DLBCL and LDN ( low dose naltrexone)

newsholme1

Hi. 

My Dad was recently diagnosed with DLBCL. We don't know the stage yet because he needs to have more tests, but the Dr. says he's at least a stage 2 (with symptoms of sore abdomen, some fatigue and lost a little weight). The Dr wants to get him started next week on his treatment plan (standard therapy, including chemo) but my Dad wants to get a second opinion. In the mean time I'd like him to go on LDN (low dose naltrexone) as I don't think it could hurt and might possibly help (I have been taking LDN for 7 years for multiple sclerosis with great success...and nothing else).

Does anyone out there take LDN for their DLBCL and have you seen improvement? 

Any feedback is appreciated.

Linda

Rocquie

Welcome

Welcome to the group, Linda. I am sorry to hear about your Dad's diagnosis with lymphoma, but you will find much hope here. Lymphoma is a very treatable disease. I myself do not have DLBCL but another type of lymphoma. However, there are several members here who do have the same type as your Dad. Some are in treatment now and some are in remission.

If your Dad wants to seek a second opinion, by all means encourage him to do so. I did. In fact my own Oncologist set it up for me. I actually had 3 opinions and 2 different interpretations of my biopsies. The more information he has, the more informed his decisions and the more confidence he will have with his treatment.

I know nothing about LDN. I'm happy to hear that it is working so well for your MS. My inner alarmist wants me to advise you not to try to compare DLBCL with MS. I hope you will let your Dad and his healthcare team make his treatment decisions.

Let us know how he's doing. . .

Rocquie

 

newsholme1

Rocquie said:

Welcome

Welcome to the group, Linda. I am sorry to hear about your Dad's diagnosis with lymphoma, but you will find much hope here. Lymphoma is a very treatable disease. I myself do not have DLBCL but another type of lymphoma. However, there are several members here who do have the same type as your Dad. Some are in treatment now and some are in remission.

If your Dad wants to seek a second opinion, by all means encourage him to do so. I did. In fact my own Oncologist set it up for me. I actually had 3 opinions and 2 different interpretations of my biopsies. The more information he has, the more informed his decisions and the more confidence he will have with his treatment.

I know nothing about LDN. I'm happy to hear that it is working so well for your MS. My inner alarmist wants me to advise you not to try to compare DLBCL with MS. I hope you will let your Dad and his healthcare team make his treatment decisions.

Let us know how he's doing. . .

Rocquie

 

DLBCL

Thank you for your warm welcome. Tomorrow my father will start RCHOP. Today he gets the port in. He's not looking forward to this as his sister had this put in nearly a year ago and had one problem after another with infections and just getting weaker and weaker. She never did get the chemo because she never recovered from the port problems and passed away 10 weeks after dx (colon cancer). The Dr. Has reassured him he will do everything possible to make sure my Dad gets the best person for this insertion of the port. 

My Dad decided to add the LDN to his treatment plan (along with some other changes, such as supplements& diet). He's a very smart man and did his research before deciding this). We can only pray now that all these drugs will work. It's ever so sad to see someone you care about have to go through this. I have told him about this support website. I think it would really help him to find positive stories here.

 

Thank you for your support!

Rocquie

newsholme1 said:

DLBCL

Thank you for your warm welcome. Tomorrow my father will start RCHOP. Today he gets the port in. He's not looking forward to this as his sister had this put in nearly a year ago and had one problem after another with infections and just getting weaker and weaker. She never did get the chemo because she never recovered from the port problems and passed away 10 weeks after dx (colon cancer). The Dr. Has reassured him he will do everything possible to make sure my Dad gets the best person for this insertion of the port. 

My Dad decided to add the LDN to his treatment plan (along with some other changes, such as supplements& diet). He's a very smart man and did his research before deciding this). We can only pray now that all these drugs will work. It's ever so sad to see someone you care about have to go through this. I have told him about this support website. I think it would really help him to find positive stories here.

 

Thank you for your support!

Hi Linda

I also had R-CHOP--8 rounds. Yes, it was administered through my port and I think almost every member of this site will sing the praises of having a port.

I believe strongly in complementary and alternative medicine. I have always turned to those sources first. However, when it came to dealing with cancer, I called out the big guns! I didn't have time to see if some herbal or homeopathic or supplement would work; this could kill me. I did use some things, such as aromatherapy for relaxation and ginger tea for nausea, along with my R-CHOP. But I have heard that some of the supplements that fight free radicals and protect cells from cancer, can actually protect those cancer cells from the chemo. I hope Dad will talk to his oncologist before taking any other medicines or supplements while taking chemo.

Also, if you haven't been told, Claritin helps prevent Neulasta pain, if he gets that.  Again, talk to the doctor.

Good luck to you and your Dad. And please let us know how things go.

I'm sure others with join in here soon.

(((Hugs)))

Rocquie