more rechecks this afternoon

katenorwood
katenorwood Member Posts: 1,912
in Head and Neck Cancer #1

Hey everyone,

Rechecking the lung and chest wall down at Masonic today.  And it's suppose to snow.  Alrighty then, should be a fun trip.  I also want to bring up another issue that is important in understanding our dx's.  TUMOR PROFILING  This shows our specific DNA and RNA that could match up tx's in the future that could help us fight our specific dx's.  There isn't anything near me to do this as my dx is rare and not studied (researched) in our state.  TOO FEW.  But with the help of accoi I did find a resource to do it.  It is very exspensive, but some insurance companies will cover the labs services.  I'm a bit shook that this isn't offered as an option in the beginning of our journeys.  The more I research, the more I'm seeing advancements in this specific area for more personalized medical tx's.  I know in the beginning all I wanted was the cancer gone.  If I can explore and understand options for us and actually muddle my way through it, I feel it may help others in finding a cure.  This is different from histology (tissue type) which is important to know also.  Well enough of the medical lingo for this morning.  Will let you know how all of this progresses and what if anything this will help.  Have a great day.....as I will !    Katie     

Comments

  • Skiffin16
    Skiffin16 Member Posts: 8,305 Member
    #2
    Ohhhh, Rechecks..

    Living in Polk County Florida, I thought you said More RedNecks...., LOL... susel

    Thoughts & Prayers for a great day...

    John

  • Ingrid K
    Ingrid K Member Posts: 813
    #3
    Skiffin16 said:

    Ohhhh, Rechecks..

    Living in Polk County Florida, I thought you said More RedNecks...., LOL... susel

    Thoughts & Prayers for a great day...

    John

    Good Luck today

    Good Luck Katie on your re-CHECKs.

    thinking of you.

     

     

  • wolfen
    wolfen Member Posts: 1,324 Member
    #4
    Ingrid K said:

    Good Luck today

    Good Luck Katie on your re-CHECKs.

    thinking of you.

     

     

    Katie

    Good to hear from you and best of luck with today's fun afternoon. We'll be meeting with the MDA Rad Onc this afternoon to discuss plan for lung tumor. More fun, also.

    Take Care,

    Luv,

    Wolfen

  • NJShore
    NJShore Member Posts: 429 Member
    #5
    Luck to you all..

    Katie, Wolfen,

    Luck to you both today! Drive safely!

    Kari

  • phrannie51
    phrannie51 Member Posts: 4,716
    #6
    Sounds like a busy day, Katie....

    Gawd, remember the good old days when seeing the Dr. was at best a once a year deal?  I admire you for all your researching....I'd be a lost pup trying to find this stuff out from scratch.....thank you for forging the way.  What is accoi? 

    Hoping you have a productive day today, too....Wolfen!! 

    p

  • katenorwood
    katenorwood Member Posts: 1,912
    #7
    phrannie51 said:

    Sounds like a busy day, Katie....

    Gawd, remember the good old days when seeing the Dr. was at best a once a year deal?  I admire you for all your researching....I'd be a lost pup trying to find this stuff out from scratch.....thank you for forging the way.  What is accoi? 

    Hoping you have a productive day today, too....Wolfen!! 

    p

    Turned around...gotta love this state !

    Hey everyone,

    Didn't even make it 30 miles from home and ended up turning around.  Our back roads were rotten, made it to a state hwy. that was just as bad.  So called them, gonna have an xray done at the local clinic.....sent to them.  And also a phone consult with my medical oncologist.  I remember T saying something about coming to our state and saying it was stupid cold.  I love my state but I've gotta agree with him.  We usually get the snow in March, little early.  I'm doing really good, and getting spunky again.  Hopefully my onc will agree w/the H/N guy, and I won't have to go back til May now.  Keep your fingers crossed !  Oh P...ACCOI is adenoid cystic carcinoma org. international.  They have been a god send to me with their knowledge on my dx.  I think that all H/N dx's are important, so any and all information I find that could help us all, I will share.    Katie

  • katenorwood
    katenorwood Member Posts: 1,912
    #8
    wolfen said:

    Katie

    Good to hear from you and best of luck with today's fun afternoon. We'll be meeting with the MDA Rad Onc this afternoon to discuss plan for lung tumor. More fun, also.

    Take Care,

    Luv,

    Wolfen

    Safe trip !

    Wolfen,

    Hope your day goes better than mine started...lol !  I'm home safe and warm.  Please let us know how things go !   Katie

  • sassysrice
    sassysrice Member Posts: 117
    #9
    Good Luck

    Katie Hope all went well..thinking of you.

    That research sounds interesting, thanks

    Sue

Discussion Boards