ARE SOME WOMEN LUCKY ENOUGH TO NOT HAVE TO TAKE ANYTHING AFTER A MASTECTOMY

New Flower

Unhappy said:

Thank you New Flower for your imput

I have been taking the anastrozole for about a month. But I think the pain and numbness I have in my left leg may be from taking it. I have had two knee replacement and worry about what it may do to them .Before I had them done I could hardly walk now after knee replacement I was getting alone so good until I found that I had breast cancer .Yes  I do have a lot of concern.But when I read about you ladies I feel like I have nothing at all to complain about .I am hoping and praying for the best for all of you there are some great people on this site.

What is your name

You are a very good woman, I cannot call you Unhappy, it is feel wrong sorry, it is just me.

please talk to your doctor. There are other anti estrogen drugs which could be easy for you hugs 

Unhappy

New Flower said:

What is your name

You are a very good woman, I cannot call you Unhappy, it is feel wrong sorry, it is just me.

please talk to your doctor. There are other anti estrogen drugs which could be easy for you hugs 

If I knew how to change my name

If I knew how to change my name on here I would .I tried lot of names that they said were already taken.I like your name I grow daylillies never though of using daylily lover as my name that may of work better then the one I chose .Maybe you could till me how to change my name on here..Again thank you for your imput.

Barb A

I had DCIS and was told it was wide spread, but not in lymph nodes. I was told DCIS calcifications are not just in the milk ducts. That was in 2001 - I had a mastectomy with Tram-flap reconstruction. I took Tamoxcifen for 5 years. No chemo or rads. A year and a half after finishing Tamoxcifen, I found a lump in the reconstructed breast. It was IDC stage 3. I had a lumpectomy, chemo, rads and Arimedex (almost 5 yrs now).

I just found out last week that my first cancer also had some IDC. Most likely some was missed with the mastectomy and reconstruction, as they can't remove all the tissue and skin. I'll never know and could only assure myself that I made the best choice for me with the Tamoxcifen and now Arimedex.

What ever you choose to do, ask for copies of all your reports, get as much information as you can and make the choice(s) that you feel are best for you. Everyone is different. After my second dx, I asked them to do a mammo on the reconstructed breast. Because it's my tissue and not implants, they tried it. There isn't a lot to see except around the outer edges. They happened to see something a couple of years ago and did a biopsy. It was benign, possibly scar tissue. However, last year they ultrasounded it and it was considerably larger. Another biopsy, also benign. However, it gives me peace of mind that they are aware of something there and are keeping tabs on it.

For those who have had a mastectomy with or without reconstruction, please keep doing self exams. Lumps can develop even if there is no breast there. Get to know your new self. There will be changes over time, but you will learn what is a problem and what isn't. Early detection is what helped me both times.

Best of luck,

Barb A

 

 

 

Barb A

I had DCIS and was told it was wide spread, but not in lymph nodes. I was told DCIS calcifications are not just in the milk ducts. That was in 2001 - I had a mastectomy with Tram-flap reconstruction. I took Tamoxcifen for 5 years. No chemo or rads. A year and a half after finishing Tamoxcifen, I found a lump in the reconstructed breast. It was IDC stage 3. I had a lumpectomy, chemo, rads and Arimedex (almost 5 yrs now).

I just found out last week that my first cancer also had some IDC. Most likely some was missed with the mastectomy and reconstruction, as they can't remove all the tissue and skin. I'll never know and could only assure myself that I made the best choice for me with the Tamoxcifen and now Arimedex.

What ever you choose to do, ask for copies of all your reports, get as much information as you can and make the choice(s) that you feel are best for you. Everyone is different. After my second dx, I asked them to do a mammo on the reconstructed breast. Because it's my tissue and not implants, they tried it. There isn't a lot to see except around the outer edges. They happened to see something a couple of years ago and did a biopsy. It was benign, possibly scar tissue. However, last year they ultrasounded it and it was considerably larger. Another biopsy, also benign. However, it gives me peace of mind that they are aware of something there and are keeping tabs on it.

For those who have had a mastectomy with or without reconstruction, please keep doing self exams. Lumps can develop even if there is no breast there. Get to know your new self. There will be changes over time, but you will learn what is a problem and what isn't. Early detection is what helped me both times.

Best of luck,

Barb A

 

 

 

New Flower

Unhappy said:

If I knew how to change my name

If I knew how to change my name on here I would .I tried lot of names that they said were already taken.I like your name I grow daylillies never though of using daylily lover as my name that may of work better then the one I chose .Maybe you could till me how to change my name on here..Again thank you for your imput.

You need to contact CSN administration

Please contact CSN administration by email they should help you out

it will need some effort and persistency. They are the only ones who can do it.

Hugs

cathyp

Unhappy said:

Thank you Cathy for your imput

I would not have a problem at all with the anastrozole .It is just the side affects .Joint pain I have had 2 knee replacement seem like every year something else come up .The mactectomy was not that painful compared to the knee replacements .What treatment do they have you on at this time.Hoping for the best for you.

You ask what treatment am I

You ask what treatment am I on at this time.  I had a double mastectomy for IDC, DCIS and LCIS.  No other treatment. Thanks for your well wishes.  It has been 23 and 19 years since the recurring Hodgkins, 5 for the BC.  Just trying to stay ahead of the numerous long term effects from the HD treatments.

Sometimes it is hard for others to hear we may be discontinuing treatment because of side effects.  I'm just saying I can relate to what you are saying about your current treatments.  I had been rx'd Lyrica for Radiation Fibrosis Syndrome.  It worked like a miracle, I felt wonderful until 2 months in.  I had severe abdominal bloating.  I could not take it anymore and stopped the medication.  Sometimes side effects really hamper our quality of life.  It's hard to understand until it happens to you.  If you want to continue with meds, like others have said, there may be a differnet drug that has less side effects for you.

Good Luck!

Benny4128

Hi-

I noticed a lot of old posts regarding Hodgkins Disease and now Breast cancer. I had Hodgkins disease in 1996 at age of 30. I received mantle radiation and Chemo. through the years I developed Graves Disease, thyroid and petruding eyes that required surgery. I do see a cardio once a year, have high blood pressure, resting heart beat 90.

I just recently got diagnosed on 3/8 after a needle biopsy with Breast Cancer - Stage 1 -IDC/DCIS, because I had mantle radiation, i cannot receive radiation to my chest with Lumpectomy, so I opted for Double MX with immediate reconstruction with implants.

Has anyone gone through the same surgery and how did you do with immediate implants. I will be having surgery on 2 weeks....after waiting a month due to schedule with breast surgeon and reconstruction specilist.

Feeling anxious

Ladin

https://csn.cancer.org/discussion/comment/1328970#Comment_1328970

I am having that problem. They sent me to the surgeon directly from the biopsy. I cannot believe I am supposed to have such an important surgery without talking to an oncologist, asking questions and understanding completely what I have and what the surgery entitles. They only wanted to five a referral to an oncologisty AFTER surgery! Finally, got an appointment with an oncology surgeon without a referral. Not sure if my insurance is going to pay.