Is 12 weeks too soon

mom2two

twinthings said:

I answered my own question

and the answer...hell yes!  Too soon for coasters!  I rode two (not the biggest or the baddest) and I was done.   I might even go so far as to say it was too soon to walk around an amusement park for 13 hours.  I was so unbelievably sore...from head to toe.  I blamed my soreness on age till my 28 year old daughter called me the following day to say her every muscle hurt.  Guess age really is just a number...so much for my excuse, huh?!  At any rate, I had a great time and can't wait to go again when I can ride without worries.

I have one question for you??

Is your profile pic of you or your 28 year old daughter? If it is you, Wow you look great!   Take care!

GSRon

twinthings said:

scanxiety

Thanks for the heads up, Neil!  Fortunately, I haven't had to deal with that yet.  As far as I know, I won't be having a CT, just chest x-rays, in December.  Seems odd to me but that's what the doctor said...chest x-rays.  Not sure how soon before the appointment date scanxiety will set in but, I'd can think of so many other ways to get my adrenaline pumping...

Ding Ding Ding...

Ah Twinie Gal.. someone will quickly correct me if I am wrong, but if you have CC RCC then an X ray is not the way to go... 

Be Well All..!

Ron

Texas_wedge

NanoSecond said:

Being a rebel

Gee Sindy,

If you want to get your adrenaline flowing just wait until it's time for your first set of CT scans. It's called scanxiety and you don't get to escape it.

It's just one of the many perks of club membership around here.

Being a rebel - 'scanxiety'

"It's called scanxiety and you don't get to escape it."

Neil, I see people (particularly those who really have nothing to worry about) saying things like this this all the time.  I've often felt inclined to comment and haven't but you've expressed it so succinctly and unequivocally that I feel constrained to do so now. 

It's nonsense to say you're bound to feel anxious - it's a choice we each make for ourself.   On this particular forum, on kidney cancer, I don't think there can be much doubt that I have a lot more to worry about than anyone else.  However, I never have a moment's "scanxiety". 

I'm actually keen to have scans and thus to know what's going on - so that I can know what I'm going to have to square up to and figure out how best to handle it.  I've been having frequent scans of various types for two years now, most of them CT scans with full contrast.  The last two CT scans I've had were 11 weeks ago and 3 weeks ago and I'm just about to have another one.  As you know, I had an emergency procedure a couple of weeks ago to stent my biliary blockage and prevent my imminent death by bilirubin toxicity and liver failure.  This morning I was slotted in before the front of the list for an emergency Doppler scan for what everyone thought looked like a DVT (I'm glad to say that there's no sign of a clot, the probability being that new peritoneal mets are obstructing my lymphatic circulation - not that that's much of a matter for celebration but at least we don't have to get into an additional problem of clot removal to clear the decks before we can attempt anything else).

I don't suffer from fatigue at all, despite seldom getting much more than two hours sleep a night recently (due to pain) but I am in a fair amount of pain most of the time. However, I don't have an anxiety problem and I never lose sleep because I have a scan coming into view!  I'm not going to gain anything by worrying about what a scan will show and it's possible I'll actually worsen the outcome by indulging in futile negative thoughts - so I don't do so - anxiety isn't an ailment you're saddled with, it's a process which you do to yourself.

NanoSecond

Texas_wedge said:

Being a rebel - 'scanxiety'

"It's called scanxiety and you don't get to escape it."

Neil, I see people (particularly those who really have nothing to worry about) saying things like this this all the time.  I've often felt inclined to comment and haven't but you've expressed it so succinctly and unequivocally that I feel constrained to do so now. 

It's nonsense to say you're bound to feel anxious - it's a choice we each make for ourself.   On this particular forum, on kidney cancer, I don't think there can be much doubt that I have a lot more to worry about than anyone else.  However, I never have a moment's "scanxiety". 

I'm actually keen to have scans and thus to know what's going on - so that I can know what I'm going to have to square up to and figure out how best to handle it.  I've been having frequent scans of various types for two years now, most of them CT scans with full contrast.  The last two CT scans I've had were 11 weeks ago and 3 weeks ago and I'm just about to have another one.  As you know, I had an emergency procedure a couple of weeks ago to stent my biliary blockage and prevent my imminent death by bilirubin toxicity and liver failure.  This morning I was slotted in before the front of the list for an emergency Doppler scan for what everyone thought looked like a DVT (I'm glad to say that there's no sign of a clot, the probability being that new peritoneal mets are obstructing my lymphatic circulation - not that that's much of a matter for celebration but at least we don't have to get into an additional problem of clot removal to clear the decks before we can attempt anything else).

I don't suffer from fatigue at all, despite seldom getting much more than two hours sleep a night recently (due to pain) but I am in a fair amount of pain most of the time. However, I don't have an anxiety problem and I never lose sleep because I have a scan coming into view!  I'm not going to gain anything by worrying about what a scan will show and it's possible I'll actually worsen the outcome by indulging in futile negative thoughts - so I don't do so - anxiety isn't an ailment you're saddled with, it's a process which you do to yourself.

What can I say Tex?  You are

What can I say Tex?  You are undoubtably one of the most remarkable individuals I have ever been inspired by.  I don't really understand how you do it - but do keep it up - for all of our sakes.

I really wish I could master your ability not become anxious about these things.  But, you see, rather ironically I just got back from my very first MRI of my brain.  And I would be outright lying if I claimed that I was not anxious about hearing what the results are going to be (sometime tomorrow).

However, like you, I refuse to let my fears or other petty concerns overwhelm my life.  Whenever I read your posts I get renewed energy and strengthened conviction to go forward fearlessly.

Thanks!

 

 

Texas_wedge

NanoSecond said:

What can I say Tex?  You are

What can I say Tex?  You are undoubtably one of the most remarkable individuals I have ever been inspired by.  I don't really understand how you do it - but do keep it up - for all of our sakes.

I really wish I could master your ability not become anxious about these things.  But, you see, rather ironically I just got back from my very first MRI of my brain.  And I would be outright lying if I claimed that I was not anxious about hearing what the results are going to be (sometime tomorrow).

However, like you, I refuse to let my fears or other petty concerns overwhelm my life.  Whenever I read your posts I get renewed energy and strengthened conviction to go forward fearlessly.

Thanks!

 

 

Anxiety

I hope your scan comes up perfect Neil.  Funnily enough, it was decided this morning that my upcoming scan will take in my brain also (and descend a bit lower too).  

twinthings

mom2two said:

I have one question for you??

Is your profile pic of you or your 28 year old daughter? If it is you, Wow you look great!   Take care!

It's me

Mom, you're very kind!  I actually have two 28 year olds (hence twinthings), but the profile pic is me, taken a few months ago.  I'll be 50 in 2014 and am looking forward to it!!  YOU JUST MADE MY DAY!

twinthings

GSRon said:

Ding Ding Ding...

Ah Twinie Gal.. someone will quickly correct me if I am wrong, but if you have CC RCC then an X ray is not the way to go... 

Be Well All..!

Ron

ding ding ding

You got my attention, Ron!  What should I do?  My doctor is not an oncologist, rather a urologist.  Not just any urologist tho, he's the leading kidney transplant specialist in Oklahoma.  He is the one who confirmed my diagnosis and performed my rad neph.  And he is the one who will dictate what scans I get and when I get them.  I told him I'd like to be folowed by an oncologist and he said when he releases me from his care, 1 year post-op, he will refer me to one.  So, until then, I'm at the mercy of Dr Samara.