CEA steadily rising, new chemo Irinotecan

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  • wawaju04976
    wawaju04976 Member Posts: 316 Member
    #22
    smokeyjoe said:

    Winter,  are you getting

    Winter,  are you getting Folfiri with avastin ..... or irinotican with avastin?   Are they leaving the 5FU out of the mix.   I did folfiri and tolerated it quite well,  had fatigue mostly as the side effect.     Make sure you have loperamide on hand just in case you need it.   I've heard you can get early onset of diarrhea   or  a late onset after a few days it hits....as we all know everyone is different  and you'll just have to see how your tummy responds.    Hope you have minimal side effects and tolerate it well.   I'll be back on it in Jan. as far as I know......I got a calendar with my appt.s from onc. and I have a treatment scheduled on it.

    I just read your story, and

    I just read your story, and you are an inspiration. I am sure you're going to kick cancer's **** again!!!

     

    Judy

  • westie66
    westie66 Member Posts: 642
    #23
    herdizziness said:

    Thank you all

    For your words of encouragement.  Wink 

    So far I had diarhea right after getting home, then it went away within an hour.  This is day 4 and am as of last night the second bout of diarhea, but not bad at all.  I feel no different, not tired or anything.  Hopefully this will keep up and I will do well on this new chemo.

    Presently I am just on Irinotecan for the time being, I'm worried about hair loss, but if it goes, it goes, as long as I stay!!  LOL.

    Winter Marie

    Irenotecan

    HI Winter Marie:  Good luck with the new treatment (but I'm sorry you have to be on it).  I had irenotecan plus oxaliplatin plus 5FU for 14 treatments.  It was nasty (diarrhea) but

    I survived it and it did appear to work.  My hair did break off but has come back thicker and somewhat curly.  And I lost a lot of weight which was good for me.  Merry Christmas!

    Cheryl

  • aggie0053
    aggie0053 Member Posts: 110
    #24
    herdizziness said:

    Thank you all

    For your words of encouragement.  Wink 

    So far I had diarhea right after getting home, then it went away within an hour.  This is day 4 and am as of last night the second bout of diarhea, but not bad at all.  I feel no different, not tired or anything.  Hopefully this will keep up and I will do well on this new chemo.

    Presently I am just on Irinotecan for the time being, I'm worried about hair loss, but if it goes, it goes, as long as I stay!!  LOL.

    Winter Marie

    sorry winter hope everything

    sorry winter hope everything will be back too normal real soon

  • pepebcn
    pepebcn Member Posts: 6,331 Member
    #25
    aggie0053 said:

    sorry winter hope everything

    sorry winter hope everything will be back too normal real soon

    Hi Winter!
    Feel so sorry about the news but Irinotecan is been best drug I had until now! And manageable!
    Hugs dear Sis!
  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    #26
    Hi Winter Marie,
    I just

    Hi Winter Marie,

    I just wanted to say that you're in my thoughts, and I'm hoping for good results with the new chemo.

    Hugs (()),

    Cynthia

  • geotina
    geotina Member Posts: 2,111 Member
    #27
    Marie:

    George was on this drug (no 5FU) for more much more than a year.   It worked very well for him.  His CEA went down, down, down.  He did get horrible diarrhea so heads up on that one.  Put a towel under the sheet on your side of the bed just in case it comes on suddenly at night.  Craig had told me that this drug was very hard on the kidneys and in the end George had  renal failure so heads up on that one.  If you notice your urine output drops even though you try and stay hydrated,  mention it to your docs.  I wish George had known this sooner.  He also experienced complete hair loss, legs, head, eyebrows, all of it and it came out as soon as he started this drug.   I don't wish to scare you but you are one tough lady and I feel you would want to know what may or may not happen.  This is also the drug that Cliff (Buzz) started and then quit after one or two treatments, he just could not do it.  Most people handle this drug quite well but George would say Folfox was a walk in the park compared to this one.   He didn't have nausea.  He was able to work while taking this drug but would experience fatigue.   If you want to know anything else, send me a pm.

    Love and Hugs - Tina

  • barbebarb
    barbebarb Member Posts: 464
    #28
    geotina said:

    Marie:

    George was on this drug (no 5FU) for more much more than a year.   It worked very well for him.  His CEA went down, down, down.  He did get horrible diarrhea so heads up on that one.  Put a towel under the sheet on your side of the bed just in case it comes on suddenly at night.  Craig had told me that this drug was very hard on the kidneys and in the end George had  renal failure so heads up on that one.  If you notice your urine output drops even though you try and stay hydrated,  mention it to your docs.  I wish George had known this sooner.  He also experienced complete hair loss, legs, head, eyebrows, all of it and it came out as soon as he started this drug.   I don't wish to scare you but you are one tough lady and I feel you would want to know what may or may not happen.  This is also the drug that Cliff (Buzz) started and then quit after one or two treatments, he just could not do it.  Most people handle this drug quite well but George would say Folfox was a walk in the park compared to this one.   He didn't have nausea.  He was able to work while taking this drug but would experience fatigue.   If you want to know anything else, send me a pm.

    Love and Hugs - Tina

    Wishing he best for you
    Hoping you are feeling ok and this treatment helps you.
    I will be dealing with radiation next and possibly chemo for the liver after brain treatment. Of all the surguries it was a walk in the park.
    I'be been an emotional mess all week. Trying to accept what's to come and the fact not another surgery (have had 4) this year.
    Anyways, this is about you and you are in my prayers and I know a strong fighter.
    Keep us posted! We need you!
    Barb
  • LivinginNH
    LivinginNH Member Posts: 1,456 Member
    #29
    Up

    Up

  • taraHK
    taraHK Member Posts: 1,952 Member
    #30
    me too!

    I've aso had some deterioration and moving to a new chemo -- irinotecan plus Avastin plus Xeloda. I've actually been on all 3 before. But I'm on a higher dose of Irinotecan this time. Had a bit of a rough time with my first cycle (diarrhea, vomiting - lost 5 lbs!) but my onc is going to up my antiemetics and is giving me an appetite stimulant. I'm optimistic. I'll prob loose my hair (again) but I don't care. 

    Tara

  • herdizziness
    herdizziness Member Posts: 3,624 Member
    #31
    taraHK said:

    me too!

    I've aso had some deterioration and moving to a new chemo -- irinotecan plus Avastin plus Xeloda. I've actually been on all 3 before. But I'm on a higher dose of Irinotecan this time. Had a bit of a rough time with my first cycle (diarrhea, vomiting - lost 5 lbs!) but my onc is going to up my antiemetics and is giving me an appetite stimulant. I'm optimistic. I'll prob loose my hair (again) but I don't care. 

    Tara

    Tara

    Good luck with the new chemo, hoping mine does well too.

    Yep, guess we all learn we can live without our hair for a while.  Had my party today, lot's of laughter and love!!!

    Winter Marie

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