New here - wish I would have found sooner! SCC-HPV Tonsil

phrannie51

Skiffin16 said:

Nausea...

Hard to say, could just be you are one of the unfortunate...

I had big doses of Cisplatin, Taxotere and the 5FU 24/7 in three weeks cycles... During those cycles they gave me EMEND..., wonderful stuff. Three capsuls, one for each of the first three days of chemo..., never got sick once.

But for the off weeks, and then the latter seven weeks of concurrent weekly Carboplatin during daily rads, they only gave me Zofran, or Phenergan. Both took the edge off of any nausea for me...

But if it's not working for you, let them know..., they usually have a variety of meds to help you through. Unfortunately it might take a while to figure out works best most of the time.

Ginger Ale works well at times also...

More than likely, you're going to be able to enjoy your wifes cooking again, but it's probably going to be awhile.

It took me nearly two years to get all of my taste back. But I had a huge amount back within the first 6 - 12 months.

But during one point, my wife whom makes awesome soups..., they all tasted terrible. Her homemade chicken noodle soup tasted like hot water loaded with chicken fat..., yuck.

But it's all good now...

Hang in there and remember the big picture..., survival first, all of the rest is gravy... (though it might be nasty gravy for awhile... ).

Best,

John

If all they gave you was

Zophran for nausea, then the meds need to be stepped up.  Like John, I had Emend also....they only give it the first 3 days after chemo, and I don't know if they give it for the weekly doses.....BUT, besides Zophran, I had Compazine and Ativan (lorazepam)....my Onc gave me a schedule that I adhered to strickly until the nausea was gone (I had the large dose every 3 weeks, like John....and it would take 5 or 6 days to get back to normal).  I put my schedule on my expressions page....

http://csn.cancer.org/user/166266/expressions

Be sure and tell your Oncologist that you're feeling crappy all day long....nobody should have to feel that way through treatment when they have plenty of drugs to avoid it.

p

Crazymom

Cancer

I had a similar diagnosis....tumors in left tonsil and two left nodes.  My tumors reduced in size as soon as the chemo startedl.  The worst was the last two weeks of radiation.  Good luck...you can do this..just take a day at a time.  Ann