New to group

Hi everyone, hope you are all well! I joined this group because I was just found out I have a 3.5 solid mass on my left kidney. I have been having what we thought was galbladder issues for over an year now. I am a 34 yr old stay at home mom with 3 young kids so I put off and put off till my husband made me go to dr. Thank goodness he did because of the CT scan found the mass on my kidney. They sent me to an urologist three days laters and he said he believed it to be cancer, 90% of these masses are cancer is what I believe he said. That whole appt I think I was in a daze, I think I am still in a daze. So now we are scheduled for a robotic assisted partial nephrectomy in Oct. He said it was not a situation that it had to be removed right this instance. To me it needed to removed like last week Smile But the dr seems to think my outlook is really really good. And I will see him for the next 5 yrs for blood work and ct scans and chest xrays. But I am so scared right now. Everyone says I am so blessed to found it so early that most don't find it till later. So if any of you could let me know how the surgery is and how you guys handled all of this. I am so overwhelmed right now. Just trying to take it one day at a time!!

Comments

  • icemantoo
    icemantoo Member Posts: 3,361 Member
    Welcome

    airebornewife,

     

    You are one lucky gal. It was caught early and you should make a full and complete recovery from the surgery alone.

     

    Being scared is normal. Nobody like to hear the C word. It sure scared me.

     

    The surgery is not fun, nor is the recovery. They are however both required for your cure. You will be fine.

     

    I presume the 3.5 mass is cm.

     

    Mine was a similar size 12 years ago at age 59. Faye across the street had her surgery about 19 years ago and she is 84 or so.

     

    Icemantoo

  • myoung790
    myoung790 Member Posts: 75
    Hi.  I just joined here too.

    Hi.  I just joined here too.  Similar story to you, except I have no symptoms.  They just found a 3.7cm mass in my right kidney.  I saw a Urologist last week who told me the same as you.  I was referred to a Kidney Oncologist as the person I saw said that he was not able to perform the surgery.  Anyway, I am a few weeks shy of 41, female, with twin daughters.  I hope all goes well for you.  

  • danbren2
    danbren2 Member Posts: 311
    We are here!

    Hi Airbornwife,

         So sorry you have to be here, but this is the place to be for strength, wisdom, answers, and the greatest moral support ever!  Before this is all over you will go through so many feelings that it may make your head spin.

         Hope everything goes great for you and all your tests will only be wonderful results.

                                                          Prayers for good health!

                                                           Brenda

  • GSRon
    GSRon Member Posts: 1,303 Member
    Welcome and good luck..!

    Welcome and good luck..!  Lucky it got found so early for sure.  You are likely in the 90%+ group that may never have any further issues.  But I hate to break it to you, but the real info will not happen until the Pathology report is done.  Once you have that info you should know a lot more.  However, if it is Cancer (there are more than one type of Kidney Cancer) depending on type, etc, follow up should happen forever, not just 5 years.  Being you are so young, if it is a low grade and stage then annual follow ups is likely what they will suggest.

    Ron

  • cjhawk38
    cjhawk38 Member Posts: 44
    Robotic Surgery

    I had robotic surgery in March of this year and my biggest issue was standing and walking I felt like something was pulling but if I held it it was ok.  I asked them if they had something that would provide the pressure I needed and they gave me a binder and that made all the difference in the world.  You will have 6 small incisions that look like gunshot wounds the will be 2 in, 2 out, 1 camera and a drain.  The only place I had stiches outside was where the drain was stiched in until I went home.  The incision were stiched inside and glued outside.  Some people have to do a prep the day before surgery but I didn't have to.  My surgery was on a Monday, I went home on Wednesday and on Sunday I went to an Alabama concert at SeaWorld.  Anything else you want to know about the surgery just ask and I'll answer if I can.

     

    Cindy

  • sblairc
    sblairc Member Posts: 585 Member
    Might have larger incision with Robotic

    WELCOME! And indeed you are blessed, small tumors are good!!!

    The only thing I'd add (for the benefit of any other people reading this site that might be waiting on Robotic surgery for a FULL neprectomy) is that if the tumor is large, you might have a large abdominal incision where they need to remove the actual tumor after the surgery is done.  My husband's tumor and kidney "came out like a football" according to his surgeon hence his larger incision after Robotic surgery was larger. 

    He went back to work part time initially, everyone's recovery time is really variable. I highly recommend taking it easy and not rushing it. 

  • airbornewife34
    airbornewife34 Member Posts: 4
    icemantoo said:

    Welcome

    airebornewife,

     

    You are one lucky gal. It was caught early and you should make a full and complete recovery from the surgery alone.

     

    Being scared is normal. Nobody like to hear the C word. It sure scared me.

     

    The surgery is not fun, nor is the recovery. They are however both required for your cure. You will be fine.

     

    I presume the 3.5 mass is cm.

     

    Mine was a similar size 12 years ago at age 59. Faye across the street had her surgery about 19 years ago and she is 84 or so.

     

    Icemantoo

    Sorry, yes it was 3.5cm

    Sorry, yes it was 3.5cm

  • airbornewife34
    airbornewife34 Member Posts: 4
    cjhawk38 said:

    Robotic Surgery

    I had robotic surgery in March of this year and my biggest issue was standing and walking I felt like something was pulling but if I held it it was ok.  I asked them if they had something that would provide the pressure I needed and they gave me a binder and that made all the difference in the world.  You will have 6 small incisions that look like gunshot wounds the will be 2 in, 2 out, 1 camera and a drain.  The only place I had stiches outside was where the drain was stiched in until I went home.  The incision were stiched inside and glued outside.  Some people have to do a prep the day before surgery but I didn't have to.  My surgery was on a Monday, I went home on Wednesday and on Sunday I went to an Alabama concert at SeaWorld.  Anything else you want to know about the surgery just ask and I'll answer if I can.

     

    Cindy

    I don't know anyone that has

    I don't know anyone that has been through any of this. So I had no one to tell me about their expencience with surgery. I was hoping (in my own mind) that since I have had three c sections and was up and moving around pretty good the next morning and off of pain meds except for motrin that I would breeze through this surgery. But it really helps to hear everyones stories

  • Different stages????

    How and when do I find out what stage I am in? I have seen on the board everyone talking about what stage ppl are in.

  • cjhawk38
    cjhawk38 Member Posts: 44

    Different stages????

    How and when do I find out what stage I am in? I have seen on the board everyone talking about what stage ppl are in.

    Stages

    Stage I: T1, N0, M0

    The tumor is 7 cm across or smaller and is only in the kidney (T1). There is no spread to lymph nodes (N0) or distant organs (M0).

    Stage II: T2, N0, M0

    The tumor is larger than 7 cm across but is still only in the kidney (T2). There is no spread to lymph nodes (N0) or distant organs (M0).

    Stage III: Either of the following:

    T3, N0, M0: The tumor is growing into a major vein (like the renal vein or the vena cava) or into tissue around the kidney, but it is not growing into the adrenal gland or beyond Gerota’s fascia (T3). There is no spread to lymph nodes (N0) or distant organs (M0).

    T1 to T3, N1, M0: The main tumor can be any size and may be outside the kidney, but it has not spread beyond Gerota’s fascia. The cancer has spread to nearby lymph nodes (N1) but has not spread to distant lymph nodes or other organs (M0).

    Stage IV: Either of the following:

    T4, any N, M0: The main tumor is growing beyond Gerota’s fascia and may be growing into the adrenal gland on top of the kidney (T4). It may or may not have spread to nearby lymph nodes (any N). It has not spread to distant lymph nodes or other organs (M0).

    Any T, Any N, M1: The main tumor can be any size and may have grown outside the kidney (any T). It may or may not have spread to nearby lymph nodes (any N). It has spread to distant lymph nodes and/or other organs (M1).

  • sblairc
    sblairc Member Posts: 585 Member

    Different stages????

    How and when do I find out what stage I am in? I have seen on the board everyone talking about what stage ppl are in.

    Nothing is certain until post surgery pathology

    After surgery, your tumor will be put under a micro-scope. It will be given a grade (how aggressive or non-aggressive the cancer is or essentially how fast it is growing and/or will potentially come back) and a stage (how advanced or essentially how "bad" the cancer is). Size of tumor, location of tumor essentially determine stage. That ans if the cancer is anywhere else in your body (metastatic). You will be also given additional information in your pathology report. You won't know for sure until everything is measured, stained, weighed, etc in the lab. A CT scan is not always right. My husband's tumor was smaller than the CT scan indicated. 

     

    Please add to my post, anyone, if I forgot something. 

  • Vivaldi
    Vivaldi Member Posts: 27
    Wait for it

    i wanted to add something because like you I was told 90% that it was cancer.  My tumour was around the same size as yours.  I waited four months for surgery and believe me, thinking you have cancer is not an easy thing.  Most of the posters here have had kidney cancer.  But there is still the other group, the ten percent who have a tumour that is not cancer.  I was in that group.  So we are out there, just not posting on the board.  Until the pathology comes in, the possibility is still there for a benign tumour such as an oncocytoma.  I had an open procedure and while it was not fun, the people here will support you all the way.  I still look in occasionally to see how everyone is doing, it is such an awesome group of people.  I hope for you that you find yourself in the smaller percentage and no matter how it turns out, you will get through it with the support of others.  Best of luck with your surgery and your recovery. Be good to yourself and rest.

  • RMolinaro414
    RMolinaro414 Member Posts: 43
    Similar situation

    I just joined this group tonight. I'm currnetly recovering from a full radical  nephrectomy of my right kindey. I just had my daughter in July of this year followed by my appendix removal two weeks later (where they ACCIDENTLY found my tumor). If you had no complications recovering from your C-Section you should be ok. I am two weeks and 1 post - op and I feel I'm getting back to my normal self. I wont' lie the first week is rough. I couldn't sleep. The pain was intense even with meds and I was really in a ton of discomfort. My pathalogy report came back stating the cancer was fully contained in the kidney and I should be just fine. I need to follow - up every six months. It's scary especailly being so young with a 3 yr and a newborn, but I'm here if you ever want to chat.

  • Djinnie
    Djinnie Member Posts: 945
    We are here for you!

    Hi Airborne,

    So sorry to hear your news, we all know how you are feeling right now. I know how surreal it seems, it's just so difficult to get your head around. The period up to the operation can be very nerve wracking because you just want this thing to be gone quick smart. You may not feel blessed right now, but because often kidney cancer is not discovered until it's too late, you surely are. Once the operation is overwith it is very likely you can look forward to a long and happy future. Obviously the grade will factor in the outcome, but even with a higher grade there are many people who do not have a reoccurence.

    I had a partial robotic nephrectomy last year. I had quite a bit of pain initially, more so than my C Section, but having said that I had a lot of scar tissue from previous ops which complicated things. There have been many people on here who have seemingly breezed through. Many things will factor in it, such as age fitness etc. It is also always wise to keep your body hydrated in the period up to the op, it is easier on the tissue and muscle. After the op sleeping in a recliner is helpful, this causes less strain as laying flat will be difficult for awhile. Getting up out of chairs will be hard and you will probably be doing the soft shoe shuffle for a bit. Once you feel up to it start with gentle walk and build up gradually. Take extra care not to strain yourself in any way or you risk a hernia. Also keep Senna or Prune Juice available.

    You are doing the right thing in taking things a day at a time, that is all you can do. When it comes to the op you will find the strength to deal with it, and once it's over with you will feel more positive about things. You can definitely get through this, stay strong, we are all here to support you whenever you need it:)

     

    Djinnie x