Ren12

ccfighter
ccfighter Member Posts: 476 Member
in Gynecological Cancers (other than ovarian and uterine) #1

Haven't heard from you in a while.  I hope all is well with your mom.  Stay strong.  Still thinking of you both.  Hugs.

Comments

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,506 Member
    #2
    Thank you for posting this

    Thank you for posting this ccfighter.  I have been wondering too..

  • ren12
    ren12 Member Posts: 79
    #3
    NoTimeForCancer said:

    Thank you for posting this

    Thank you for posting this ccfighter.  I have been wondering too..

    As usual I have no good news

    As usual I have no good news to report. Cancer has spread to bones, vertabrae and sternum. Chemo pretty much did nothing. We saw another Dr who wants to start mom on a clinical trial. She did not give her a time limit on how long she has left but did say she will die from this cancer. previous DR gave her months. She is getting ready to switch from phentenol pain drip to methadone. Tumor is really hurting her legs and hips and they think this will be better for her pain. She can walk but not very long before her legs hurt. We are in the process of getting her a wheelchair. CANCER SUCKS!! But with that said, she still has the fighting spirit and will NOT give up. So neither will I. My sister is getting married on June 7th and we have a relay for life to go to on June 20th, where she said she will walk the survivors walk. So if cancer plans on taking her, it will have to just wait cause she has plans. :)) Hope all is well for u ladies, and thank u for thinking of me and my mom

  • ccfighter
    ccfighter Member Posts: 476 Member
    #4
    ren12 said:

    As usual I have no good news

    As usual I have no good news to report. Cancer has spread to bones, vertabrae and sternum. Chemo pretty much did nothing. We saw another Dr who wants to start mom on a clinical trial. She did not give her a time limit on how long she has left but did say she will die from this cancer. previous DR gave her months. She is getting ready to switch from phentenol pain drip to methadone. Tumor is really hurting her legs and hips and they think this will be better for her pain. She can walk but not very long before her legs hurt. We are in the process of getting her a wheelchair. CANCER SUCKS!! But with that said, she still has the fighting spirit and will NOT give up. So neither will I. My sister is getting married on June 7th and we have a relay for life to go to on June 20th, where she said she will walk the survivors walk. So if cancer plans on taking her, it will have to just wait cause she has plans. :)) Hope all is well for u ladies, and thank u for thinking of me and my mom

    Oh, I am so sorry.  I was

    Oh, I am so sorry.  I was really hoping that the chemo was working and your mom was feeling better.  I know the pain has been hard on her.  I hope the methadone helps.  She should not have to suffer.

    my friend has bone mets from prostate cancer and has had a hard time with mobility. radiation helped with the spinal met, got him walking again, but the met on his femer was radiated but weakened the bone to the point of fracture.  Radiation may alleviate some of your moms pain also.  My friend also said smoking marijuanna really helped a lot, and he was better able to function with other daily activities without the brain fog of pain meds.

    what clinical trial has been suggested?

    i truly hope your mom finds comfort and peace and knows how lucky she is to have a wonderful daughter by her side.  She sounds like a wonderful woman, a wonderful mom, and I know your life was enriched with her presence, and continues to be despite her current struggles.  

    Prayers for a cure continue, along with love, light and peace.  

  • babe12
    babe12 Member Posts: 103
    #5
    ren12 said:

    As usual I have no good news

    As usual I have no good news to report. Cancer has spread to bones, vertabrae and sternum. Chemo pretty much did nothing. We saw another Dr who wants to start mom on a clinical trial. She did not give her a time limit on how long she has left but did say she will die from this cancer. previous DR gave her months. She is getting ready to switch from phentenol pain drip to methadone. Tumor is really hurting her legs and hips and they think this will be better for her pain. She can walk but not very long before her legs hurt. We are in the process of getting her a wheelchair. CANCER SUCKS!! But with that said, she still has the fighting spirit and will NOT give up. So neither will I. My sister is getting married on June 7th and we have a relay for life to go to on June 20th, where she said she will walk the survivors walk. So if cancer plans on taking her, it will have to just wait cause she has plans. :)) Hope all is well for u ladies, and thank u for thinking of me and my mom

    Ren, I'm so sorry to hear about your mom. She has been through so much hell with this disease. You & your family have been such a wonderful support system for her. You are right, CANCER SUCKS!!!!! What an inspiration you all are with your fighting spirits & letting cancer know it must wait, she has plans!!!!! She is so lucky to have you Ren!!! 

  • ren12
    ren12 Member Posts: 79
    #6
    babe12 said:

    Ren, I'm so sorry to hear about your mom. She has been through so much hell with this disease. You & your family have been such a wonderful support system for her. You are right, CANCER SUCKS!!!!! What an inspiration you all are with your fighting spirits & letting cancer know it must wait, she has plans!!!!! She is so lucky to have you Ren!!! 

    she did try the marijauna and

    she did try the marijauna and it has helped her appetite. She had gotten down to 116 but is now back up to 121. So it was worth it. First time she has ever tried it in her life!! Lol They said she can't get radiation again. I'm not sure what the clinical trial is called but they did say it has helped the majority of the people who have tried it. Something about it changes how the cacncer works?? Thank u both for ur encouraging words. U have no idea how much it helps means to me

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,506 Member
    #7
    ren12 said:

    she did try the marijauna and

    she did try the marijauna and it has helped her appetite. She had gotten down to 116 but is now back up to 121. So it was worth it. First time she has ever tried it in her life!! Lol They said she can't get radiation again. I'm not sure what the clinical trial is called but they did say it has helped the majority of the people who have tried it. Something about it changes how the cacncer works?? Thank u both for ur encouraging words. U have no idea how much it helps means to me

    I am so sorry to hear about

    I am so sorry to hear about your mom.  While it sounds like some of the treatments are no longer an option a clinical trial is alway good to know about.  I hope they get her started in that soon and it helps her feel better.  What a gift participants in clinical trials give to everyone. 

  • ren12
    ren12 Member Posts: 79
    #8
    NoTimeForCancer said:

    I am so sorry to hear about

    I am so sorry to hear about your mom.  While it sounds like some of the treatments are no longer an option a clinical trial is alway good to know about.  I hope they get her started in that soon and it helps her feel better.  What a gift participants in clinical trials give to everyone. 

    yes. I am very anxious for

    yes. I am very anxious for her to start. She just got home today from hospital. She was put in to switch from her phentenoyl pain drip to methadone. No more carrying around that bag anymore!! She said no one can call her bag lady now lol hopefully she will start clinical trial very soon. 

     

  • ren12
    ren12 Member Posts: 79
    #9
    ren12 said:

    yes. I am very anxious for

    yes. I am very anxious for her to start. She just got home today from hospital. She was put in to switch from her phentenoyl pain drip to methadone. No more carrying around that bag anymore!! She said no one can call her bag lady now lol hopefully she will start clinical trial very soon. 

     

    Since mom had to be in

    Since mom had to be in hospital last week, and couldnt get clinical trial, and now it is no longer available. They are working to see if there is another one available soon. In the meantime she will get more chemo. This time it will be carbo taxol and toppotecan. That last one is a new one on me.

  • ccfighter
    ccfighter Member Posts: 476 Member
    #10
    ren12 said:

    Since mom had to be in

    Since mom had to be in hospital last week, and couldnt get clinical trial, and now it is no longer available. They are working to see if there is another one available soon. In the meantime she will get more chemo. This time it will be carbo taxol and toppotecan. That last one is a new one on me.

    I'm sorry to hear she could

    I'm sorry to hear she could not take part in the clinical trial but I am glad they are putting her on a chemo regimine in the meantime.  Hopefully something promising will open up for her soon.  

    Did your mom try avastin?

    other chemo to consider is gemzar which is really quite tollerable.  

    Is your mom more comfortable now with the methadone?  I hope she is comfortable.  Prayers and positive energy for you both.

  • ren12
    ren12 Member Posts: 79
    #11
    ccfighter said:

    I'm sorry to hear she could

    I'm sorry to hear she could not take part in the clinical trial but I am glad they are putting her on a chemo regimine in the meantime.  Hopefully something promising will open up for her soon.  

    Did your mom try avastin?

    other chemo to consider is gemzar which is really quite tollerable.  

    Is your mom more comfortable now with the methadone?  I hope she is comfortable.  Prayers and positive energy for you both.

    Thank u! She is more

    Thank u! She is more comfortable with the methadone. Its mainly her right leg that hurts her all the time. She cant walk very far without it hurting and sometimes she can be doing absolutley nothing and it hurts. They say its the tumor pressing and making it hurt. They did one round of avastin, added it to her last round of chemo from before. They had said they werent sure about if it helped or not since she only had one round of it. So I was surprised when they said she was getting the other instead of avastin

  • ren12
    ren12 Member Posts: 79
    #12
    ren12 said:

    Thank u! She is more

    Thank u! She is more comfortable with the methadone. Its mainly her right leg that hurts her all the time. She cant walk very far without it hurting and sometimes she can be doing absolutley nothing and it hurts. They say its the tumor pressing and making it hurt. They did one round of avastin, added it to her last round of chemo from before. They had said they werent sure about if it helped or not since she only had one round of it. So I was surprised when they said she was getting the other instead of avastin

    Mom is back in hospital. This

    Mom is back in hospital. This damn cancer now has her bowels blocked. She has a tube running in her nose to her stomach to drain out bile. If it dosent repair itsef while in hospital, she will come home with a tube running out of her stomach to drain. She cant get surgery to fix it cause shes too skinny and fragile they say. She was supposed to start chemo again on Monday and now that has been postponed. She hasnt had any since March 25th which means there is nothing fighting it right now. I'm trying to stay positive and hopeful, but seriously dont know how much more I can take 

  • NoTimeForCancer
    NoTimeForCancer Member Posts: 3,506 Member
    #13
    ren12 said:

    Mom is back in hospital. This

    Mom is back in hospital. This damn cancer now has her bowels blocked. She has a tube running in her nose to her stomach to drain out bile. If it dosent repair itsef while in hospital, she will come home with a tube running out of her stomach to drain. She cant get surgery to fix it cause shes too skinny and fragile they say. She was supposed to start chemo again on Monday and now that has been postponed. She hasnt had any since March 25th which means there is nothing fighting it right now. I'm trying to stay positive and hopeful, but seriously dont know how much more I can take 

    I'm sorry to hear the

    I'm sorry to hear the setbacks Ren.  Your mother is so lucky to have such a loving daughter and I am sure she is very grateful.

  • ccfighter
    ccfighter Member Posts: 476 Member
    #14
    ren12 said:

    Mom is back in hospital. This

    Mom is back in hospital. This damn cancer now has her bowels blocked. She has a tube running in her nose to her stomach to drain out bile. If it dosent repair itsef while in hospital, she will come home with a tube running out of her stomach to drain. She cant get surgery to fix it cause shes too skinny and fragile they say. She was supposed to start chemo again on Monday and now that has been postponed. She hasnt had any since March 25th which means there is nothing fighting it right now. I'm trying to stay positive and hopeful, but seriously dont know how much more I can take 

    Oh no!  I'm so sorry to hear

    Oh no!  I'm so sorry to hear this.  I hope she can get this resolved and back to chemo to kick this cancer back.  she is so strong.  I hope you two can share a wonderful mothers day together.  She deserved it.  Hugs.  And prayers.

  • babe12
    babe12 Member Posts: 103
    #15
    ren12 said:

    Mom is back in hospital. This

    Mom is back in hospital. This damn cancer now has her bowels blocked. She has a tube running in her nose to her stomach to drain out bile. If it dosent repair itsef while in hospital, she will come home with a tube running out of her stomach to drain. She cant get surgery to fix it cause shes too skinny and fragile they say. She was supposed to start chemo again on Monday and now that has been postponed. She hasnt had any since March 25th which means there is nothing fighting it right now. I'm trying to stay positive and hopeful, but seriously dont know how much more I can take 

    Ren, I'm so sorry to hear this about your mom. Cancer is such a nasty b@st@rd!!! You, your mom & family are in my thoughts and prayers. Keep on fighting!!! Sending you positive vibes & hugs!!!!!

    Any time you need to vent, this is the place. We're all here for you!!!

  • FightingSpirit
    FightingSpirit Member Posts: 37 Member
    #16
    ren12 said:

    Mom is back in hospital. This

    Mom is back in hospital. This damn cancer now has her bowels blocked. She has a tube running in her nose to her stomach to drain out bile. If it dosent repair itsef while in hospital, she will come home with a tube running out of her stomach to drain. She cant get surgery to fix it cause shes too skinny and fragile they say. She was supposed to start chemo again on Monday and now that has been postponed. She hasnt had any since March 25th which means there is nothing fighting it right now. I'm trying to stay positive and hopeful, but seriously dont know how much more I can take 

    So sorry

    So sorry to read this.  Has she been able to get back on chemo yet?

     

    Hugs and prayers being sent your way.

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