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tanstaafl
tanstaafl CSN Member Posts: 1,312 Member
edited August 2014 in Colorectal Cancer #1

My wife had a PET with high resolution, triple contrast CT scan done, it's 53 months since diagnosis. We're hunting for a met. Four radiologists' signatures, and then an outside reread, can't find anything.  "Our" radiologist mentioned, that (52 mo ago) he checked with the oncologist at a well known cancer center, who said "24 months, tops".  So, "good news".  

Reality is that we've been fighting sharp but limited elevations of biomarkers and coagulation for over a year, with some successes toward getting the evil genie back into the bottle, several times more slowly.  CEA, CA199 and LDH jump after treatment reductions of critical adjuvants. Every time those markers jump and continue to rise, we have to jump sideways, higher.  

CEA and LDH are now back to earlier baselines but CA19-9 is still hung up, at over 40, almost double the 1.5 yr of a good, steady baseline CA199 that followed 2nd surgery, over three years ago.  Her blood numbers are otherwise pretty normal at this time but somewhat eroded with some instabilities. The erosion and slow changes suggest we still have to improve our game to mantain her low residue cancer status, with a high quality of life, to stay ahead of things and not fall off the boat.    Our experiments continue, slowly.  

Our scientist daughter gets married next month to the guy of her dreams (skier, 6 ft 2, eyes of ...).  They started dating the year after her teen, first gene transfers...he has his own proposal.  Thrilled mom, to sail this far beyond the sunset.

 

 

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Comments

  • Easyflip
    Easyflip CSN Member Posts: 588 Member
    #2
    Congratulations!

    4 plus years out is great, plus your wife gets to see her daughter getting married! Count your blessings, it's nice to see someone beating this disease.

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  • Nana b
    Nana b CSN Member Posts: 3,030 Member
    #3
    Easyflip said:

    Congratulations!

    4 plus years out is great, plus your wife gets to see her daughter getting married! Count your blessings, it's nice to see someone beating this disease.

    Great to hear!  Happy dance. 

    Great to hear!  Happy dance. 

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  • Cathleen Mary
    Cathleen Mary CSN Member Posts: 827 Member
    #4
    Easyflip said:

    Congratulations!

    4 plus years out is great, plus your wife gets to see her daughter getting married! Count your blessings, it's nice to see someone beating this disease.

    4 plus years is terrific

    4 plus years is terrific news!  Congrats...you have all done a lot of hard work to get there. Wishing many more years. Thrilled your daughter will have her Mom at her wedding. Thanks for lifting our spirits.

    CM

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  • Annabelle41415
    Annabelle41415 CSN Member Posts: 6,744 Member
    #5
    Wonderful

    That is wonderful news.  You have been through so much with wife and thank you for sharing your journey with us.  That is awesome news along with daughter :)  Sounds like you have good news surrounding you.

    Kim

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  • Yolllmbs
    Yolllmbs CSN Member Posts: 360 Member
    #6
    So heartwarming

    For your family. Great news!

     

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  • hippiechicks
    hippiechicks CSN Member Posts: 509 Member
    #7
    Congrats! That is simply

    Congrats! That is simply awesome to hear! 

    Enjoying life and beating this certainly deserves the happy dance! 

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  • tanstaafl
    tanstaafl CSN Member Posts: 1,312 Member
    #8
    thx

    Thank you so much, Kim, Sue, EZ, CM, Raquel, hippiechicks, Yolllmbs.  It our great hope that our experience is useful to many as we all try to find a better path through this dreck.  

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  • Trubrit
    Trubrit CSN Member Posts: 5,808 Member
    #9
    Run, run, run

    With our Cancer, we grasp every good result and run with it. Run, and enjoy the life that we have been given. 

    Enjoy every breath, every moment, every opportunity to love and live. 

    I am so happy for your wife's clear scan. 

    Bless you both, as you enjoy this wonderful news. 

    SUE/TRUBRIT

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