Camul aka Carol, Update?

SIROD

camul said:

Thanks.
I have not been able to do mich on here. Hopefully they will do something with the servers. I am holding off. Onc didnt seem surprized it is the pain management one who is responding in not such a good manner. But it is my life and my choice. Have a lot of pain in right hip area and on Thurs am. I woke up and the patch that I put on Wed am was loose and dry, so I changed it. Got nauseated and started vomiting about 15 minutes later, was so drugged. Guess if it happens again, I go without a patch for while b4 popping on a new one! amazing to me that anyone would want to feel that out of it intentially!
Figure I will know when it is time for hospice thouh. Just wish I wasnt so wotn out all the time. I feel better than when I was on chemo but was hoping I would get some energy back. Still get dizzy but only if I bend down or turn my head quickly. Last scan 3 weeks ago shows brain is clear.... so I just have to deal withHope everyone else is doing ok.
Hugs,
Carol

Palliative Care

Oh Carol,  have you looked into what Palliative Care could do for you on pain management?

Best,

Doris

Christmas Girl

camul said:

Thanks.
I have not been able to do mich on here. Hopefully they will do something with the servers. I am holding off. Onc didnt seem surprized it is the pain management one who is responding in not such a good manner. But it is my life and my choice. Have a lot of pain in right hip area and on Thurs am. I woke up and the patch that I put on Wed am was loose and dry, so I changed it. Got nauseated and started vomiting about 15 minutes later, was so drugged. Guess if it happens again, I go without a patch for while b4 popping on a new one! amazing to me that anyone would want to feel that out of it intentially!
Figure I will know when it is time for hospice thouh. Just wish I wasnt so wotn out all the time. I feel better than when I was on chemo but was hoping I would get some energy back. Still get dizzy but only if I bend down or turn my head quickly. Last scan 3 weeks ago shows brain is clear.... so I just have to deal withHope everyone else is doing ok.
Hugs,
Carol

(((Hugs))) for you, Carol...

You've already endured so much... still are... and are facing difficult decisions and choices. Want you to know I truly admire your spirit!

You'll do what's right for you, on your terms, when you're ready. And not until. In the meantime, I do hope you get some reliable pain relief without the horrid side effects.

Will keep you close within hopeful thoughts & prayer.

Kind regards, Susan

mommaellen

Carol

I know that you will make the decision that is right for you.  I will be sending continued prayers and good thoughts to you.

 

HUGS TO YOU.

 

Mommaellen