sad and depressed.

Laura76

NewDay said:

Question about rare

Good morning Laura,

I'm guessing that the doctor's comment about your case being rare is probably because you are young.  It normally occurs at an older age.   How old are you?

Did they only remove the one lymph node?

When do you see the doctor for a follow-up?  Ask them for a copy of the pathology report when you go and then let us know the details of stage and grade and type (like clear cell or papillary or something).  It gives us a better picture of what you are facing.  It sounds like they must have the pathology report since they say that they have confirmed that it is cancer.

You are still in shock from all of this so just accept that you are going to be going through a lot of emotions for a while.  Then, things will begin to settle down.  You may find that you need medication to help you through the emotions for a little while.

I'm glad to hear that your doctor wants to take an aggressive approach.

Where are you being treated and is your doctor an oncologist?  I believe that you need to see an RCC specialist.

I am 38 years old
And he has

I am 38 years old

And he has said I am the youngest he's seen for this

He is an urologist specialist.

Only one lymph node was removed amd the right kidney.

 

He said it was contained all in the kidney.

Pathology report came in on Tuesday. I didn't know what to ask him.

 

He acted as if the operation was successful, and hopeful but then he seemed to want to take an aggressive preventive approach... as he did say. 

 

 

 

I'm going to see him on the 28th of Aug this month 

 

I'll ask him more questions and definitely get a Copy of all reports.
He's in Phoenix az banner.health, Shane Daley.

Laura76

Laura76 said:

I am 38 years old
And he has

I am 38 years old

And he has said I am the youngest he's seen for this

He is an urologist specialist.

Only one lymph node was removed amd the right kidney.

 

He said it was contained all in the kidney.

Pathology report came in on Tuesday. I didn't know what to ask him.

 

He acted as if the operation was successful, and hopeful but then he seemed to want to take an aggressive preventive approach... as he did say. 

 

 

 

I'm going to see him on the 28th of Aug this month 

 

I'll ask him more questions and definitely get a Copy of all reports.
He's in Phoenix az banner.health, Shane Daley.

I just called the

I just called the office.

 

It was mrcc 

1 Lymph node

Clear cell grade 3

 

she was talking fast so that's as good

 

 as I Got but I will get a copy of the pathology report on Thursday

Laura76

icemantoo said:

Ditto

Same thoughts as Fox. That first week can be hell. Things will get better, day by day, week by week.

Icemantoo

So I have been doing allot of

So I have been doing allot of reading......

 

It said the survival rate is 5 years for

mrcc grade 3

Clear cell carcinoma

What does that mean?

I'm going to die in five years??

 

 

Laura76

twinthings said:

theme song

Hi Laura, I hope you are feeling better today. 

It's been said before but, I'll say it again, your fear and anxiety make you normal.  Everyone of us gets it, understands it and experiences it.  As Brenda so eloquently put it, the "why me syndrome" got me too.  It's easy to let your mind go there.  Actually, I think it just goes, I don't think we let it, at least, not initially.  Personally speaking, I could have wallered in self pity for the rest of my days and not gave a damn.  I had cancer and people with cancer die.  Mom, dad, grandparents, uncles, so really, what did it matter if I continued to waller if I was just going to die anyway?  Yeah, I'd say, like you, I was pretty sad, lonely and scared.  That was until I came here.  And for the first time ever, I saw people living with cancer.  I met people like Brenda who, despite her cancer, is one of the most graceful, positive, inspirational people ever.   She, along with so many others have demonstrated what it really means to be a fighter and a survivor.  It didn't take me long to realize, I will die someday, but not likely from RCC.  That said, my cancer was physically removed from my body but the doctors could not remove it from my mind.   So, I still feel like I'm living with cancer even tho technically, I'm not.  Like Fox said, it's like a song you just can't get out of your head.  I can tune it out at times but it never ever silences...it's always playing in the background.  The trick is to not let it become your theme song.  

Anyway, please don't feel so isolated and alone.  The people on this board are an incredible source of support, full of wisdom and always ready to lend an ear.  I don't know if many of us have people in our real world that truly understands what we go thru, I know I don't.  The people here have most definitely saved my sanity and overall emotional well being.  Allow us to do the same for you.  In time, you will pay it forward and be someone else's source of strength. 

Keep your chin up girl.  We are all here for ya.

Sindy

 

Thank you.

Thank you.

cjhawk38

Laura76 said:

So I have been doing allot of

So I have been doing allot of reading......

 

It said the survival rate is 5 years for

mrcc grade 3

Clear cell carcinoma

What does that mean?

I'm going to die in five years??

 

 

5 years

It says 5 years for everyone.  Your doctor told you he got it all and they don't like to say things they can't backup.  You will have to have scans for the next 5 years to followup

 

Laura76

Feeling much much better, and

Feeling much much better, and no not with the help of pills

 

Maybe it was apart of the process

 

I did ask the Lord to take away the fear.

 

Still have to do my dye ct scans this Thursday

 

But surprisingly I'm not worried.  )