The Latest News with direct post from Kathryn_in_MN per her wishes

herdizziness
herdizziness Member Posts: 3,624 Member
edited January 2014 in Colorectal Cancer #1
These are words from Kathryn:
Hospice services have been nice. I am so glad to be able to be home. I had an incredible massage & healing energy today. She climbed right into my bed with me for part of it. This is the best I have felt in a month.

I am totally bedridden now. My pain is well controlled. Because the cancerous mass totally blocks at my duodenum I cannot pass anything past the stomach into the digestive tract. I am not hungry and do not eat. I am thirsty and do drink some fluids. Sometimes they stay in my stomach long enough for my body to absorb a little so I urinate about once per day. Hooray for Depends now that I cannot get up. Most that I drink is vomited up in 5 to 60 minutes. I vomit a lot. I am tired of vomiting.

My biliary bag stopped draining for a few days. I had a bandage and bag change and it started again in a couple days.

I am losing weight. Slowly starving my body but not hungry. This is very weird and not what I ever expected to happen. I am doing better than hospice staff expected. Duodenal cancer is quite rare. So medical staff is a bit confused about what to expect too.

I have had lots of friends and family visit. My parents have been here for several days again now that my mother feels better. I have been blessed to be home on hospice and able to say good byes. Not everyone gets that chance.

It is difficult to read and write and I had a few very tough days so I cannot post much. Nicole does read your posts to me. Thank you all for the love and prayers. It is ok to stop in to visit any time. Not hard to find me. Glad I cannot go anywhere today. -22 f..
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Comments

  • Annabelle41415
    Annabelle41415 Member Posts: 6,742 Member
    #2
    Sad

    Just checked her blog the other day on Caringbridge and didn't read this.  Her determination has always been so wonderful.  I'm sorry that she is feeling so ill.  It seems that at least Hospice can keep her comfortable, but sorry that she has to vomit so many times a day.  Kathryn you are in my prayers and wishing you peace.

    Kim

  • jen2012
    jen2012 Member Posts: 1,607 Member
    #3
    :( so sad to read this.
    :( so sad to read this.
  • devotion10
    devotion10 Member Posts: 623 Member
    #4
    Dear Kathryn ...

    I am so glad you are home surrounded with love.  The comforting hands of your masseuse sound wonderful. Having hospice to provide you pain control and support is so very good.  Your words reflect a clarity and acceptance of the changes in your condition.  You sound brave. I hope that the vomiting can be controlled so that you do not have to deal with that. 

    I wish you continued peace in your heart. You are an extraordinary person. 

    Love to you. ~ Cynthia

  • Aud
    Aud Member Posts: 479 Member
    #5
    Kathryn

    Kathryn, you are an amazing woman.  I am so glad that you are home surrounded by family and friends and love.

    Holding you in the Light for continued Peace and Comfort and for relief from the vomitting

     

  • wolfen
    wolfen Member Posts: 1,324 Member
    #6
    Aud said:

    Kathryn

    Kathryn, you are an amazing woman.  I am so glad that you are home surrounded by family and friends and love.

    Holding you in the Light for continued Peace and Comfort and for relief from the vomitting

     

    Kathryn

    Your strength & presence of mind are a continuation of the character you have always shown us. Glad you are able to be in your own home & are being kept comfortable.

    Sending warm thoughts & peace to you.

    Wolfen

  • johnnybegood
    johnnybegood Member Posts: 1,117 Member
    #7
    wolfen said:

    Kathryn

    Your strength & presence of mind are a continuation of the character you have always shown us. Glad you are able to be in your own home & are being kept comfortable.

    Sending warm thoughts & peace to you.

    Wolfen

    wow

    what a true fighter you are.just keep hanging in there and do the best you can do and soon my friend you will be out of pain and in the land of glory.hope to meet you one day....Godbless...johnnybegood

  • rls67
    rls67 Member Posts: 127
    #8
    Sending thoughts and prayers

    Sending thoughts and prayers to you and your family. May your days and nights be pain free. You are a true warrior. May God be with you.

  • Phil64
    Phil64 Member Posts: 838 Member
    #9
    Wising you PEACE, STRENGTH,

    Wising you PEACE, STRENGTH, LOVE, and COMFORT during this trial. You are a brave woman. Thank you for sharing with us.

    Sincerely,

    Phil

  • UncleBuddy
    UncleBuddy Member Posts: 1,019 Member
    #10
    I'm at a loss...

    I don't know what to say. My heart breaks for you. I hope you get a break from all the vomiting. I'm glad that friends and family are able to give you comfort. Know we are all thinking of you and wish you comfort.

    Lin

  • Semira
    Semira Member Posts: 381 Member
    #11
    Dear,

    you are such an amazing Lady! Sending warm hugs from Germany

    Petra

  • annalexandria
    annalexandria Member Posts: 2,571 Member
    #12
    I am so glad that you are surrounded by family,

    and that hospice is helping you to be more comfortable.  Just as you have always helped others who face this tremendous challenge, you continue, even on the last leg of the journey, to light the way for the rest of us.

    Thank you for all that you have done for your fellow colon cancer folk, and may the rest of the path you walk be a peaceful one, and full of love.

    AA

  • Momof2plusteentwins
    Momof2plusteentwins Member Posts: 509 Member
    #13
    So hard to read this -
    Kathryn - thank you for posting your journey through this site and caring bridge. I have followed you and feel like I know you personally. I hope you can remain comfortable with hospice. I will be thinking of you and your family.
    Sandy
  • Chelsea71
    Chelsea71 Member Posts: 1,169 Member
    #14
    You're a hero.  You've

    You're a hero.  You've brought strength, hope and knowledge to so many people.  May the remainder of your time be pain free and  filled with joy, comfort and time with family.

     

    Chelsea

  • Coloncancerblows
    Coloncancerblows Member Posts: 296 Member
    #15
    Such sad news to read.  May

    Such sad news to read.  May God comfort you during this difficult time.

  • devotion10
    devotion10 Member Posts: 623 Member
    #16
    A link to a lovely youtube video of Kathryn ...

    accepting the Elika Hemphill Memorial Award for being an inspiration, supporter, and a colorectal cancer advocate.

    https://www.youtube.com/watch?v=M9sDgYQSX-w#t=23

    What an incredible person.

    Peace. ~ Cynthia

  • Cathleen Mary
    Cathleen Mary Member Posts: 827 Member
    #17
    devotion10 said:

    A link to a lovely youtube video of Kathryn ...

    accepting the Elika Hemphill Memorial Award for being an inspiration, supporter, and a colorectal cancer advocate.

    https://www.youtube.com/watch?v=M9sDgYQSX-w#t=23

    What an incredible person.

    Peace. ~ Cynthia

    Kathryn, You continue to be

    Kathryn, You continue to be amazing.  What a gift you are to so many of us at CSN. Be gentle with yourself and may your days be filled with blessing and peace.

    CM

  • Trubrit
    Trubrit Member Posts: 5,804 Member
    #18
    Dear Kathryn

    You are in our thoughts and prayers. 

    May you be surrounded by the love everyone has for you. 

    You're strength throughout has been an inspiration and continues. 

    Blessings!

  • thingy45
    thingy45 Member Posts: 632 Member
    #19
    Trubrit said:

    Dear Kathryn

    You are in our thoughts and prayers. 

    May you be surrounded by the love everyone has for you. 

    You're strength throughout has been an inspiration and continues. 

    Blessings!

    Just love

    dear Kathryn, I can only send you just love, like you have given to us.

    i wish for you that you are surrounded by love and peace. And it is a blessing that you have a chance to say your goodbyes. i am in awe of your strength and thsnk you for sharing with us the wonderfull person you are.

    love and light I send you,

    Marjan 

  • karguy
    karguy Member Posts: 1,020 Member
    #20
    I am sorry

    I am sorry to hear the sad news.You are a true hero to many,and a strong person.I will keep praying for you.At least you have little pain,and have your family with you.

  • thxmiker
    thxmiker Member Posts: 1,278 Member
    #21
    We are sending our thoughts

    We are sending our thoughts and love from the AZ!   We wish you happiness and comfort in this diffcult time.

     

     

    Best Always,  mike

     

     

     

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