The Cancer Survivors Network (CSN) is a peer support community for cancer patients, survivors, caregivers, families, and friends! CSN is a safe place to connect with others who share your interests and experiences.
CONGRATS to Snow Kitty alias Cindy for finishing Taxol!
Comments
-
-
-
neuropathySnowkitty said:Yeah for Me
Now if this danged neuropathy and burnt tounge would just go away.
Thanks for your good wishes.
Cindy
Hi Cindy, my neuropathy was really improved with accupunture and eventually I bought a "Rebuilder" myself because my insurance co wouldn't approve it. My neuropathy was to the point that I couldn't feel my right foot or know where it was! My left foot felt like I was walking on a hockey puck in the ball of my foot. The Rebuilder is a battery operated device using seperate wells of water for each foot and placing electrodes in each well and the current supposedly retrains your nerves. It has worked well for me but I've gotten lazy with the improvement. I noticed they are prescribing something new to prevent it called MetaNX. This is a quote from someone else on this site.
"It is a strengthened form of folic acid , B6 and B12 vitamins, you take 1 tablet twice a day. I started one week before starting Taxol and continued one month after I stopped. It has no side effects it is active form of above mentioned vitamins. Most insurance companies will not pay for it as it is vitamin supplement. Approximately costs $50/month."
I'm going to give this a try because even though I'm 2 years out from end of treatment because I still need to use my Rebuilder if my feet feel worse again. They are much improved but vacillate and are far from normal. I am in my 60s so probably don't/won't heal as well as a younger person. Congrats on finishing Taxol and I hope the neuropathy heals completely. jojo2
-
Wow! You did it Cindy!jojo2 said:neuropathy
Hi Cindy, my neuropathy was really improved with accupunture and eventually I bought a "Rebuilder" myself because my insurance co wouldn't approve it. My neuropathy was to the point that I couldn't feel my right foot or know where it was! My left foot felt like I was walking on a hockey puck in the ball of my foot. The Rebuilder is a battery operated device using seperate wells of water for each foot and placing electrodes in each well and the current supposedly retrains your nerves. It has worked well for me but I've gotten lazy with the improvement. I noticed they are prescribing something new to prevent it called MetaNX. This is a quote from someone else on this site.
"It is a strengthened form of folic acid , B6 and B12 vitamins, you take 1 tablet twice a day. I started one week before starting Taxol and continued one month after I stopped. It has no side effects it is active form of above mentioned vitamins. Most insurance companies will not pay for it as it is vitamin supplement. Approximately costs $50/month."
I'm going to give this a try because even though I'm 2 years out from end of treatment because I still need to use my Rebuilder if my feet feel worse again. They are much improved but vacillate and are far from normal. I am in my 60s so probably don't/won't heal as well as a younger person. Congrats on finishing Taxol and I hope the neuropathy heals completely. jojo2
Wow! You did it Cindy! Congratulations to you!
Sue
-
-
I am always in awe of all ofJJDS said:You must be on cloud 9!
You must be on cloud 9! Congrats to you! Do something really fun to celebrate!
I am always in awe of all of you that finish chemo as I know it is very difficult to get through. Congratulations Cindy! I am so very happy for you!
-
Discussion Boards
- All Discussion Boards
- 6 Cancer Survivors Network Information
- 6 Welcome to CSN
- 122.6K Cancer specific
- 2.8K Anal Cancer
- 456 Bladder Cancer
- 312 Bone Cancers
- 1.7K Brain Cancer
- 28.6K Breast Cancer
- 408 Childhood Cancers
- 28K Colorectal Cancer
- 4.6K Esophageal Cancer
- 1.2K Gynecological Cancers (other than ovarian and uterine)
- 13.1K Head and Neck Cancer
- 6.4K Kidney Cancer
- 681 Leukemia
- 803 Liver Cancer
- 4.2K Lung Cancer
- 5.1K Lymphoma (Hodgkin and Non-Hodgkin)
- 242 Multiple Myeloma
- 7.2K Ovarian Cancer
- 70 Pancreatic Cancer
- 493 Peritoneal Cancer
- 5.6K Prostate Cancer
- 1.2K Rare and Other Cancers
- 544 Sarcoma
- 743 Skin Cancer
- 659 Stomach Cancer
- 192 Testicular Cancer
- 1.5K Thyroid Cancer
- 5.9K Uterine/Endometrial Cancer
- 6.4K Lifestyle Discussion Boards