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Dysautonomia

Noellesmom
Noellesmom CSN Member Posts: 1,859 Member
in Head and Neck Cancer #1

Sitting here in Jim's hospital room as he begins to fall asleep.  We've been here 3 days.  With symptoms including dizziness, wildly erratic blood pressure, tachycardia, night sweats and fever of unknown origin the diagnosis, after many tests, is dysautonomia.  The doctors suspect this may be a late effect of his cisplatin chemotherapy.

Not much can be done so we'll incorporate this as part of his new normal.

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Comments

  • phrannie51
    phrannie51 CSN Member Posts: 4,716
    #2
    Oh honey.....

    I'm so sorry you two are going through this......I had to look Dysautonomia up, and still don't understand exactly what it is.  This surely IS a late side effect, and a new one on me.

    Hoping that the severity lessens, do they say it does that? 

    p

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  • Noellesmom
    Noellesmom CSN Member Posts: 1,859 Member
    #3
    phrannie51 said:

    Oh honey.....

    I'm so sorry you two are going through this......I had to look Dysautonomia up, and still don't understand exactly what it is.  This surely IS a late side effect, and a new one on me.

    Hoping that the severity lessens, do they say it does that? 

    p

    cure magazine

    Had an article on this recently.  As more people survive cancer side effects of the treatments are arising and must be dealt with and so, we are.

    Jim is a cancer success story and we will cope with these issues, too.

    Thank you, phrannie.  We are tired but we are together and kicking it.

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  • debbiejeanne
    debbiejeanne CSN Member Posts: 3,102 Member
    #4
    i'm sorry to hear this.  its

    i'm sorry to hear this.  its just sad all the stuff we have to endure to survive cancer.  keeping you both in my thots and prayers.

    God bless you,

    dj

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  • KTeacher
    KTeacher CSN Member Posts: 1,103 Member
    #5
    So sorry

    So sorry for what you are going through but thank you for sharing.  I also had to look it up and will also check Cure magazine article.  This is something new to me but it sounds so much like what I went through in the hospital after my eye was removed, I thought it was just my brain getting used to new signals.

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  • rocketrodney
    rocketrodney CSN Member Posts: 1
    #6
    dysautomina

    IT seems strange that this problem isn't talked about more as it seems to be much more common than the dogtors like to admit.  I hope it is temporary like my neighbour who fell from the low blood pressure and was unconscious for 4 hours.  I broke my tooth and put it through my lip, if it's not temporary you may well be put in a wheel chair,  end of life, scenario.o

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