What does a PSA level of 600 mean ? / Gary has Passed.....

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  • Trew
    Trew Member Posts: 932 Member
    #22
    Its been about a month since

    Its been about a month since Gary died.  Just reading all the posts I must say how fortunate Gary was to remain so pain free.  Often end stage PCa is extremely painful. 

     

    For us who remain, how thankful we are for life.  Stories like this keep us in touch with what can happen to any of us.

    -Trew

  • klinefinancial
    klinefinancial Member Posts: 19
    #23
    Trew said:

    Its been about a month since

    Its been about a month since Gary died.  Just reading all the posts I must say how fortunate Gary was to remain so pain free.  Often end stage PCa is extremely painful. 

     

    For us who remain, how thankful we are for life.  Stories like this keep us in touch with what can happen to any of us.

    -Trew

    psa 537

    Thanks for sharing Gary's story.    It confirmed what I believe is that the chemo does not work.

    I have a psa of 537 and aberaterone didn't work for me so I have stopped all treatment now for 3 months....

    I too have been around with advanced PC starting at a psa of 72 in 2001 for over 12 years....and I too have had no pain from the cancer ever.   I am 67 and hope to make 70.   Taking only adderal for energy now and flomax to help pee.....a little celebrex for the arthritis and some sleeping meds at night......

     

    Other than horrible fatigue am pretty much sympton free....doesn't seem to be any real treatment choices at this stage of the game.....will restage in January and meet with Dr. Small at UCSF......and review at that time.

     

    Looked into the Simpson Oil but side effects too hard for me to handle....am very sensitive to drugs and get all the side effects in spades......

    whooooooosh  looking for a miracle.

  • Carinosa
    Carinosa Member Posts: 3
    #24
    Gary's story

    Thank you, Max, for sharing Gary's story. It is very helpful to hear other's experiences. I know no two people have the same journey, but it helps me think through my father's situation and what it may or may not look like. 

     

  • Carinosa
    Carinosa Member Posts: 3
    #25
    klinefinancial said:

    psa 537

    Thanks for sharing Gary's story.    It confirmed what I believe is that the chemo does not work.

    I have a psa of 537 and aberaterone didn't work for me so I have stopped all treatment now for 3 months....

    I too have been around with advanced PC starting at a psa of 72 in 2001 for over 12 years....and I too have had no pain from the cancer ever.   I am 67 and hope to make 70.   Taking only adderal for energy now and flomax to help pee.....a little celebrex for the arthritis and some sleeping meds at night......

     

    Other than horrible fatigue am pretty much sympton free....doesn't seem to be any real treatment choices at this stage of the game.....will restage in January and meet with Dr. Small at UCSF......and review at that time.

     

    Looked into the Simpson Oil but side effects too hard for me to handle....am very sensitive to drugs and get all the side effects in spades......

    whooooooosh  looking for a miracle.

    Your story

    Klinefinancial,

    I was wondering if you would share how you are doing now and if you had any reflection on your decisions that might help others. My dad is 83, his latest PSA went from 13 to 46. Dr. said no more drug options- but to continue with Zytiga. He also has double nephrostomy tubes, and catheter due to enlarged prostate. I am looking on this site to understand other people's journey. His dr. says the next step is chemo, but that he is not a fan of that choice. My dad cares for my mom with dementia, so there is a lot to consider now.

    I hope you are still able to enjoy life.

    Thank you,

  • Max Former Hodgkins Stage 3
    Max Former Hodgkins Stage 3 Member Posts: 3,819 Member
    #26
    Carinosa said:

    Gary's story

    Thank you, Max, for sharing Gary's story. It is very helpful to hear other's experiences. I know no two people have the same journey, but it helps me think through my father's situation and what it may or may not look like. 

     

    Carinose,

    Carinose,

    Thank you. Gary's battle ended about 5 years ago of course. 

    Huge advances in survival have occured since then, many new hormonal strategies that were not then in use:  mostly differing ways of mixing the HT agents, and when to stop and restart them; Vasco at this site is the master at relating these current strategies. 

    Of Gary's 13 years with PSa, as I wrote several times, virtually all of it was good times, with few side-effects until around the last 6-8 months or thereabout.

    Many Stage IV guys here have had longer survival stories even than Gary,

    max

     

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