Appendiceal Cancer

WolfyS5765

mixed adenoneuroendocrine carcinoma

Hello,

My husband has just a debulding surgery with HIPEC about a week ago.  He is recovering well and was told by the doctors that he can go home tomorrow.

Sounds great, but I am very worried.  When he had a CT-guided needle biopsy of a nodule in the omentum at a local cancer hospital, the tissue diagnosis was low-grade mucinous adenocarcinoma, or pseudomyxoma perionei.  He was referred to another cancer hospital where HIPEC is performed.  I knew that a routine procedure for cancer surgeries is to send cancerous tissues for histology.  I was curious about the histopathology report and asked for copies.  The pathology report looked different from the needle biopsy report.  I did not find any words such as low-grade or even PMP.  Since there were so many tissues involved, I cannot even remember what was what.  But there were mucinous carcinoma, signet ring cells, lymph nodes involvement, etc.  The final sentence states that it was poorly differenciated mixed adenoneuroendocrine carcinoma.  

This morning during doctors' rounds, the only thing that was talked about was him being discharged soon.  I could not help but to ask one of the doctors about the recent pathology report looking more serious.  The doctor said it was a concern since there were different findings that were not in the needle biopsy report.  He would have to under systemic chemotherpy every 3 weeks.  

I am scared, sad, and feel devastated.  I made a mistake of googling to research about the specific type of the cancer and it is very depressing.  

I would appreciate it very much if anyone could provide me with any uplifting words.  

Thank you,

WS 

abrub

WolfyS5765 said:

mixed adenoneuroendocrine carcinoma

Hello,

My husband has just a debulding surgery with HIPEC about a week ago.  He is recovering well and was told by the doctors that he can go home tomorrow.

Sounds great, but I am very worried.  When he had a CT-guided needle biopsy of a nodule in the omentum at a local cancer hospital, the tissue diagnosis was low-grade mucinous adenocarcinoma, or pseudomyxoma perionei.  He was referred to another cancer hospital where HIPEC is performed.  I knew that a routine procedure for cancer surgeries is to send cancerous tissues for histology.  I was curious about the histopathology report and asked for copies.  The pathology report looked different from the needle biopsy report.  I did not find any words such as low-grade or even PMP.  Since there were so many tissues involved, I cannot even remember what was what.  But there were mucinous carcinoma, signet ring cells, lymph nodes involvement, etc.  The final sentence states that it was poorly differenciated mixed adenoneuroendocrine carcinoma.  

This morning during doctors' rounds, the only thing that was talked about was him being discharged soon.  I could not help but to ask one of the doctors about the recent pathology report looking more serious.  The doctor said it was a concern since there were different findings that were not in the needle biopsy report.  He would have to under systemic chemotherpy every 3 weeks.  

I am scared, sad, and feel devastated.  I made a mistake of googling to research about the specific type of the cancer and it is very depressing.  

I would appreciate it very much if anyone could provide me with any uplifting words.  

Thank you,

WS 

Before doing anything, get him a Specialist

He needs an appendix cancer specialist.  I, too, was told I needed systemic chemo immediately if not sooner.  My appendix cancer specialist said no - first surgery with intraperitoneal chemo; systemic chemo might not be necessary.  Every case is different, but mine was also low grade mucinous adenocarcinoma originating in the appendix (all over the omentum, and belly.)

Let me know where you are from.

Alice