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This poor kid beat kidney cancer 4 times and now is dying because a drug company won't give him a dr

nyisles
nyisles CSN Member Posts: 30
in Kidney Cancer #1

This is crazy.  You have to read this story to understand. A fellow kidney cancer patient has beated this disease 4 times and is clear of cancer but has a blood infection that a drug will fix but is not being given by the company because it is not approved by the FDA and they say they have "no money" yet the government just gave them $72 million.  Sickening.

 

http://www.dailymail.co.uk/news/article-2577938/Family-campaigns-seven-year-old-boy-fighting-life-drug-company-REFUSES-allow-access-life-saving-medicine.html

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  • icemantoo
    icemantoo CSN Member Posts: 3,362 Member
    #2

    Accorgind to news reports the drug company revesed their decision. Hopefully Josh can pull through.

     

    Icemantoo

     

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  • angec
    angec CSN Member Posts: 924 Member
    #3
    The latest is that he is now

    The latest is that he is now going to get the drug. Praying this little guy makes it through. He has been through severe trails for his young life and is a fighter! The reason the drug company changed their mind is because many people called, wrote to them, started petitions and made alot of NOISE!  That is the way to do it!  Some people even threathened them and their families. Too bad it had to get to that, but you can see the anguish people go through.  It is a shame that people who need help have to go through so much to get it.  The drug should be approved around 2016. Perhaps the fight should be stronger to make the FDA approve drugs quicker if they are shown to work as well as this one!  Keep fighting, little man!

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  • GSRon
    GSRon CSN Member Posts: 1,303 Member
    #4
    angec said:

    The latest is that he is now

    The latest is that he is now going to get the drug. Praying this little guy makes it through. He has been through severe trails for his young life and is a fighter! The reason the drug company changed their mind is because many people called, wrote to them, started petitions and made alot of NOISE!  That is the way to do it!  Some people even threathened them and their families. Too bad it had to get to that, but you can see the anguish people go through.  It is a shame that people who need help have to go through so much to get it.  The drug should be approved around 2016. Perhaps the fight should be stronger to make the FDA approve drugs quicker if they are shown to work as well as this one!  Keep fighting, little man!

    I heard a slightly different

    I heard a slightly different story...  I heard the FDA agreed to allow it and not jeopardize the potential to get this drug approved.  Sometimes there are hard decisions to make, and I am glad I do not have to make them...

    Ron

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