Port placement Wed. Infection Thurs night!!!
I posted and asked a few days ago if anyone had feelings on whether it was better to go with IR ( interventional radiology) and have the procedure done under twilight or wait for the surgeon in an OR under general ... well I picked IR ... surgery wasn't unplesant and not too bad for sedation either. Now I did have a small issue of passing out after I was released and a trip via rapid resonse to the ER.... I was feeling fine and had eaten and had a drink they released me and i took the wheelchair ride to wait for my sis to get the car. As I waited my BP dropped to 85/58 and I got sweaty neuseous etc etc and about passed out so to the ER I went. They called it a vaso-vagal reaction. after thye released me 4 hours later I went home with instructions to leave the Tegaderm on for 14 hours then shower since the glue and steri strips below would stay on til they came off on their opwn.. The MINUTE I took the Tegaderm off I KNEW I had a bad infection,and that I got it during surgery. Cellulitis . So I went to a closer ( same hospital group ) interventional radiation and they prescribed oral meds. Took them and within an HOUR OR TWO I could see the infection making a red line along a vein !!!!( PHLEBITIS!!) .... so I went to the ER!!! They confirmed yes, bad scene---- skin infection cellulitis and phelbitits too, and started me on IV vancomycin..... and minutes later I had RED MAN SYNDROME... so they stopped the vanco and we waited and switched to CINDAMYCIN..... I have been admitted to the hospital and in since FRIDAY with IV meds... awaiting culture results..... so not sure I recommend IR ... stick with surgeon in OR 
Now they are talking about removing the port and AGAIN a chemo delay ... I am getting worried
Comments
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Hope All Goes Well With You
So sorry that your surgery for having a port put in went badly. It seems that everything that you went through after having it put in you are lucky to still be alive. I know you do not like being in the hospital but this is where you really need to be to get better. I hope you do not have a long stay and continue to get better and also get things straightened up for you soon. Hugs going your way, Donna
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Heavens sake what a carry on.
Heavens sake what a carry on. no probs with mine. Sorry you had all that trauma. I have heard of only a few ladies having problems over the last four years but you top all of their stories. Let's hope everything clears up and you can get the chemo out the way.
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Port Placement
Sorry you didn't take the advice most of us gave you for using the hospital for port placement.............but thank you for sharing your experience so others can see how things can go wrong. My port placement was scary...since it truly is major surgery....but it went ok and I never had a problem with anything whatsoever. My port remained in my upper right chest for about 5 years and then I requested to have it removed. The removal surgery was done in the hospital also and about the only problem I had that time was the little girl who did the IV to start with had a problem finding my vein. I wanted the port out because I felt that psychologically it was better for me not to anticipate having chemo again. My Oncologist approved my request but he did say..."Well, if we have to do chemo again we can find another location for a port". oh me ..... HOWEVER..... I don't think that way and I do try to believe it will not come back...even though they will not release me and I still have to see the Oncologist every 6 months. I'm really so very sorry for what you have gone thru and I hope it will get better for you. Hang in there.
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Scary shittttttt -- no one realizes that health andGlowMore said:Port Placement
Sorry you didn't take the advice most of us gave you for using the hospital for port placement.............but thank you for sharing your experience so others can see how things can go wrong. My port placement was scary...since it truly is major surgery....but it went ok and I never had a problem with anything whatsoever. My port remained in my upper right chest for about 5 years and then I requested to have it removed. The removal surgery was done in the hospital also and about the only problem I had that time was the little girl who did the IV to start with had a problem finding my vein. I wanted the port out because I felt that psychologically it was better for me not to anticipate having chemo again. My Oncologist approved my request but he did say..."Well, if we have to do chemo again we can find another location for a port". oh me ..... HOWEVER..... I don't think that way and I do try to believe it will not come back...even though they will not release me and I still have to see the Oncologist every 6 months. I'm really so very sorry for what you have gone thru and I hope it will get better for you. Hang in there.
horrific scene that was taking place, except for you??? I truly and hoping that this is a one time issue - and not a preview of what is to come.
Glad you had your eye on the game --
Strength, Courage and HOPE for a Cure.
Vicki Sam
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Glow More
I did use the hospital and I did take your advice ... the hospital is where interventional radiology is ,as is the OR right next door .... both are operating suites inside the main hospital... what do you mean GLO MORE???
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CLARIFICATION - I WAS in the HOSPITAL for the port placement GLO
I think the one poster replying ( glo more) does not know that both IR and OR are in the hospital ...... at GEISINGER DANVILLE PA a MAGNET STATUS INSTITUTION..... ..........Interventional Radiology IS in the hospital , its an OPERATING SUITE WITH FLUROSCOPES, SIMILAR TO THE the GENERAL SURGERY oPERATING ROOMS RIGHT NEXT DOOR. tHE DIFFERENCE IS ONE IS GENERAL ANESTHESIA FOR GENERAL SURGERY when YOU ARE UNDER ,THE OTHER IS TWILIGHT, so FOR IR YOU ARE AWAKE ..... I think she thinks I had this placement done somewhere flighty... some garage?? and had chastized me for not taking the sage advice advice of others ???? ... well no ma'am... I took your advice and I am saying that in a MAGNET FACILITY ,in DANVILLE IN A HOSPITAL with a TERRIFIC reputation, a surgeon or worker slipped up in sterile protocol or maybe a tech cleaning instruments, and now I am in the hospital again ..... I did not have some dude in a garage slap it in, although I MUST SAY THAT EVERY TIME since 19997 when I had a surgery in outpatirnt facilitity for OTHER issues I came out clean and clear ... I had NO INFEctions AND BETTER RESULTS.... but I asked and took advice and SO I WENT TO THE HOSPITAL AS ADVISED AND GOT A NASTY RAGING INFECTION WHERE MY PORT MAY HAVE TO COME OUT and chemo is delayed and I may need Iv antibiotics for weeks... SO i DONT APPRECIATE YOU SAYING WHAT YOU DID ABOUT NOT TAKING YOUR ADVICE ... I certainly did take it , but next time I may just not, so I can avoid this skin and BLOOD INFECTION PLAGUE .....that hospitals seem to be crawling with ... yes I sound angry ... I feel like she was rude and well frankly had no idea what she's talking about ... but felt the need to act like I was the bad guy here.... NOPE the HOSPITAL WAS...
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Wow!!!mq316mq316 said:CLARIFICATION - I WAS in the HOSPITAL for the port placement GLO
I think the one poster replying ( glo more) does not know that both IR and OR are in the hospital ...... at GEISINGER DANVILLE PA a MAGNET STATUS INSTITUTION..... ..........Interventional Radiology IS in the hospital , its an OPERATING SUITE WITH FLUROSCOPES, SIMILAR TO THE the GENERAL SURGERY oPERATING ROOMS RIGHT NEXT DOOR. tHE DIFFERENCE IS ONE IS GENERAL ANESTHESIA FOR GENERAL SURGERY when YOU ARE UNDER ,THE OTHER IS TWILIGHT, so FOR IR YOU ARE AWAKE ..... I think she thinks I had this placement done somewhere flighty... some garage?? and had chastized me for not taking the sage advice advice of others ???? ... well no ma'am... I took your advice and I am saying that in a MAGNET FACILITY ,in DANVILLE IN A HOSPITAL with a TERRIFIC reputation, a surgeon or worker slipped up in sterile protocol or maybe a tech cleaning instruments, and now I am in the hospital again ..... I did not have some dude in a garage slap it in, although I MUST SAY THAT EVERY TIME since 19997 when I had a surgery in outpatirnt facilitity for OTHER issues I came out clean and clear ... I had NO INFEctions AND BETTER RESULTS.... but I asked and took advice and SO I WENT TO THE HOSPITAL AS ADVISED AND GOT A NASTY RAGING INFECTION WHERE MY PORT MAY HAVE TO COME OUT and chemo is delayed and I may need Iv antibiotics for weeks... SO i DONT APPRECIATE YOU SAYING WHAT YOU DID ABOUT NOT TAKING YOUR ADVICE ... I certainly did take it , but next time I may just not, so I can avoid this skin and BLOOD INFECTION PLAGUE .....that hospitals seem to be crawling with ... yes I sound angry ... I feel like she was rude and well frankly had no idea what she's talking about ... but felt the need to act like I was the bad guy here.... NOPE the HOSPITAL WAS...
That's an amazing story. I'm glad you survived to tell it.
I hope you are recovering comfortably and the rest of your treatment is uneventful.
Sending you a big hug.
xo
Victoria
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Sorry to hear you have had such a hard time
with the port. Does seem as though something wasn't sterile. Hopefully they won't have to redo the port. Wish you the best on a speedy recovery. I didn't realize the difference in the rooms either where you had it done. Just hope from here forward you have an easier time.
Hugs,
Carol
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Ports
1. Make sure the doctor who puts in your port is extremely experienced. Make sure your oncologist has the time for you and not just is "nice to you"
2. If you have a temperature, seek immediate medical attention
3. Make sure you do due dilligence and check everything that is being done to you and cross check it.
I almost lost my son this weekend. He is 39 and has colorectal cancer. His oncologist never "tested" his port. After leaking, we had it tested by another doctor to find the port failed the test!!
Not only that, but my son was running a temperature. We went to the hospital per the new oncologist's instructions.
At the hospital, he was treated for an infection due to radiation. WRONG!!! His temperature spiked to 106+, fever, then chills then fever then chills. He was getting antibiotics but was getting worse. The antibiotic that was prescribed for him should never have been given to him. I googled it and showed it to the hospital staff!!!!!
One of my clients is an infectious disease specialist. I contacted him with my son's information. He told me what tests to demand. He also said the port was the problem and it needed to be removed. Long story short after much pressure from me the proper tests were done, he had emergency surgery to remove the port, and he is now on the proper antibiotics based on the type of bacteria per my client doctor.
His temperature is now normal. The infectious disease specialist saved my son's life.
Check and recheck everything. Google it!! Most things are on the internet.
Doctors are only human they make mistakes. Unfortunately, when a doctor makes a mistake it can be fatal.
More importantly, if the oncologist's office is too crowded.........it is a signal. There are just so many minutes in a day. Divide them by a large number of patients and you get a number that is the result of how much care you actually get from your oncologist and the staff.
I am forever a changed person relative to medical attention.
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port
First, let me say how sorry I am you have had to endure all this... as if cancer alone isn't scary enough..............I had my port placed last Thursday by the same surgeon who performed my bi-lateral mastectomy the beginning of June. I did not have a choice (that I a aware of) but would probably have chosen the OR option because I have such faith in my surgeon. I am scheduled for my first chemo tomorrow (wed. July 30) yet still have steri strips on. I know what you mean about worrying about getting chemo underway. My diagnostic process began on April 3, and got my diagnose on April 28. Surgery was on June 2 and even though I had to fully heal from the surgery before starting chemo, it seems like it has taken forever for this first round to begin. Maybe you can have the port replaced fairly quickly and get chemo underway. Are the resulting condicitions going to affect your treatment? I hope you will be back on track soon. thoughts and prayers sent your way.
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I am just so sorry that you
I am just so sorry that you are having to endure all of this on top of everything else. Try and stay well hydrated on the clindamycin and report any diarrhea. I know you want to get on with chemo and this just stinks! Sending cyber hugs and prayers. Please keep us posted.
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Sorrymq316mq316 said:CLARIFICATION - I WAS in the HOSPITAL for the port placement GLO
I think the one poster replying ( glo more) does not know that both IR and OR are in the hospital ...... at GEISINGER DANVILLE PA a MAGNET STATUS INSTITUTION..... ..........Interventional Radiology IS in the hospital , its an OPERATING SUITE WITH FLUROSCOPES, SIMILAR TO THE the GENERAL SURGERY oPERATING ROOMS RIGHT NEXT DOOR. tHE DIFFERENCE IS ONE IS GENERAL ANESTHESIA FOR GENERAL SURGERY when YOU ARE UNDER ,THE OTHER IS TWILIGHT, so FOR IR YOU ARE AWAKE ..... I think she thinks I had this placement done somewhere flighty... some garage?? and had chastized me for not taking the sage advice advice of others ???? ... well no ma'am... I took your advice and I am saying that in a MAGNET FACILITY ,in DANVILLE IN A HOSPITAL with a TERRIFIC reputation, a surgeon or worker slipped up in sterile protocol or maybe a tech cleaning instruments, and now I am in the hospital again ..... I did not have some dude in a garage slap it in, although I MUST SAY THAT EVERY TIME since 19997 when I had a surgery in outpatirnt facilitity for OTHER issues I came out clean and clear ... I had NO INFEctions AND BETTER RESULTS.... but I asked and took advice and SO I WENT TO THE HOSPITAL AS ADVISED AND GOT A NASTY RAGING INFECTION WHERE MY PORT MAY HAVE TO COME OUT and chemo is delayed and I may need Iv antibiotics for weeks... SO i DONT APPRECIATE YOU SAYING WHAT YOU DID ABOUT NOT TAKING YOUR ADVICE ... I certainly did take it , but next time I may just not, so I can avoid this skin and BLOOD INFECTION PLAGUE .....that hospitals seem to be crawling with ... yes I sound angry ... I feel like she was rude and well frankly had no idea what she's talking about ... but felt the need to act like I was the bad guy here.... NOPE the HOSPITAL WAS...
Hey Mq.........so sorry you misunderstood me. Did not mean to sound rude....... so sorry you had that bad infection.....don't blame you for being angry. Sometimes we need to get angry and Vent like Crazy.....
You are fighting for your life....get angry all you want !!! We type stuff quickly here and sometimes it comes off wrong......PLEASE FORGIVE ME.......... I've been there and done that and didn't have the infection......but had a few other things later. HANG IN THERE MQ.....
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I am sorry for whatever youmomma27 said:Ports
1. Make sure the doctor who puts in your port is extremely experienced. Make sure your oncologist has the time for you and not just is "nice to you"
2. If you have a temperature, seek immediate medical attention
3. Make sure you do due dilligence and check everything that is being done to you and cross check it.
I almost lost my son this weekend. He is 39 and has colorectal cancer. His oncologist never "tested" his port. After leaking, we had it tested by another doctor to find the port failed the test!!
Not only that, but my son was running a temperature. We went to the hospital per the new oncologist's instructions.
At the hospital, he was treated for an infection due to radiation. WRONG!!! His temperature spiked to 106+, fever, then chills then fever then chills. He was getting antibiotics but was getting worse. The antibiotic that was prescribed for him should never have been given to him. I googled it and showed it to the hospital staff!!!!!
One of my clients is an infectious disease specialist. I contacted him with my son's information. He told me what tests to demand. He also said the port was the problem and it needed to be removed. Long story short after much pressure from me the proper tests were done, he had emergency surgery to remove the port, and he is now on the proper antibiotics based on the type of bacteria per my client doctor.
His temperature is now normal. The infectious disease specialist saved my son's life.
Check and recheck everything. Google it!! Most things are on the internet.
Doctors are only human they make mistakes. Unfortunately, when a doctor makes a mistake it can be fatal.
More importantly, if the oncologist's office is too crowded.........it is a signal. There are just so many minutes in a day. Divide them by a large number of patients and you get a number that is the result of how much care you actually get from your oncologist and the staff.
I am forever a changed person relative to medical attention.
I am sorry for whatever you Son may have experienced. BUT I do wonder why you decided/chose to post in the BC Section first post ever before posting in the Colorectal Section?
Removing a port is a simple procedure, usually done in the Drs office. There are many who are already scared, they don't need 'this' added. My port has been in 4 1/2 years with no issues.
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Port all the way
Had port put in and have not had no trouble at all. Go every 3 months to ONC'S appointment to have lab work done and then I have it flushed at office. Had bi-laterial masectomy without reconstruction. I call it my liitle BOOB. Just a little bit higher on chest. LOL.
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Mq316, how are you doing?CypressCynthia said:I am just so sorry that you
I am just so sorry that you are having to endure all of this on top of everything else. Try and stay well hydrated on the clindamycin and report any diarrhea. I know you want to get on with chemo and this just stinks! Sending cyber hugs and prayers. Please keep us posted.
Mq316, how are you doing? Thinking of you and hoping your infection is getting better.
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