Post-treatment stuff I wish they'd told me

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Comments

  • Tim6003
    Tim6003 Member Posts: 1,514 Member
    #22
    tonyb said:

    I too felt compelled to list

    I too felt compelled to list all of the side effects that i experienced. and believe me there were a bunch of them,  I am now about 2 years down the road after treatment and

     i am just about back to normal now.  Most everything cleared up after treatment ended. but some things took longer than others. It all seems like it was just a bad dream now, in many ways.

     So i guess what i am saying is, it was good to know some of what to expect, but i am glad that the doctors didn't try to cover every side  effect with me , it would have scared me off.

     anyway, just know that with time, most of these things will pass. Its just part of going thru treatment. Its a high price to pay , but remember this thing is a fight.

       best wishes to you , Tony

     

    I always fall on the opposite side of the fence it seems ...

    Sunshine...great post.

     

    It's funny, if you get a prescription filled at your local pharmacy they give you a  6 page booklet on EVERY SINGLE thing that can happen with this medicatoin...LOL....

    I think if they just handed you a 20 page book on all the possbile side affects of H&N treatments, said everyone is different, you may or may not experience these and also gave you a "spoiler alert" for those that would rather not read and just wait....it would sure save a TON of calls and or visits to the doctors ...bc when you experience something, then read about it on CSN before you can call or go to your doctor ...you feel better ......this site and you all have saved me many an "uptight" moment and even a few doctors visit .....which says something for keeping healthcare costs down... :):)

     

    Best,

    Tim

  • igloo3232
    igloo3232 Member Posts: 4
    #23
    jcortney said:

    Thanks for that ray of "sunshine"

    Seriously, all good (bad) stuff I have to look forward to.  But I'd rather know than not know.

     

    Joe Cortney

    Dallas, TX

    welcome Joe--
    The list is

    welcome Joe--

    The list is fairly extensive and like a lot of people have said, you may not experience all of them. I'm in my 3rd week post radiation. I think last week was the peak of the side effects for me. Lack of mucus, fatigue, problems eating solid food again, mouth sores, and emotions that are just now catching up with me -- I didn't have the time or the opportunity to be afraid the past few months. In a lot of ways, I think the major surgeries I've had were easier to recover from than the radiation therapy. Good luck and keep the faith.

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