Adenoid Cystic Carcinoma

Kaydub

It it is hard to believe that it has been 3 years since I finished my rads, and so far am cancer free.  I thank the Lord for his goodness.  My energy has returned mostly.  My tastebuds are 90%,  things tend to not be as flavorful, and I don't eat many crackers, chips, since they are so dry  - sort of like eating sawdust.  And I still have a very dry mouth especially when I wake up in the morning.  you do get used to it, and it seems somewhat normal. 

I will have a CT scan next month, and see my oncologist, and ENT every 3-4 months, with @ 3 ct scans per year. 

 

I am writing this to give others hope about this type of cancer.  I rarely get on this site, but was on it a lot when I was going through the rads, and was always looking for anything positive to give me hope and encouragement.  HOpefully this will help and encourage someone else.

Hondo

Hi Kaydub

Thanks for your input and helping others, I hope and pray for you that your CT will continue to be good and you continue to be a blessing to many others in your walk as a survivor.

 

God Bless

Hondo

katenorwood

Hello !

Thank you for your encouraging post !  I too was dx'd with adenoid cystic carcinoma.  There are a few others that have posted and been through surgery and rads and doing well also !  It is so important to pass on the good news that this type of dx isn't all doom and gloom !  Wishing you all the best, and please continue to post so others know this is doable !  Katie

Also very important to pass along about the rechecks (scans) for our dx.  A bit different then for other dx's.  I'm sure you know about this site, but when I get a chance I like to pass the information along for others.  www.accrf.org and www.accoi.org fabulous information on what this dx is and doctor lists and tx's ect.

CivilMatt

nice report

Kaydub,

Congratulations on the 3 years.  Your new normal sounds very normal.

Matt