get a large enough sample to get real results. 

    Note, at the time of this article, there were 11 known cases.  I just had to make this an even dozen...lol.

    Even though I went to hell and back to get my biopsy, I would do it again because I agree with my onc: we need to biopsy all new mets and treat accordingly.  Each one of my mets has been a little different: my original tumor=ER+, PR+, her2 unknown; then rib biopsy=ER+, PR neg, Her2 neg; then my liver biopsy=ER neg, PR neg and Her2 +.  If we had assumed the liver was the same old ER+, her2 neg, I probably wouldn't be here.

    But I agree that getting these biopsies is often easier said than done.  Every day away from the hospital is making me stronger - just in time for another fight!

    you...

    The Sh*t your poor body has gone thru - I'm praying for you and all of the other lovely ladies on this board...You do appear to be a strong and positive person - and can battle another 'C' fight...you just shouldn't have too...Don't know why some folks have to go thru so much – I suppose it’s just the "Fault in our Stars" I guess...I loved that movie.

    Anyway,  I wish you luck in this fight - keep us updated...Andi

     

  • TechMama
    TechMama Member Posts: 28
    #25
    CypressCynthia said:

    The pancreas is tricky,

    The pancreas is tricky, difficult to access and this is probably why the diagnosis is rare.  This article (2010) points out some of the difficulties involved.  I feel blessed because 1) no one suggested surgery - which would not have been indicated and 2) we were finally able to get a large enough sample to get real results. 

    Note, at the time of this article, there were 11 known cases.  I just had to make this an even dozen...lol.

    Even though I went to hell and back to get my biopsy, I would do it again because I agree with my onc: we need to biopsy all new mets and treat accordingly.  Each one of my mets has been a little different: my original tumor=ER+, PR+, her2 unknown; then rib biopsy=ER+, PR neg, Her2 neg; then my liver biopsy=ER neg, PR neg and Her2 +.  If we had assumed the liver was the same old ER+, her2 neg, I probably wouldn't be here.

    But I agree that getting these biopsies is often easier said than done.  Every day away from the hospital is making me stronger - just in time for another fight!

    I am glad you have such a

    I am glad you have such a great oncologist!  You are definitely going to kick this one, too.  Good luck with your MUGA!

     

  • sbmly53
    sbmly53 Member Posts: 1,522
    #26
    Thrilled that you're thrilled

    you are amazing and I know you can do this. 

    sending big hugs and much love,

    Sue

  • WildernessGirl
    WildernessGirl Member Posts: 58 Member
    #27
    sbmly53 said:

    Thrilled that you're thrilled

    you are amazing and I know you can do this. 

    sending big hugs and much love,

    Sue

    Glad you are home CC!  you

    Glad you are home CC!  you are one of the strongest woman I have ever known.  If anyone can get this you can. 

  • jennytwist
    jennytwist Member Posts: 896
    #28
    WildernessGirl said:

    Glad you are home CC!  you

    Glad you are home CC!  you are one of the strongest woman I have ever known.  If anyone can get this you can. 

    YAY!

    Glad you finally have answers and a plan!

    Keeping you in all my prayers and sending gentle hugs and loving arms around you!  You are such a positive influence on all of us!

    much love,

    Jenny

  • LoveBabyJesus
    LoveBabyJesus Member Posts: 1,679 Member
    #29
    Sending all my love..

    ...your way.

    I just found out about this, and I am very sadden to learn about it. I will keep you in my prayers. I always remember how beautiful and happy you looked when your daughter got married.

    You are loved.

     

    Rebecca

     

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