New Flower (Ogla) .. How are you doing ???

VickiSam
VickiSam Member Posts: 9,079 Member
in Breast Cancer #1

I've been thinking and praying for you.  I know there has been some struggles for you dear Sister - in your new battle IV breast cancer.

Please update us when possible.

Gentle hugs, and LOVE.

Vicki Sam

 

Comments

  • SIROD
    SIROD Member Posts: 2,194 Member
    #2
    Thinking of you too!

    I've been thinking about you too.  How are you doing?

     

    Doris

  • carkris
    carkris Member Posts: 4,553 Member
    #3
    SIROD said:

    Thinking of you too!

    I've been thinking about you too.  How are you doing?

     

    Doris

    me too!

    me too!

  • New Flower
    New Flower Member Posts: 4,294
    #4
    carkris said:

    me too!

    me too!

    Thank you for asking and your positive thoughts

     Past 5 weeks have been very rough. Apparentely the combination of Faslodex and the experimental drug BKM 120/placebo (no doubts I was taking the drug) at 1000 mg/day was very strong for me. Based on my labs I was taken off on May 24 th and I am still off the drug because recovery has been very slow. I have had total of 4 fluids infusions and it did help with dehydration and detoxication of my liver. In addition, I have had a Chemo brain, the real one due to mechnism of this drug which is crossing brain barrier and suppose to protect from brain methastasis.  It is not fun when yoy cannot write or drive.  My liver enzymes and CBC are back to normal.  I got my Faslodex shot on Tuesday. I have two more wekks before  facing a tough desicion wether  or not to resume at lower dose or stop the experimental drug. Still dream about spellcheck 

    I am very exhausted physically and emotionally.

    Thank you for your support.

    Love

    Olga

  • VickiSam
    VickiSam Member Posts: 9,079 Member
    #5
    New Flower said:

    Thank you for asking and your positive thoughts

     Past 5 weeks have been very rough. Apparentely the combination of Faslodex and the experimental drug BKM 120/placebo (no doubts I was taking the drug) at 1000 mg/day was very strong for me. Based on my labs I was taken off on May 24 th and I am still off the drug because recovery has been very slow. I have had total of 4 fluids infusions and it did help with dehydration and detoxication of my liver. In addition, I have had a Chemo brain, the real one due to mechnism of this drug which is crossing brain barrier and suppose to protect from brain methastasis.  It is not fun when yoy cannot write or drive.  My liver enzymes and CBC are back to normal.  I got my Faslodex shot on Tuesday. I have two more wekks before  facing a tough desicion wether  or not to resume at lower dose or stop the experimental drug. Still dream about spellcheck 

    I am very exhausted physically and emotionally.

    Thank you for your support.

    Love

    Olga

    Olga ...

    My beautiful, sweet, loving Olga.  I am so so so sorry for all your pain. Please know that so many of us are thinking, praying and hoping for you each and every day. 

    You are such a strong WARRIOR .. Please continue to persevere, putting 1 foot in front of the other. 

    Call me anytime -  Day or NIGHT.. my dear Olga.

    Gentle hugs,

    Vicki Sam

  • Christmas Girl
    Christmas Girl Member Posts: 3,682 Member
    #6
    New Flower said:

    Thank you for asking and your positive thoughts

     Past 5 weeks have been very rough. Apparentely the combination of Faslodex and the experimental drug BKM 120/placebo (no doubts I was taking the drug) at 1000 mg/day was very strong for me. Based on my labs I was taken off on May 24 th and I am still off the drug because recovery has been very slow. I have had total of 4 fluids infusions and it did help with dehydration and detoxication of my liver. In addition, I have had a Chemo brain, the real one due to mechnism of this drug which is crossing brain barrier and suppose to protect from brain methastasis.  It is not fun when yoy cannot write or drive.  My liver enzymes and CBC are back to normal.  I got my Faslodex shot on Tuesday. I have two more wekks before  facing a tough desicion wether  or not to resume at lower dose or stop the experimental drug. Still dream about spellcheck 

    I am very exhausted physically and emotionally.

    Thank you for your support.

    Love

    Olga

    Dear Olga...

    Am so sorry to learn of your struggles over these past several weeks. I agree, wholeheartedly - no fun. Not at all. It's no wonder you're feeling exhausted, in many ways.

    Please know that I think of you often, always hopeful. For now, I'll hope that over the next two weeks - you'll recover and feel better. Maybe if you feel a bit stronger, less exhausted - that decision won't seem so daunting.

    In the meantime, take very good care of yourself. (((Big Hugs)))

    Kind regards, Susan

    P.S. to VickiSam: Thank you for the 'shout out' to our dear New Flower.

  • carkris
    carkris Member Posts: 4,553 Member
    #7
    Christmas Girl said:

    Dear Olga...

    Am so sorry to learn of your struggles over these past several weeks. I agree, wholeheartedly - no fun. Not at all. It's no wonder you're feeling exhausted, in many ways.

    Please know that I think of you often, always hopeful. For now, I'll hope that over the next two weeks - you'll recover and feel better. Maybe if you feel a bit stronger, less exhausted - that decision won't seem so daunting.

    In the meantime, take very good care of yourself. (((Big Hugs)))

    Kind regards, Susan

    P.S. to VickiSam: Thank you for the 'shout out' to our dear New Flower.

    olga not happy to hear it has

    olga not happy to hear it has been tough. rest up and recover.

  • SIROD
    SIROD Member Posts: 2,194 Member
    #8
    New Flower said:

    Thank you for asking and your positive thoughts

     Past 5 weeks have been very rough. Apparentely the combination of Faslodex and the experimental drug BKM 120/placebo (no doubts I was taking the drug) at 1000 mg/day was very strong for me. Based on my labs I was taken off on May 24 th and I am still off the drug because recovery has been very slow. I have had total of 4 fluids infusions and it did help with dehydration and detoxication of my liver. In addition, I have had a Chemo brain, the real one due to mechnism of this drug which is crossing brain barrier and suppose to protect from brain methastasis.  It is not fun when yoy cannot write or drive.  My liver enzymes and CBC are back to normal.  I got my Faslodex shot on Tuesday. I have two more wekks before  facing a tough desicion wether  or not to resume at lower dose or stop the experimental drug. Still dream about spellcheck 

    I am very exhausted physically and emotionally.

    Thank you for your support.

    Love

    Olga

    Thank You for the update!

    Olga,

    I am glad your liver Enzymes and CBC are back to normal.  Glad that you have resume Faslodex shots again.  

    I do understand being exhausted physically and emotionally.  It is hard.  When I am low on iron, I can't drive either, my rbc are low.  Taxol has made me anemic.  I wonder if I should not try the few hormonal drugs that are left.  Fareston a very old drug, same period as Tamoxifen or Aromasin.  I have some questions about Afinitor and breathing issues since I have them.  I don't think Afinitor is for me.

    Wishing you the best in your very tough decision, I will be thinking and sending positive thoughts your way.

    Hugs,

    Doris

     

  • aisling8
    aisling8 Member Posts: 1,627 Member
    #9
    SIROD said:

    Thank You for the update!

    Olga,

    I am glad your liver Enzymes and CBC are back to normal.  Glad that you have resume Faslodex shots again.  

    I do understand being exhausted physically and emotionally.  It is hard.  When I am low on iron, I can't drive either, my rbc are low.  Taxol has made me anemic.  I wonder if I should not try the few hormonal drugs that are left.  Fareston a very old drug, same period as Tamoxifen or Aromasin.  I have some questions about Afinitor and breathing issues since I have them.  I don't think Afinitor is for me.

    Wishing you the best in your very tough decision, I will be thinking and sending positive thoughts your way.

    Hugs,

    Doris

     

    I, too, have been thinking about you

    and sending good thoughts your way.

    Hope your energy returns and you start feeling better.

    xoxo

    Victoria

  • New Flower
    New Flower Member Posts: 4,294
    #10
    aisling8 said:

    I, too, have been thinking about you

    and sending good thoughts your way.

    Hope your energy returns and you start feeling better.

    xoxo

    Victoria

    Thank you all for your support

    thank you for your support and understanding. I have resumed my driving, however writing is still challenge. 

    Hugs back to you all

  • camul
    camul Member Posts: 2,537
    #11
    New Flower said:

    Thank you all for your support

    thank you for your support and understanding. I have resumed my driving, however writing is still challenge. 

    Hugs back to you all

    I am so sorry to hear that it has been so hard.
    If you are like me, making these decisions are almost as hard as the treatments. Sure hope it gets better faster. Nothing so frustrating as your brain not working thr way you need it to.
    Whatever decision you make will be the right one for you. I think about you often.
    Hugs and many prayers,
    Carol

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