The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.

Thank you for being a part of the Cancer Survivor Network community. Survivors and caregivers like you have played a unique role in fostering an online environment that encourages connection among those needing support, community, and education. On May 28, the Network will be discontinued. More details are available here . If you have any questions, contact CSNSupportTeam@cancer.org. Thanks again for the support you’ve provided each other over the years. We remain committed to supporting you in other ways throughout your cancer journey.

Aaron

2»

Comments

  • Bill_NC
    Bill_NC CSN Member Posts: 133 Member

    Whew !

    Aaron,

    Thanks for sharing the great news. I was a little selfish for wanting to know, since you, me, Bill-NC, and one or two females (I apologize for forgetting which ones) are the only people here I am aware of who had NLPHL.  In my gut, I expected you to be cancer-free, since this strain does not come back in the first five years in over 90% of all patients, and does not recur in the whole lifetime of the patient in 60-70% of all cases. Of course, statistics mean nothing when there are symptoms.  Stay healthy !

    Max

    NLPHL

    In spite of the fact that NLPHL is very rare form of HL, there are 5 of us here on this very post:

    Max

    Aaron

    Joemory21

    sureshwani

    Bill_NC