My Brave Husband

Options
Sandi1
Sandi1 Member Posts: 277

Even though the doctor told us yesterday that is nothing more for them to do for my husband, he told me he is not giving up.  After my husband insisting that he would like to be put back on chemo and her explaining to him that since he is this weak any chemo would just kill him faster, he told me he is not going to give up.  He is a fighter and truly the bravest man i have ever known. she said, i believe you are dying, nothing is going to help you - it will just make you more miserable. She said, it's time to be at home and be comfortable and spend time with your family.  I cried all the way home from the doctors while driving, my husband was so upset that i was upset that i had to pull myself together for his sake.  I have decided, that if i have to cry i will do it when and where he can't see or hear me. I don't think it's fair to make him feel guilty. he keeps telling me that he is sorry that he is dying and that he got sick, and i keep telling him that it's not his fault and that we are all dying, just some go faster than others.  Right now, i am trying to make things as close to normal as possible, as he made a comment to me the other day that he feels as though he is losing control of the situation.  I am trying to include him in any decisions that need to be made so he doesn't feel as though he has no control. Ironically we just had our Wills redone the other day and they became signed and legal the day before we visited the doctor; i told him just because we have our Wills redone doesn't mean you can just throw your hands up in the air and quit. He said, i'm not planning on doing that, i'm fighting right until the end - little did we know that we would be told the end is coming.  It is hard to be hopeful that their could be a miracle, but i guess one can always hope.  On a good note, his blood work is all good, his liver enzymes are a little off, but she said you are not yellow and your urine is clear, so that is good.  She is sending him for another blood test on Monday to check it again, because the one she is looking at is from 2 weeks ago.  I am just hoping that his enzymes are doing better and i will have more time with him.

Sandi

 

Comments

  • Helen321
    Helen321 Member Posts: 1,459 Member
    Options
    I'm not really sure what to

    I'm not really sure what to say so just know that I'm putting good juju for you guys into the universe right now. 

  • LindaK.
    LindaK. Member Posts: 506 Member
    Options
    Dang cancer!

    Oh, Sandi, I am so sad to read this update.  It's time to call in the troops, take a leave from work, call all your relatives, hospice, friends, etc.  I'm not sure what else you can do medically if your oncologist said they won't give him chemo.  We have a love/hate relationship with chemo.  My husband was off it for 6 weeks and felt like he needed it (like a junkie).  Maybe your husband is feeling the same way now.  I don't have any advice on how to deal with that, but I'm sure one of the kind folks here will have some advice for you.

    Stay strong!

    Linda

  • janderson1964
    janderson1964 Member Posts: 2,215 Member
    Options
    Sandi i think your husbands

    Sandi i think your husbands feelings for you is much like my feelings for my wife. She is my sole motivation for fighting. I am sure his love for you is where he gets all his strength and bravery from. I am sure he knows its not his fault but is still hard not to feel guilty. I know i experience 24/7 even though i know its not my fault. You are both lucky to have each other.

  • jen2012
    jen2012 Member Posts: 1,607 Member
    Options
    Your post is heartbreaking

    Your post is heartbreaking and beautiful.  Your love for each is  obvious.  This disease is so unfair.  Wishing both of you peace and miracles.

  • Trubrit
    Trubrit Member Posts: 5,800 Member
    Options
    This is a hard thing to say

    but I wonder if your husband wants you to tell him that its OK to stop the fight. Is he fighting for you or for himself now? How love can make us go through hell for another person. 

    I know I'm not saying this clearly, but somewhere along the line, I guess he might need to hear that its all right for him to die and leave you. He might feel he needs your permission. 

    My heart aches for both of you. My heart aches for the choices that have to be made. May you both find comfort in each other, and find joy in the days that you have left. 

    And no, don't EVER give up on the miracle, it could very well be out there. 

    As for hiding your tears; it sounds to me like your husband will know when you've been crying, and still feel your pain. Weep together, and find comfort in each others arms. 

    God bless you both. 

  • UncleBuddy
    UncleBuddy Member Posts: 1,019 Member
    Options
    I'm sorry Sandi!!

    Can you get a 2nd opinion? What about getting him into a trial? 

    Please take care of yourself. 

    Lin

  • Nana b
    Nana b Member Posts: 3,030 Member
    Options

    I'm sorry Sandi!!

    Can you get a 2nd opinion? What about getting him into a trial? 

    Please take care of yourself. 

    Lin

    Do you live in a cannabis

    Do you live in a cannabis approved state?  I'm trying it now, too early to say how it's working. 

     

    Google Rick Simpson oil.  On FB look at cannabis cures cancer. 

  • TheLadySkye
    TheLadySkye Member Posts: 203 Member
    Options
    My heart and prayers are with

    My heart and prayers are with you and your family.  I'm praying for that miracle!

  • Yolllmbs
    Yolllmbs Member Posts: 360 Member
    Options
    Prayers

    Your post was so touching. Your love and strength is so stirring. It's so hard when you are not in control.  You are an amazing partner. I think the hardest thing about the word cancer is the fear that comes with it. Not just the patient but the family and friends that surround you. You're husband sounds like an amazing, loving partner. Only God knows the timetable. Love and live life as much as you can. All of our beautiful, happy, wonderful memories are glued together with the challenging times. My prayers for peace and strength. 

    Yolanda

  • herdizziness
    herdizziness Member Posts: 3,624 Member
    Options
    Ohhh Sandi

    There is no doubt about your strong love for each other.  This made me weep.  I'm so sorry.  All I can say is live the life to the fullest with him right now, treasure those moments.  And if he doesn't feel like giving up, I'd say go to the cannibas oil, you never know and it won't hurt and it will help him feel like he is still doing something.

    As for the chemo, I can't believe I said this, but I told my doc a couple of years ago while I was off chemo waiting for surgery, that I actually had felt better when I was doing the chemo, funny stuff what our bodies make us feel.

    I send my love and hugs,

    Winter Marie

  • Cathleen Mary
    Cathleen Mary Member Posts: 827 Member
    Options

    Ohhh Sandi

    There is no doubt about your strong love for each other.  This made me weep.  I'm so sorry.  All I can say is live the life to the fullest with him right now, treasure those moments.  And if he doesn't feel like giving up, I'd say go to the cannibas oil, you never know and it won't hurt and it will help him feel like he is still doing something.

    As for the chemo, I can't believe I said this, but I told my doc a couple of years ago while I was off chemo waiting for surgery, that I actually had felt better when I was doing the chemo, funny stuff what our bodies make us feel.

    I send my love and hugs,

    Winter Marie

    Sandi, it is times like this

    Sandi, it is times like this when I wish our help could be more tangible.  Your love is a great gift to each other. My prayers for strength and wisdom as you make decisions .....and my hope for a miracle. Try whatever he wants to try...cannibas oil, trial, another opinion....most importantly, find moments of joy. My heart is with you both.  

    Hugs,

    CM

  • Semira
    Semira Member Posts: 381 Member
    Options
    Dear Sandy,

    so sorry for this news. Don't know what to say.

    A big hug from Germany

    Petra

  • Lovekitties
    Lovekitties Member Posts: 3,364 Member
    Options
    Very sad

    Dear Sandi, I am so very sad to hear the news that you and hubby got at last dr. visit.

    My prayers are with you both, as you make the most of whatever time is left.

    Marie who loves kitties

  • Sandi1
    Sandi1 Member Posts: 277
    Options
    Being Brave

    He is so Brave, he is doing tests, trying to eat because he knows it's important even though he doesn't feel like eating. He takes his pills, and the liquid medicine that tastes like crap.  He made plans for his brother to come visit this weekend and then told me when i got home - which is nothing new for him! he is always doing that to me. we decided to invite his family over for a BBQ on Sunday, because that's what my husband wants to do. 

    For those of you that mentioned he should try a trial, he had been accepted into a trial and is still on their list - but he is not allowed to have the chemo because he just had surgery a couple fo weeks ago, but now he is too weak to have any chemo.  The doctor said that it would just make him miserable and kill him faster than not doing anything.  That is what is making him feel out of control.

    As for the cannabis oil, i did look into it - but the place i looked needed to have a note or a script from a doctor that participates in the program, which our doctor does not. Actually, there are no doctors in our area that do.  He asked me last night to look into that for him, he was very sad when i told him that we needed to have a script from a doctor taht we have been seeing for at least 4 months.  Oh Well.

    I will try to keep you all updated, good news is - he is not jaundice, so that's good.

    Sandi

     

  • fatbob2010
    fatbob2010 Member Posts: 467 Member
    Options
    Hope

    Hope is a belief in something that is intangible, much the same as faith.  Sadly, Sandi, we have good markers to identify when and if the end is near.  Often, it seems, at the moment, the event horizon if you will, we can not identify whether there is a blessing encapsulated in what appears to be a curse.  

    For some of us it is the fight, the battle, even when the war is being lost.  It is a delaying action, preventing too rapid an overwhelming surge that would rob us of that precious resource: time.  In time is the hope of a miracle, trial, or breakthrough.  Time represents, for some, a measure of success against a persistent and deadly enemy.

    The balancing act of quality vs quanitity is an individual cunundrum with no standardized measure.  Our doctors, although they seem rather oblivious at times, have a humanitarian bend as well.  Keeping us informed, even when the news is bad, we get the information to help us with this conundrum and our individual paths.

    Peace and comfort,

    Art