lieomyoscaroma
Hi, first time posting - Felt the need to advise anyone with lieomyoscaroma of my experiences.
This is my third Reoccurrence – anyone in the surrounding area of Virginia with this or any cancer should see my oncologist. Dr. Niefeld – he’s the best. He is the reason I’m a three time survivor!!!!
Comments
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Helloooo!! Renal sarcoma...I think?....help!!
5 cm mass on my left kidney...On Aug 31.....Walter Reed....we are active duty...I am 47 yr old spouse
My urological dr was sure it was Renal cell OR Lymphoma....NOPE....it is neither
CT biopsy results stated....Spindle Cell Neoplasm with. Smooth Cell Differation ......a Leiomyoma!! Yes!! praise Jesus!!
dr called 5 days later....says ...May be a leiomyosarcoma!! WHAT!!
Referral to Johns Hopkins in place...let the "big boys" figure this out and I'm gonna try not to worry.
But I am worried....
Any renal sarcoma survivors out there??
Help
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LeiomyosarconaRhandrh said:Where is he located
Ptfaz3,
Where is this doctor....even though I have a appt with Johns Hopkins....I would still like to know where this Dr Niefeld is.
Tell me how your Leiomyosarcoma story started and how you are doing?
Thanks
Robyn
Any information you can forward to me would be very much appreciated. I think my husbands doctors have put him in the too hard basket after sarcoma has spread to several parts of his body.
regards
jennydd
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Rhandrh renal lieomyosarcomaRhandrh said:Where is he located
Ptfaz3,
Where is this doctor....even though I have a appt with Johns Hopkins....I would still like to know where this Dr Niefeld is.
Tell me how your Leiomyosarcoma story started and how you are doing?
Thanks
Robyn
I see this post was from Sep so you must have a lot more information and idea of what's going on. I had renal leiomysarcoma removed along with a kidney that it was covering about a year and a half ago. So far so good but certainly get nervous before every CT scan. It was about 10cm and all we can do is get checked and hope for the best. Good luck.
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