Tykerb

littleangel65

I was dianoied with stage 3 breast cancer in Jan. 2012, like most of us on this website, I have had surgery, chemo, and radiation, and a was on Herceptin for a year.

All seems to be going well, supposed to be going for a PET Scan later this week, I am nervous about how the result will come out, but that is normal from what I was told by others.

My doctor is thinking about putting me on a pill called Tykerb, I was just wondering if anyone is taking that drug, or knows of anyone takng it, and if so, did you have any side effects.

CypressCynthia

I will be on the Pink Bus

I will be on the Pink Bus with you going to the PET.  Bringing cafe au lait and beignets and big hugs.  Praying it will all be good!!!

I don't know about Tykerb.  I am on herceptin/perjeta for life (or until it stops working) for Stage 4 her2 +.  My onc did mention he would try another drug if these fail, but I forgot to ask him which drug.  In the meantime, my last PET was good.

Hang in there!!!  We are all with you!!!!

 

disneyfan2008

CypressCynthia said:

I will be on the Pink Bus

I will be on the Pink Bus with you going to the PET.  Bringing cafe au lait and beignets and big hugs.  Praying it will all be good!!!

I don't know about Tykerb.  I am on herceptin/perjeta for life (or until it stops working) for Stage 4 her2 +.  My onc did mention he would try another drug if these fail, but I forgot to ask him which drug.  In the meantime, my last PET was good.

Hang in there!!!  We are all with you!!!!

 

Can I jump on the bus

Can I jump on the bus too?

Denise

1surfermom

disneyfan2008 said:

Can I jump on the bus

Can I jump on the bus too?

Denise

Tykerb (lapatinib)

I took Tykerb for about 4 months as part of a clinical trial. I really did not have any side effects with it. The pills are pretty huge ( kind of like the size of a prenatal vitamin) so they were some times hard to swallow. I remember that it had to be taken on an empty stomach, to avoid nausea I took it at about 3 in the afternoon. After I completed the trial I did experience thinning of the skin on my finger tips though and as a result I'm hard to fingerprint.  I hope this helps. Love Surf

VickiSam

1surfermom said:

Tykerb (lapatinib)

I took Tykerb for about 4 months as part of a clinical trial. I really did not have any side effects with it. The pills are pretty huge ( kind of like the size of a prenatal vitamin) so they were some times hard to swallow. I remember that it had to be taken on an empty stomach, to avoid nausea I took it at about 3 in the afternoon. After I completed the trial I did experience thinning of the skin on my finger tips though and as a result I'm hard to fingerprint.  I hope this helps. Love Surf

any update ? Please

check in with us when possible.   Continued prayers, and positive thoughts coming your way.

 

Strength, Courage and HOPE for a Cure.

Vicki Sam

littleangel65

CypressCynthia said:

I will be on the Pink Bus

I will be on the Pink Bus with you going to the PET.  Bringing cafe au lait and beignets and big hugs.  Praying it will all be good!!!

I don't know about Tykerb.  I am on herceptin/perjeta for life (or until it stops working) for Stage 4 her2 +.  My onc did mention he would try another drug if these fail, but I forgot to ask him which drug.  In the meantime, my last PET was good.

Hang in there!!!  We are all with you!!!!

 

Just checking in

I am just now getting back to this site, been away getting scans and tests etc, you know the drill...  I do pray that you are doing well.  My insurance denied the PET scan, so my oco ordered CT scan and bone scan, all looks good for now, he did say that I have to be really careful what I eat, I have a fatty liver or something like that, and he is not overly concerned as of yet, but mentioned something about some lymph nodes at the back of my stomach area.

i am leaving it in God's hands right now... I know anything can change at any moment.

As far as my oco putting me on tykerb, he hasn't mentioned anymore about it, the last time he told me about it, he said at the time, the FDA/government isn't allowing people with my stage of the cancer to be on it right now.  And he is upset with their decision on that.

He did mention to me a long time ago about putting me on Perjeta, but hasn't brought that up to me anymore...

its just not knowing that is so hard sometimes. 

I do think the government has too much control on our health, my nurse told me that people on Medicare, are allowed only 3 PET scans in a lifetime, and she went on to say that its just a matter of time before the insurance companies follow along. 

That is so sad, look at all of us out there with stage 3 and 4 cancer, and the govenment and insurance companies are limiting us on necessary scans.

I just hope we all hang in, and keep praying for one another.  Keep a positive attitude and our Lord close to your heart.

 

Have a Blessed Day,

Linda (littleangel65)

 

 

 

 

 

 

 

 

 

 

 

 

 

 

 

littleangel65

VickiSam said:

any update ? Please

check in with us when possible.   Continued prayers, and positive thoughts coming your way.

 

Strength, Courage and HOPE for a Cure.

Vicki Sam

Hello

Thank YOU

for your thoughts and prayers.

So far, all looks well, my liver may have been compromised from chemo treatments, looks like it is collecting fat, (fatty liver), so I am really trying to cut out fat from foods I eat, or at least really keep an eye on it, and keep it at lower levels of intake with meals.

Go back for general check up in 3 months.  This was my yearly exam.

I had my last herceptin treatment on June 29, 2013, and then a PET scan.

This year, insurance denied the PET scan, so doctor ordered CT scan and bone scan.

Hope all is going well for you Vicki.

 

Have a Blessed Day,

littleangel65 (Linda)

 

littleangel65

1surfermom said:

Tykerb (lapatinib)

I took Tykerb for about 4 months as part of a clinical trial. I really did not have any side effects with it. The pills are pretty huge ( kind of like the size of a prenatal vitamin) so they were some times hard to swallow. I remember that it had to be taken on an empty stomach, to avoid nausea I took it at about 3 in the afternoon. After I completed the trial I did experience thinning of the skin on my finger tips though and as a result I'm hard to fingerprint.  I hope this helps. Love Surf

Hello

Just got back from my yearly exam, so far so good, doctor did mention I have a fatty liver, so I am very careful to cut back alot on food that I take in to try an correct that issue.

He hasn't mentioned my taking the tykerb, he did say something that he get it for me at the momet bc the FDA/government won''t allow him to prescrib it to me at this time.

But he did feel strongly about my taking it, he said it could create a barrier, to keep the cancer to travel to my brain, which with my type of cancer it most likely will go to the brain or the liver, if it was to spread.

 

So, I am leaving it in God's hands, he knows what is in my future, no matter what pills are out there.  He has taken care of me this far, so why give up on my faith, right?

I appreicate you getting back with me on the side effects of Tykerb, I don't think my oco has totally given up on this issue as of yet, he is very intelligent, and he will figure out something if it is meant to be.

 

Hope all is going well with you.

How long have you been  in remission?

keep in touch, hope you have a Blessed Day!!!

littleangel65 (Linda)

 

 

littleangel65

disneyfan2008 said:

Can I jump on the bus

Can I jump on the bus too?

Denise

Welcome

How are you?

hope all is going your way.

Keep in touch, this is a great website, we are all here to help and give support to one another when we need it.

I was diag with stage 3 breast in January 2012, i have had surgery, chemo, radiation, and herceptin treatments, its been a long ride, but a very positive one so far.

No matter wheather we are having good days, or not so good days, we are strong and fighting our way thru this together.

Have a Blessed Day!!!